.kbg sydrome
Options

janrose
Online Community Member Posts: 1 Listener
my child has just been diagnosed with this . anyone else out there with any information on this
0
Comments
-
hi Janrose,
I'm not an expert in Kbg syndrome but I have read the following:
- it is quite rare syndrome, it has been reported in apprx 46 people to date
- it is usually not associated with severe medical complications
- follow-up should include an EEG, complete orthodontic evaluation, skeletal investigation (with particular regard to spine curvatures and limb asymmetry), hearing testing and ophthalmologic assessment
- if developmental and language delay is also noted, you might need to consider early intervention and speech therapy
As always, every person is different and unique but feel free to make any questions and share your experiences in the forum!
All the best
Gina0 -
hi janrose, my son was just diagnosed with this today. i would love to connect and exchange notes. let me know if you are up for it!
sincerely, karen0
Categories
- All Categories
- 15.2K Start here and say hello!
- 7.2K Coffee lounge
- 88 Games den
- 1.7K People power
- 121 Announcements and information
- 24.1K Talk about life
- 5.7K Everyday life
- 405 Current affairs
- 2.4K Families and carers
- 864 Education and skills
- 1.9K Work
- 523 Money and bills
- 3.6K Housing and independent living
- 1K Transport and travel
- 882 Relationships
- 255 Sex and intimacy
- 1.5K Mental health and wellbeing
- 2.4K Talk about your impairment
- 863 Rare, invisible, and undiagnosed conditions
- 922 Neurological impairments and pain
- 2.1K Cerebral Palsy Network
- 1.2K Autism and neurodiversity
- 39.2K Talk about your benefits
- 6K Employment and Support Allowance (ESA)
- 19.5K PIP, DLA, ADP and AA
- 8.1K Universal Credit (UC)
- 5.6K Benefits and income