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Epilepsy Discrimination - Seeking Help with Getting Justice

janie1mackjanie1mack Member Posts: 4 Listener
edited January 19 in Welcomes and introductions
Hi everyone, I am currently taking my previous employers the  NHS to an employment tribunal for disability  discrimination and constructive dismissal.  I was diagnosed with epilepsy aged 9 and take twice daily medication.    

I never ever imagined as a registered nurse I would be in this position  but I am.  I have 15 years experience working as an epilepsy nurse specialist and worked in a  wide variety of clinical settings in the UK and overseas.     

The effects on my professional career and health have been life changing. My main goal now is to raise funds for my legal team and  demonstrate in court the injustice I faced as a person with epilepsy and as a nurse. Disability  discrimination is just one aspect of my legal case.              

If anyone wishes to help me  raise the awareness of my case that would be really helpful, as I am not on social media apart from my crowd justice page. 

Any questions please get in touch. I would also welcome any suggestions from anyone else who may have been in a similar situation. 

Thanks for reading.  

(Removed by moderator, personal details)
Registered General Nurse 
Nurse Prescriber  
       
 

Replies

  • janer1967janer1967 Member Posts: 12,054 Disability Gamechanger
    Hi and welcome 

    Jyst yo infirmnyiu I have flagged your post to admin as part if the community guidelines we do not allow personal details eg full name or websites to be posted on here to protect our members 

    Admin will check the content to ensure it complies with guidelines 
    Here to help with my experience in hunan resources and employment rights 
  • janie1mackjanie1mack Member Posts: 4 Listener
    okay thanks for the update
  • Ross_ScopeRoss_Scope Posts: 4,684

    Scope community team

    Hi @janie1mack

    Welcome to the community, how are you? 

    I just wanted to wish you the best of luck for your case, you sound like you've done some great things in your career and I hope that what you do here will ultimately improve things for others going forward. 

    I have removed your link and personal details from your post, as these don't comply with our community guidelines unfortunately, we don't allow external links to fundraising of any kind.
    Online Community Coordinator

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  • janie1mackjanie1mack Member Posts: 4 Listener
    Thanks for your well wishes regarding my case.  Apologies I was not aware of the use of external links for fund raising.  Thanks for removing this.
     
    I hope by making my case public in the courts this will raise awareness of epilepsy workplace discrimination and the subsequent impact on health employment and quality of life.                       
  • janer1967janer1967 Member Posts: 12,054 Disability Gamechanger
    Good luck for your case and erll done for making a stand and fighting for your rights and those of others 
    Here to help with my experience in hunan resources and employment rights 
  • [Deleted User][Deleted User] Posts: 43 Courageous
    edited January 19
    The user and all related content has been deleted.
  • woodbinewoodbine Community Co-Production Group Posts: 5,062 Disability Gamechanger
    Personally i'm a person with epilepsy not an epileptic my condition does't define me, as far as employment goes I would say it depends on a couple of things,1) does the person get any warning before a seizure 2) how well controlled by medication are they?

    My epilepsy is totally uncontrolled and i get no warning, i have grand mal seizures 2-3 times a week and absences 4-5 times a day, so for me its a case of health over wealth and I don't expect to ever work again. @janie1mack you might find the link below of some interest;
    https://www.epilepsy.org.uk/employment-campaign
    I will now only offer benefits advice on PIP, and specific benefits advice for other people with Epilepsy. 
  • woodbinewoodbine Community Co-Production Group Posts: 5,062 Disability Gamechanger
    edited January 19
    Shezz said:
    Hi @janie1mack
    my best friend and a family member manages Epilepsy.

    Many years she tried to hide it. Due to the stigma attached to Epilepsy as you will know in the sixties people were institutionalised. My friend is successful in her own right. I know how she's fought ignorance i'm happy to say she thrived had her own family. Enjoy her life to her best of her ability. 

    I truly wish you well. I suffer with absences so l slightly know personally what a person has to cope with daily. 

    If anything you remind yourself your doing a great job raising awareness. 

    There still room for improvement from employers.ignorance and fears. All Epileptics deserve to be treat fairly. You have right not to be discriminated. 

    Best wishes stay safe love

    Shezz 


    by the 1960's people with epilepsy were no longer institutionalised, some were patients at Chalfont but they were there for treatment not to remove them from society.
    I will now only offer benefits advice on PIP, and specific benefits advice for other people with Epilepsy. 
  • janie1mackjanie1mack Member Posts: 4 Listener
    Thank you !

    Over the years working as a nurse,  I realise just how much people with epilepsy struggle staying in employment and how many people decide not to stand up to their employers when they face work place discrimination. This may be due to lack of  funds  not knowing their rights or just the stress of going to an employment tribunal. 
    I know my rights and now seek justice in the public courts.                 
  • [Deleted User][Deleted User] Posts: 43 Courageous
    edited January 19
    The user and all related content has been deleted.
  • woodbinewoodbine Community Co-Production Group Posts: 5,062 Disability Gamechanger
    @Shezz you have not offended me in any way and don't feel awful please 

    John x   :)
    I will now only offer benefits advice on PIP, and specific benefits advice for other people with Epilepsy. 
  • [Deleted User][Deleted User] Posts: 43 Courageous
    The user and all related content has been deleted.
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