My wife has lost weight, has stomach pains, and can't keep food down. Wanting advice and support — Scope | Disability forum

My wife has lost weight, has stomach pains, and can't keep food down. Wanting advice and support

davec925
davec925 Member Posts: 1 Listener
Hi - its not me with the illness - but my wife.  She has lost 60 lbs in 5 mos (and still losing) - can't eat, stomach hurting all the time, throwing up, etc, - have no idea what is going on.  Every test comes up negative... looking for support, advice, and understanding... more to follow... nice to meet you all!

Dave

Comments

  • Sandy_123
    Sandy_123 Member Posts: 2,204 Pioneering
    Hi @davec925 sorry to read your wife is not feeling too good, keep going to drs until they can find a solution. Hopefully they sort it soon.
  • Tori_Scope
    Tori_Scope Posts: 6,686

    Scope community team

    Hi @davec925 :) Welcome to the community.

    I'm sorry to hear about your wife too, that must be very difficult for both of you. Is she due to have more tests soon? It sounds as though this definitely needs some further investigation. 
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  • chiarieds
    chiarieds Community Co-Production Group Posts: 11,069 Disability Gamechanger
    Hi @davec925 - & welcome to the community. I'm sorry to read about your wife's problems & hope her Drs can find some answers soon. :)
  • janer1967
    janer1967 Member Posts: 12,908 Disability Gamechanger
    Hi and welcome to the community 

    Sorry to hear your wife is poorly and good you are trying to support her 
    I have professional experience in HR within public,  private, and charity sectors.  If I can help I will 
  • lou87
    lou87 Member Posts: 48 Connected
    davec925 said:
    Hi - its not me with the illness - but my wife.  She has lost 60 lbs in 5 mos (and still losing) - can't eat, stomach hurting all the time, throwing up, etc, - have no idea what is going on.  Every test comes up negative... looking for support, advice, and understanding... more to follow... nice to meet you all!

    Dave
    I've had similar problems this is how my gastro problems started in 2014 with my gallbladder 😥 I'd definitely recommend speaking to a gp they can do a blood test to check her inflammatory markers and other things. I do hope your wife gets some relief soon 
    💜
  • newborn
    newborn Member Posts: 728 Pioneering
    One thing doctors don't often think of  think of is FODMAPS, although it is  N.I.C.E. approved.  People are getting exposed to so much chemical pollution now that many become either full blown allergic or 'intolerant'    They might not be able to tolerate honey or garlic or apple (3 common ones) or they might  not get on with anything with wheat in, or might not be able to eat cheese, but able to tolerate yoghurt.  Everyone is different.  The FODMAPS diet is not a diet. It is only some introductory ideas, and it won't do anyone any harm to try leaving out things for an experiment, till each person discovers their personal list. 
    Oh, by the way, it is possible to be intolerant of the chemicals in water.  (There are various filters, but one is called Zero, and it detects that even spring water is not pure)  FODMAPS is easy to look up, and you just have to follow it yourself, so it doesn;t interfere with whatever tests the doctors are doing.  But even FODMAPS doesn;t mention the water, which is strange because swallowing chlorine and chemicals and plastic  probably wasn;t  something  our bodies evolved to deal with. 
  • Jean Eveleigh
    Jean Eveleigh Member Posts: 161 Pioneering
    My first thought was a thyroid issue as I have some friends with similar symptoms and the cause is a problem with their thyroid

    Next thought was chrons disease

    Sometimes people who have symptoms such as reflux, heartburn, constipation, or nausea may not have an identifiable cause of their symptoms on any medical testing and these patients are then given a diagnosis of functional gastrointestinal disorder (FGID). Patients who have symptoms with no underlying cause found to account for more than a third of new referrals to gastrointestinal specialists, and so this is a common occurrence. 
  • lou87
    lou87 Member Posts: 48 Connected
    newborn said:
    One thing doctors don't often think of  think of is FODMAPS, although it is  N.I.C.E. approved.  People are getting exposed to so much chemical pollution now that many become either full blown allergic or 'intolerant'    They might not be able to tolerate honey or garlic or apple (3 common ones) or they might  not get on with anything with wheat in, or might not be able to eat cheese, but able to tolerate yoghurt.  Everyone is different.  The FODMAPS diet is not a diet. It is only some introductory ideas, and it won't do anyone any harm to try leaving out things for an experiment, till each person discovers their personal list. 
    Oh, by the way, it is possible to be intolerant of the chemicals in water.  (There are various filters, but one is called Zero, and it detects that even spring water is not pure)  FODMAPS is easy to look up, and you just have to follow it yourself, so it doesn;t interfere with whatever tests the doctors are doing.  But even FODMAPS doesn;t mention the water, which is strange because swallowing chlorine and chemicals and plastic  probably wasn;t  something  our bodies evolved to deal with. 
    I followed a low fodmap diet before I had my gallbladder removed it was so hard but alot has changed since then it was about 6yrs ago now 😔
    💜
  • newborn
    newborn Member Posts: 728 Pioneering
    Another thing is reactions to poisons in the home.  Chemicals come from furniture, from carpets, from soap, cosmetics, cleaning materials, and from anything scented.
     Then, if you live in town, you breathe contaminants  in what is not 'fresh' air.
     ,  
    If your wife keeps trying to get diagnosed, maybe in the meantime she could also try to give her body the best chance of not being triggered by irritants of any sort.  Dyson Cool is a silly price, but it does clean the air, and it does show the contamination levels.  There are alternatives, but my guess is more people will want to monitor air, because we have air quality in U.K which is way beyond the maximum contamination levels and is killing people. 
    Well done that mother who got the coroner to declare the cause of death of her child was breathing London air.   
  • OverlyAnxious
    OverlyAnxious Member Posts: 1,703 Disability Gamechanger
    newborn said:

    Dyson Cool is a silly price, but it does clean the air, and it does show the contamination levels.   
    Do you have one out of interest?  Does it cool well in hot weather or just blow hot air around like a fan does?

    I've been looking at proper air conditioners but the need for a large hose through a window is limiting me at the moment.



    Back on topic - Dave, does your wife has any anxiety based issues?  It's mad how much these can affect the digestive system.  I have a lot of stomach & bowel issues myself, worsening recently, with tests showing nothing wrong!  My Nan also went through a long period of stomach issues with no specific diagnosis...and then it just stopped one day.  Personally I believe that was anxiety based as it often seemed to occur during her weekly shop.  If she does have anxiety issues, is she taking any SSRI's?  Stomach issues are a common side effect of those.
  • newborn
    newborn Member Posts: 728 Pioneering
    @OverlyAnxious the answer is yeah but no but.  Actually, it doesn't have an air conditioning cooling function, but nevertheless it is a peculiar design, so it has a surprising result of being entirely different from just the conventional fans moving hot air around.   It does really seem to cool the room, switched one way, or cool the person, when switched the other way.   It isn't like sitting directly in front of a conventional fan, it seems like a sort of 'blade' of colder air. 
     But the big function in towns is the air cleaning. (And monitoring, which is a real eye-opener) 

      I have always used the air cooling effects of water evaporation. If the sun is beating directly into the windows I would use whatever would shade them, and drape cotton sheets around the place wherever possible, sprinkling water over them as fast as they dry.  They take heat from the room to do it.  I keep old fashioned cotton net curtains for just that reason, (sometimes even  leaving them with corners dipping into containers of water, so capillary action makes them self-damping.  I shut the main curtains in other rooms, to keep them dark and cool.

Brightness