Hi, I'm Ioana31! My daughter has a very rare gene mutation (SMC1A) and global development delay
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Ioana31
Community member Posts: 1 Listener
My daughter, Sara is 8 year old and her diagnostic is a very rare gene mutation (SMC1A) and global development delay.
Thank you!
Thank you!
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Hello @Ioana31 - & welcome to the community. Thank you for joining, & telling us about your daughter. How are you & your daughter doing? Her problems must come with difficulties, but Scope has some services that may support you too as a parent, which you may find helpful. Please see: https://www.scope.org.uk/family-services/ Please also chat here too at any time.
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Hi and welcome to the community from me too
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