Compression garments for a weak trunk

My son has been using a lycra suit for many years. He had theratogs for a year or two, but as he grew it didn't give him enough support. The current lycra suit is from Tru Life and he gets it through the NHS. You should speak to your grandson's physio or OT about it. They would be familiar with it. There is also another suit called Second Skin, but it has boning in it and is more rigid. There should be a fact sheet on this site about Dynamic Lycra Splinting as it's called. It's a wonderful piece of garment for a floppy trunk and makes a big difference from speech to fine motor skills.

Hi there our daughter has been wearing a second skin lycra suit DMO since she was three, it does exaclty what you say it increasees feedback and gives a far better awareness. It was suggested by her physio ( NHS), it has to be measured and made to fit and is monitored about every 6-8 weeks by her lovely orthotist who also casts for her AFO splints. It is an all in one suit whith a natty zip system for toileting ( the crotch bit is cut away and she wears her underwear over the top a little like superman!) although they do come in separates sort of shorts and top. it is probably the most effective piece of support she has and in her words " It stops me feeling wobbly" it certainly means that she is less tired and more co ordinated !, she never objects to wearing it. When she is measured for a new suit she is offered a choice of colours from swatches and they even added tags to the zips this time so that she could help to get in and out of it. Initially we were worried about her over heating as her first suit arrived during a rare August heatwave however according to the physio kids wear them in the middle east with no problems at all , we have never had an issue with her overheating. Lately she has been struggling to learn to swim and the physio has suggested that we try wearing it in the pool !
A little boy in my class at school uses a "hug shirt" which is less supportive but does increase feedback and proproception. hope you find the right support for your young man
best wishes joe

I am new to the forum, but I was really excited to hear positive things about Lycra as my little boy with a weak trunk is just started the assessment process for a suit. I am hoping it will eventually help him feel more secure in himself to move about independently and sit on his own. He is 17 months and desperate to get about but is limited by his weak trunk.