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Possible Aspergers Behaviours. Is it worth seeking a diagnosis?

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nadnerbsregdor2021
nadnerbsregdor2021 Community member Posts: 3 Listener
edited March 2021 in Autism and neurodiversity

Possible signs of Aspergers

Hi all,

I have not been assessed to see if I have Aspergers or not but I believe I may have it based on discussions with my family about my behaviours, completing online Aspergers tests (I normally score around 40, whereas 28-31 indicates Aspergers) and by reading content online from others and noticing I do similar things that they have noted.

To quickly summarise

I Love:

  • Working and collecting data
  • Working alone
  • Memorising phone numbers, bank card numbers, car number plates and dates of birth.
  • Noticing patterns in things

I find difficult:

  • Social interactions
  • Working with people -Building friendships
  • To resume something after interruption
  • Change of routine
  • Making eye contact

I noticed I:

  • Find it difficult to know when it is my turn to speak on the phone
  • Fixate on the small details rather than the whole picture and will constantly work at something until it is complete.
  • Constantly talk around people I am comfortable with about what I want to talk about, not what they want to talk about.
  • Randomly say quotes from movies or lyrics form songs and repeatedly say these quotes or lyrics out loud to people.
  • Get anxious when forced to be around large groups of people.
  • Find it hard to let go of things(for example if I shouted at on the phone by a customer in work, this will annoy me and I will keep thinking about it for many days)

I am thinking that it would be best to get assessed as to whether I have Aspergers or not, even though I don't think it will make a great deal of change in my life, I would still like to have confirmation either way.

Would any of you that have been diagnosed recommend it is the best thing to do? Or would it be better to just try to mask these behaviours as best as possible and get on with things as best I can?

Would you also think any of the following below are possible Aspergers behaviours?

  • I think of a word in my head and try to use "line combinations" to write the word in the fewest line combinations as possible. e.g. I will spell out the word "Ten" with nine lines/sticks

  • When walking between destinations I will pick a random number of seconds e.g. 600 and I will count in my head to see if I can reach home before this target. If I am quicker than the target I will lower the amount of seconds as a challenge.

  • When I am tracking a package I will check/refresh the tracking information at least 100 times per day to see if the package has moved. I will also do the same if I post on a forum. I will check the page around 100 times to see if someone has left a new comment.

  • In my job (Help desk IT Analyst) I feel panic each time I have to answer a call and feel extreme relief when I finish a call. I will also have problems knowing when it is my turn to speak and will often talk over people. I will also try to talk to customers via instant messaging if possible rather than call them back.

Thanks to anyone who takes time to read this and/or reply.

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Comments

  • Ami2301
    Ami2301 Community member Posts: 7,942 Disability Gamechanger
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    Hi @nadnerbsregdor2021 and welcome to the community :)

    I'll be honest with you, your post bought tears to my eyes, not in a bad way, more relief than anything. For the past month, i've come to realise that i might have Asperger's. I can relate to so many of the behaviours you have mentioned, especially remembering numbers - my favourite used to be remembering the barcode number for 5 or so different products when i worked in a supermarket. 

    I, too, pick a random number when we are on our way home in the car, to challenge if we can beat it. I have taken a test online which gave me the result of 'strong likelihood of Asperger's'. I'm the exact same, i'm on the fence about being completely open about it or if i should keep it to myself.

    Thank you from the bottom of my heart for being open and sharing this, you've given me the boost to speak about it for the first time on here :)
    Disability Gamechanger - 2019
  • nadnerbsregdor2021
    nadnerbsregdor2021 Community member Posts: 3 Listener
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    Hi @Ami2301

    I am very glad to hear that my post has enabled you to speak about this for the first time on the forum. :smile:

    It is good to know that there is someone else who is exhibiting similar behaviours as well, as I believed that possibly I was alone in terms of experiencing the extra behaviours I mentioned such as setting time targets, excessive checking tracking numbers and line combinations.


  • Tori_Scope
    Tori_Scope Scope Posts: 12,492 Disability Gamechanger
    edited March 2021
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    Hi @nadnerbsregdor2021 :) Welcome to the community.

    Thank you for being so honest in your first post here. I wouldn't want to suggest a diagnosis, as I'm not a medical professional, but I'd say it would probably be worth speaking to your GP if this is something that's weighing on your mind.

    Some people do unfortunately face barriers when trying to get diagnosed slightly later on in life, but plenty of people have positive experiences too. Even if you explore this avenue and discover that you don't have ASD, it could be that you could get given an alternative diagnosis for something else. If you do get diagnosed with ASD, there is support out there you should be able to access, so it'd be worthwhile. It could also help with your own peace of mind.

    You might find it helpful to speak to the National Autistic Society (NAS). They have a helpline you can ring on 0808 800 4104. I know you said you can find it difficult to know when it's your turn to speak during phone calls, but this is something I'm sure they're used to and accommodating of :)

    Just to let you know, I added a short bit to the end of the title of your post so that other members know what your question is straight away.

    The above applies to you too @ami2301 :) I can imagine that being open and honest can be difficult, and it's totally your choice what you choose to share with people, and when you do this. I hope you both feel as though you can continue sharing your journeys with us here. 
    National Campaigns Officer, she/her

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  • Ami2301
    Ami2301 Community member Posts: 7,942 Disability Gamechanger
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    Thank you @Tori_Scope i will check out their website :)
    Disability Gamechanger - 2019
  • nadnerbsregdor2021
    nadnerbsregdor2021 Community member Posts: 3 Listener
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    @Tori_Scope thank you for adding the title to the post. It is much better than I previously had.

    I think I will go to my GP to discuss things once Covid vaccines are well into their second doses, as my GP does not allow me to make appointments, they only run a triage and callback for appointment on the same day service, which doesn't suit me at the moment with work commitments. Once I book time off though at some point. I will call the GP to at least talk about these behaviours, even if a diagnosis is not received futher down the line. 

    Thank you for the number and suggestion for NAS. I will definitely get round to calling them to discuss things. :smile:


  • Tori_Scope
    Tori_Scope Scope Posts: 12,492 Disability Gamechanger
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    No problem @nadnerbsregdor2021, it was only a small addition! 

    That sounds like a good plan :) I think it would be good to talk things through, even if it doesn't result in a diagnosis further down the line, as you say. 

    No problem @Ami2301 :)
    National Campaigns Officer, she/her

    Check out our Playground Accessibility Map

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