Hi, my name is mareed29!

Hello, my daughter (8) was diagnosed with ADEM (acute disseminating encephalomyelitis) when she was 6 yo in 2019. Among other things, she was completely paralyzed from the waist down. She was treated with intravenous steroids for 10 days in a children's hospital before she was discharged but we had to return after only 3 days because her symptoms returned and quickly worsened. After 5 more days of treatment in the hospital we were discharged again. Since then she has been doing well. She has almost completely recovered with only lingering bladder control problems. She has had a follow up MRI which did show signs of remaining lesions but with a lack of symptoms to go along with the lesions the neurologist has been pleased with her progress. She recently has been complaining of a headache (her first presenting symptom back in 2019). So here is my question, has anyone else recovered from ADEM and had multiple relapses? I don’t always want to jump to such extreme assumptions but as a parent, of course I’m very anxious whenever she complains of headaches or nausea without an easily explainable cause.