multi level surgery

hi i posted late nov to early jan this year.my daughter had multi level surgery and we wouldnt recommend it to any body we had major complications and nearly lost her.it is now 5months since surgery and she still hasnt gone back to school yet has lots of home physio and 3 physio outpatients a week plus cams and other appts.my daughter still cant bend her knee she is far worse now than before the surgery and we have been back to c consultant at gobowen and all he could do is apologise that it hadnt been successful.my daughter is in lots of pain and is woken up numerous times in the night.before surgery she could crawl and use a k walker frame for very short distances .now she cant even stand long enough to pull underwear up after being to loo or a bath.we are having to rethink our adapted house as its to painful to be hoisted into special bath.my daughter was in mainstream school but we are loooking to a special school because caring for her will be more difficult and she cant sit for more than 30 -40 minutes in her current wheelchair because of back hip and leg pain.my daughters surgery was massive which consisted of right ankle broken fib and tib broken and plate put in left leg consisted of fib and tib broke knee rotated thigh broke and two plates put in.they went into her hips and moved ligaments and tendons around her surgery lasted over 6and a half hours. her epidural failed and had to have ketamin to get her of her face so she could forget about the pain.if she had been an animal you wouldnt have let it suffer.she encountered severe breathing difficulties,going green because her bowel and stomach stopped working properly.she has massive spasms which she never prevoiusly had and is now under child psychology because what little bit of independance eg playing with toys on floor transfering onto toilet into car is now gone or severly compromised.do not listen to surgeons they dont give you such an honest picture they dont tell u of how many go wrong and what you can expect.our physios have been great but every day is now a learning curb.

Hi my son had multilevel surgery in january 2011. He was in theatre for 5hours and has plates and screws in his hips. He has definitely improved although he still walks on his toes on his left leg. His legs were rotated in and his foot was deformed. I would recommend it but everyone responds differently. Ashley had intense physio when he came out of hospital and we did exercises and stretches at home everyday mostly twice a day.
He is about to go to Bristol to have the plates and screws removed.
He has days where he is in pain and his hips click at times but on the whole he is much better.
I think every child is different and no-one not even the best surgeon can say the child is going to be better they just can advise and say they hope it will improve their condition. Things do go wrong and our consultant did say it might not work and Ashley could be worse but I think its worth taking that risk when they say 75% sure it will help.
Hope this helps you