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Hi, my name is JenLeigh1953!
JenLeigh1953
Member Posts: 1 Listener
Hello
I have just joined the community, although have known about the good work that you do for many years. Scope's advice helped me get back to study and work many years ago! Unfortunately, after many years of mild/moderate pain and disability, my health has degenerated and I have other co-morbid conditions to cope with. I have had ME, Fibromyalgia, Chronic pain and Spondylosis for many years. I have now been told I probably have EDS and have recently been diagnosed with cervical and spinal stenosis and heart conditions. Life is much harder now and I am house and sometimes bed-bound. Like many of you, I suspect, Covid has added even more difficulties to those you have been trying to deal with, not least, trying to get some food into our houses via online deliveries that so many of us have been using for years. The NHS and supermarkets have not factored in that our pre-existing needs are still there! Some of us (although listed as NOT extremely vulnerable) are still vulnerable, in as much that we may not physically be able to shop and have been that way well before Covid existed.
I hope that you all have the best Christmas that you can in this difficult year and that better times will arrive in 2021.
I have just joined the community, although have known about the good work that you do for many years. Scope's advice helped me get back to study and work many years ago! Unfortunately, after many years of mild/moderate pain and disability, my health has degenerated and I have other co-morbid conditions to cope with. I have had ME, Fibromyalgia, Chronic pain and Spondylosis for many years. I have now been told I probably have EDS and have recently been diagnosed with cervical and spinal stenosis and heart conditions. Life is much harder now and I am house and sometimes bed-bound. Like many of you, I suspect, Covid has added even more difficulties to those you have been trying to deal with, not least, trying to get some food into our houses via online deliveries that so many of us have been using for years. The NHS and supermarkets have not factored in that our pre-existing needs are still there! Some of us (although listed as NOT extremely vulnerable) are still vulnerable, in as much that we may not physically be able to shop and have been that way well before Covid existed.
I hope that you all have the best Christmas that you can in this difficult year and that better times will arrive in 2021.
Replies
Scope community team
I'm chuffed to hear that Scope helped you get back to study and work some time ago. What did you study?
It sounds like you have a heck of a lot on your plate; will you be having it confirmed if you have Ehlers-Danlos syndrome? (EDS) Bearing in mind all the conditions your body is dealing with, you are doing a great job and I'm sure you have learnt a lot from your lived experiences. Infact you might want to take a look at our Invisible Impairments discussions board to see if anything resonates with you, or if you could offer others advice.
You are right, the challenges of covid-19 have particularly hit disabled people hard. We are talking about how we are all coping on this thread if you'd like to join in.
I hope you have a lovely Christmas and if you need any company, there is always someone around here! Take care and hopefully speak soon.
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Scope community team
Thank you for joining, I hope you're well. Sounds as though you're going through a lot right now, I hope you're coping with it
Shopping has been a massive issue throughout the pandemic, and I'm aware that some supermarkets have responded better than others, but I hope lessons have been learnt this year and that the needs of disabled people will be considered more in the future.
Merry Christmas!
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I agree about your problems online shopping did you register as a disabled person with your supermarket as they open slots for you and some even let you phone an order in for next day delivery I think its morrisons
Your local council if you phone them will be able to help and advise
Scope community team
Have you been able to take a look at the resources the others have posted above?
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