PIP decision, epilepsy, zero points
Comments
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Hi and welcome
Sorry about your PIP decision
It us always hard when you get turned down and reading the comments
Dont forget it is just the assessors opinion based on what you said and not fact
If you want to appeal then put in MR the success rate isnt high but is a lot better at tribunal0 -
Have a look at my post Epilepsy pip it takes you through the process of pip claim including tribunal.
The fact you ride a bicycle and carry out all the daily tasks you mentioned, with Epilepsy, would in my opinion give the assessor the impression that Epilepsy was having little or no affect on your daily life, the very thing a pip award is awarded for.
You said you have been injured when fitting it is wise to photograph the injuries and back up with hospital reports.
My wife received a full depth burn to most of her hand whilst attempting to cook, the DWP said everyone who cooks can expect the odd scold or two, he had not even seen the photograph I sent with my application. This oversite went a long way to overturning the DWP at the tribunal.
The fact you have to cook etc unsupervised should not deny your right to a pip award but it would be helpful to be able to proof you have been injured whilst doing so.
However the fact you ride a bicycle appears to me would affect many areas of a pip claim for mobility, my wife is accompanied at all times and yet we still had problems convincing the assessor regarding this fact.
You are standing up to your illness, for which I commend you, however this will not win you points when claiming a pip.
When you put in your MR, the next step before the tribunal, approach it from how you are after a fit, injuries in the past and how having to cope alone with all the risk this involves, affects you mental health.
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Hi how are you feeling today?
You honestly aren't alone!
[Removed by moderator]0 -
Hello and a warm welcome to the community @u6nfx3.
I'm sorry I've had to remove a couple of comments from your thread that weren't relevant to your query or weren't appropriate, so it may seem some of the replies are a little disjointed.
I think this is a really common feeling and I've seen others say it feels like the difficulties they experience have just been brushed aside.u6nfx3 said:I just feel a bit upset - and it's not about the money as much as it's about someone recognising that this has been a huge burden, and that trying to get on with it and live it is a bad thing.
Will you be challenging the decision? As @woodbine mentioned, the first step of this is to request a mandatory reconsideration.
Do you have a Welfare Rights or similar organisation in your area? It might be worth checking out Advice Local.1 -
I have epilepsy since i was 18 and agree with you @u6nfx3 that its not about the money,i had a fall today and hurt myself on my back because i get no warnings that it's going to happen. Its difficult each day and with pip even though i said all this im appealing as they couldn't understand what its like for me on a daily basis. My MR, they wouldn't and couldn't understand and didn't change their mind,how difficult things are for me.0
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Just resting as its paining alot,but its not the first time,ive had a few falls this past week,i keep a diary. I just get no aura warning its going too happen. Thank you for asking.0
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Mike
I would say that riding a bicycle when you look at Mobility Activities section – planning and following journeys and moving around, would result in a 0 points award for both. I am of course assuming that if you can ride a bike for some miles you can be expected to be able to walk unaided for more than 200m.
Planning and following a route, riding a bike would give the impression the rider could manage both
again resulting in 0 points
Which appears to be the opinion of the DWP.
If my wife suggested taking up riding any form of vehicle on the road, when at any point without any warning, she is unconscious, I would advise her not to bother. That is why the DVLA remove licences. This is of course not a judgment of the person who started this conversation.
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To which one should also add the majority of the time. Some people have bursts of energy but the majority of the time are much more restricted in what they can do, or simply want to do something because of the pleasure it gives them even though they know it will wipe them out for several days afterwards.Username_removed said: The question is whether you can do so reliably, repeatedly, safely or in a reasonable time.1 -
I carefully avoided using that phrase!Username_removed said:..concept of good days and bad days.1 -
I got s chance on both parts for epelpsy and this time no assessment and 10 year no review0
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Hi, where can i find your post. My daughter has had standard daily living and high mobility for 5years, she has just had renewel and only got 4 points so we are waiting the assessement report and doing a MR. She has a few other things lile problems with her eyes which she got points for and urine incontince. But no point at all for supervision in kitchen or when bathing. She lost all her mobilty points, even tho she goes nowhere alone, as she has had a seziure before on car park which resulted in a serious injury and had to have her head glued. Her seziures are not a often as they used to be as medication is helping keep them at bay, but the risk or danger to life is still there as if she was to have a serious alone in a bath for example, she would be in danger. Thanks
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Hi @sarah1977, this is a post from 2021 so the members may have moved on since then. Dura's epilepsy post is here in case you'll find it useful: Epilepsy application for PIP.
You'd be more than welcome to start your own discussion if you wanted to hear whether any current members have experience of this. If you'd like to do that, just click this New Discussion link ☺️
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Thank you
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