Education and learning
If this is your first visit, check out the community guide. You will have to Join us or Sign in before you can post.
Receiving too many notifications? Adjust your notification settings.

1-1 in classroom 15hrs cut 12due to paperwork??

gabriel336gabriel336 Member Posts: 23 Connected
edited November 2020 in Education and learning
Hi everyone please advise on this?

I’m posting this for my daughter she forwarded it to me...

Does anyone have any experience where there children need full 1-1 support and get a short amount of hours through an ehcp, and know if there’s a way to get 1-1 support funding if you pay for extra nursery hours. I’m a single parent of 4 year old twins one with gmsf level 5 quad cp, and they only entitle them to 15 hours, 12 for my twin with cp as 3 hours of the 15 is paperwork. I am struggling to cope after the lockdown so have increased there hours and they are giving my twin with cp 8 hours 1-1 extra with paying just the same nursery fees as I do for her twin. This means though my twin with cp needs one day a week off unless I can cover normal nursery fees plus 1-1 wages, the nursery are helping all they can and I’m eternally grateful. However it just doesn’t seem fair that parents of children who need 1-1 support must cover nursery fees and 1-1 wages. I’m happy to cover the fees but feel there should be funding to cover 1-1 wages I guess this was both an enquiry and a rant as I’m sick of never having received any help or support. I was sent home 6 days after having my  twins, with two newborns, one with severe needs, and literally no support or anything. Traumatised from my pregnancy and birth as my daughter was delivered a diagnosis of no hope, for a 7 hour brain surgery at 7 days old, and then almost died before I’d even got to hold her. And now I’ve finally did it and got them to 4, it’s still a battle for help. I feel bad moaning with all going on but after all this time I’ve had enough, if my daughter had gone to the local disabled school they would have funded 30 hours and 30 hours 1-1 support. But because I wanted them to have a final year today apparently they are still technically nursery children.

Replies

  • Tori_ScopeTori_Scope Community Team Posts: 3,210 Disability Gamechanger
    Hi @gabriel336! I'm afraid I'm not sure what the answer to your query is. I've marked your post as unanswered so that more people see it :) Hopefully another member will have some advice for you. 
    Online Community Coordinator, she/her

    Want to tell us about your experience on the community? Talk to our chatbot here and let us know what you think
  • Richard_ScopeRichard_Scope Community Team Posts: 2,607 Scope community team
    Hi @gabriel336
    So what you are saying is that you have been asked to cover nursery fees and wages, for an additional day at nursery for your daughter?
    Scope
    Specialist Information Officer - Cerebral Palsy

    Want to tell us about your experience on the community? Talk to our chatbot and let us know. 
  • Tori_ScopeTori_Scope Community Team Posts: 3,210 Disability Gamechanger
    Hi @gabriel336 :) How have you been getting on? 
    Online Community Coordinator, she/her

    Want to tell us about your experience on the community? Talk to our chatbot here and let us know what you think
  • mossycowmossycow Community champion Posts: 495 Pioneering
    Hi there, sounds like the logitistics are a total nightmare in contrast to the total blessing and miracle of having your kids. 😊 😊 

    So sorry, it just should not be this hard. 

    Have nursery signposted you to anyone with specific expertise? That sounds totally unfair that you're having to pay more because your child (grandchild) happens to have CP.

    Does Scope have any specialists who could advise about this? @Cher_Scope? For example on the helpline? Or people you know?


    On a slight tangent... How gorgeous are you grandkids? Aaaaahhhhhhhh they are our greatest challenge and greatest love aren't they xx

    "I'm trying to live like a random poem I read that ended 'to bloom where we are planted"

  • Cher_ScopeCher_Scope Community Team Posts: 2,760 Disability Gamechanger
    edited December 2020
    @mossycow Thanks for the tag.  I'd second giving our free Scope helpline a call as the advisors have a wealth of knowledge between them.  They are contactable via:

    And are open Monday to Friday, 8am to 8pm. Saturday and Sunday, 10am to 6pm. And most bank holidays.

    Alternatively, the people at the Independent Provider of Special Education Advice (IPSEA) organisation are specialists in this field.  You can visit their Contact page to book an appointment with an advisor.  

    Good luck and please let us know how you get on.

    Online Community Co-ordinator

    Want to tell us about your experience on the community? Talk to our chatbot and let us know. 
Sign in or join us to comment.