Hi, my name is wol139! my neurologist suspects I have hsp
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wol139
Community member Posts: 22 Listener
Hi there. I’m a lil scared as my neurologist suspects I have h s p I’m waiting for brain mri at mo. I have all the symptoms and it’s progressing. Need someone to talk to. X
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Hi @wol139 - you are very welcome to chat here in the community.
Do you know when it's likely you'll get your MRI?
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I’ve a date on 15 th March. Head and cervical x
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Hello @wol139
Welcome to the community!
I have popped your post into our Rare, Invisible and Undiagnosed conditions section of the forum, in the hopes you find other users who have gone through or have experience of the same
You are more than welcome to come join us in the Coffee Lounge, we have general debates and play games. It's a great way to make friends in the community, we are always here to chat
I'm keeping everything across for your MRI appointment! Hannah - She / Her
Online Community Coordinator @ Scope
Concerned about another member's safety or wellbeing? Flag your concerns with us.
Want to give us feedback? Complete our feedback form now. -
Gosh just phoned to get pip. Awaiting the dreaded forms now. Any tips please. Never thought I’d get to this stage. 🙈
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@wol93
Well done! I know it seems so daunting. You can always reach out to Scope's Helpline if you need help with forms Hannah - She / Her
Online Community Coordinator @ Scope
Concerned about another member's safety or wellbeing? Flag your concerns with us.
Want to give us feedback? Complete our feedback form now.
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