Hi, my name is Telokin! Looking to apply for DLA — Scope | Disability forum

Hi, my name is Telokin! Looking to apply for DLA

Telokin
Telokin Member Posts: 4 Listener
edited October 2021 in PIP, DLA, and AA
Good morning 

I wonder if anyone on these forums could provide some information and support please. I have a 10 months old baby who has lymphatic malformation and he has been in and out of hospital since he was born. I am looking to apply for DLA. I wonder if anybody here has successfully obtained this and could give some advice re filling out the form. 

Many thanks in advance 
Niki 

Comments

  • poppy123456
    poppy123456 Member Posts: 25,633 Disability Gamechanger
    Hi and welcome,
    It is very difficult to get DLA for a child a baby as young as thing. The reason is because all babies require a lot of care and attention. What you will need to show is that your baby needs more care and attention than that of a baby the same age that doesn't have a health condition.

  • Telokin
    Telokin Member Posts: 4 Listener
    hi Poppy

    i will check out the link that you sent. Our sons condition does mean a lot of additional caring ( I know this from having 3 older children, one has autism) and we can evidence this with his medical history. From my understanding it is something they do not grow out of, having spoken to other parents and people who have this condition. 

    Just wondered if anyone in this community has managed to receive DLA for this condition. I do appreciate this comes under the rare diseases category so it may not be as well known. 

    Thanks,
    Niki
  • Ross_Scope
    Ross_Scope Posts: 5,742

    Scope community team

    Hello @Telokin

    Welcome to the community, I hope you enjoy being here and that the reply from Poppy has been helpful. Just to let you know, I have moved your discussion over to our DLA category and altered the title so that other members have a better idea of the subject.
    Online Community Coordinator

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  • Teddybear12
    Teddybear12 Community Co-Production Group Posts: 2,105 Pioneering
    Hi @Telokin I hope you enjoy being part of the Community and we can help with any questions you have.
  • Telokin
    Telokin Member Posts: 4 Listener
    awsome! Thank you for the warm welcome ? 
  • poppy123456
    poppy123456 Member Posts: 25,633 Disability Gamechanger
    Telokin said:
    hi Poppy


    Just wondered if anyone in this community has managed to receive DLA for this condition. I do appreciate this comes under the rare diseases category so it may not be as well known. 

    Thanks,
    Niki

    That would be impossible to answer because it's not awarded based on any diagnosis. If you do decide to claim then you should add a couple of real world examples per activity that applies.
  • Meganmag123
    Meganmag123 Member Posts: 6 Listener
    Hi, 

    my son also has this condition I am just awaiting to apply for DLA. 

    i hope all is well, I know how draining it can be with lots of hospital visits. My son is 2.5 if you need any info or even just a chat about LM drop me a message. :-) 
  • Telokin
    Telokin Member Posts: 4 Listener
    Hey 👋 

    thank you for your message. Yes that would be very helpful. What’s the best way of contacting/reaching you privately ? :) 

  • Meganmag123
    Meganmag123 Member Posts: 6 Listener
    I’m trying to work out how to do it, let me check. 
  • poppy123456
    poppy123456 Member Posts: 25,633 Disability Gamechanger
    You can’t send a PM to anyone until you have reached 25 points. As you both haven’t reached that yet you won’t be able to contact each other privately. 
    As personal information such as email addresses are not allowed on the community you will need to wait until you reach those points.
  • Meganmag123
    Meganmag123 Member Posts: 6 Listener
    Hi poppy, thank you for that information. 

    Telokin- Ill
    hopefully be able to inbox you soon privately. 


  • mikehughescq
    mikehughescq Member Posts: 8,283 Disability Gamechanger
    Telokin said:
    hi Poppy

    i will check out the link that you sent. Our sons condition does mean a lot of additional caring ( I know this from having 3 older children, one has autism) and we can evidence this with his medical history. 
    Just to clarify, you will not be able to evidence extra care for a child from education history. It will require real world anecdotal examples. What you do? How long it takes? The intensity it requires compared to a healthy baby of the same age. 

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