Undiagnosed and rare conditions
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Does anyone else have chronic 247 severe throat pain?

Bridget90Bridget90 Member Posts: 2 Listener
Hi everyone. I suffer with severe chronic throat pain which means I basically can't talk at all. I've had this for 3 years with no reason and it being down to 'stress' I am in agony 247. I'm in such a dark place and feels so lonely not being able to even find anyone else with a similar problem! Anyone out there suffering with the same thing?! 

Replies

  • Sandy_123Sandy_123 Member Posts: 1,853 Pioneering
    Hi @Bridget90 welcome to the forum, sorry you have that condition and feeling lonely. I don't have that condition, someone might who may respond soon. 
    Have your drs come up with any ideas how to help? 
  • Bridget90Bridget90 Member Posts: 2 Listener
    Hi @Sandy_123 I've seen 4 ENTs all with no idea of how to help. Seen 3 speech therapists all who havnt been able to reduce the pain. Am under the pain clinic and they've never had a patient with it before. It the cruelest thing because you can't talk to anyone or have a conversation 😔 x
  • Cher_ScopeCher_Scope Posts: 4,417

    Scope community team

    Hi @Bridget90 and a warm welcome from me too, how are you today?

    Firstly, ouch.  What you are going through, and have been for some time, sounds like a lot to deal with.  I can understand why it's making you feel lonely and in a dark place.  Chronic pain of any kind can chip away at a person's self-esteem, is your GP aware of the impact your chronic sore throat is having on your emotional wellbeing?  If not, maybe think about contacting them to let them know how you're feeling.

    It sounds like you've explored numerous treatment options without much luck, are the pain clinic able to offer anything?  

    I've tweaked the title of your thread and moved it to our 'Undiagnosed and rare conditions' category, which you might find helpful to browse.  Also, there's a charity called Rare Disease UK which provides support to people with rare conditions such as this, and you could find others in a similar position through their network.

    I have everything crossed for you getting some answers and relief soon  <3
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  • Sandy_123Sandy_123 Member Posts: 1,853 Pioneering
    Morning @Bridget90 I can understand how frustrating it is, the link Cher put above rare diseases looks a good link to read. You can always talk to us here and join  in any conversations.
  • OverlyAnxiousOverlyAnxious Member Posts: 1,608 Disability Gamechanger
    I don't get the constant pain fortunately but do have near constant 'discomfort' in my throat which causes similar limitations as in your post.  What I can only describe as a 'throat hernia' keeps popping out making it difficult to swallow, or speak, or even breathe sometimes.  I have to try and make sure my head is upright and facing forward when swallowing but even then it still occurs...sometimes I wake up with it and it'll be there all day, others it'll just start randomly...but I know if I put any effort into lifting or pushing something that'll trigger it.  Also lately keeps happening while driving which I can't understand (possibly the effort of steering/changing gear/handbrake!?).  It often 'catches' as well, particularly if I attempt to speak.  

    Of course, I just get told it's caused by anxiety...as with any other complaint I have.  :|
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