Hi, my name is Daisy_olive_mummy! Any advice on being accepted for self-funded SDR?

Daisy_olive_mummy
Daisy_olive_mummy Online Community Member Posts: 1 Listener
edited December 2020 in Cerebral Palsy Network
Hi. Daisy has just been accepted for self funded SDR. She’s level 4... any advice greatly received x

Comments

  • janer1967
    janer1967 Online Community Member Posts: 21,922 Championing
    Hi and welcome sorry I dont have any advice just wanted to welcome you and hope other members can help 

    Maybe look in our parents and carers section 
  • chiarieds
    chiarieds Online Community Member Posts: 17,379 Championing
    Hi @Daisy_olive_mummy - & welcome to the community. I'll ask @Richard_Scope who may be able to answer your query about SDR, as he's this community's CP Specialist Officer.
  • Cher_Alumni
    Cher_Alumni Scope alumni Posts: 5,714 Championing
    Hello @Daisy_olive_mummy and welcome to our community.  I hope you and Daisy are good this Friday. 

    Until other more knowledgeable CP folk come along, I just wanted to signpost you to Scope's Selective Dorsal Rhizotomy webpage which has lots of helpful info on.

    If you have any particular questions don't be afraid to ask them.  We've love to support you though this.  
  • Tori_Scope
    Tori_Scope Scope Posts: 12,471 Championing
    Welcome to the community @Daisy_olive_mummy :) 

    I've moved your post into the CP category for now, and changed the title slightly so that it'll be easier for other members to find.
  • Richard_Scope
    Richard_Scope Posts: 3,906 Cerebral Palsy Network
    Hi @Daisy_olive_mummy
    Great to meet you. Have the medical team gone through all of the implications of SDR surgery? From speaking to other families whose children have undergone this procedure and from my experiences of corrective surgeries, the key thing is physio, physio and more physio! It is also very important to manage Daisy's expectations of what the surgery can help her to achieve. By that I mean it is not a cure for her CP but it will with hard work, will allow her more mobility.

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