If this is your first visit, check out the community guide. You will have to Join us or Sign in before you can post.
Want to give us your opinion? Complete our annual survey.
need direction to where i can get proper help

Hi for pass 3years my son has many health issues even before he was born I was told he had enlarge heart. He was born at 32 weeks was in special baby unit (nicu) for 3weeks. I was living in american and came back home to be with family when he was 3months between his health and his sister I need (MY MOMMYandpport)
well Here things we been going though for few years
He forgot how to feed weeks after birth
Diagnosed with sickle cell trait
Reflux
Protein allergy's
Blank epioside ( doc say it resolve but no diagnosis and still has them and witness by health worker) had a eeg done it was neg. But I was told they only help if the having a fit as they testing) so that was no help
Slow digestion. He had a test done forgot name of test) shows his stomach takes longer time.
Constipation
Excessive sweating when sleeping
Twitshing/jerking (worst when sleeping everynight)
Can't settle in sleep always moving
Pain like screams ( can last for hours can't settle him got wait it out)
Falls ,stumbles
Tell me his legs hurts
After walking about 10mins he is hurting and wants picked up
Tip toe when walking (after walking or running a bit)
Drags left leg with left foot turn in and bend at knee. (When being active for short period of time)
*Told by physo that he both feet are flat foot , left leg shorter then right and possible left hip dislocation waiting for xray appt)
Prefer soft food *that when he eats chewy or meats food he won't do tried every trick
Speech delay (waiting for speech therapy appt)
Drools really bad
Low vitamin d and calcium
Anemia
Does a weird thing with his tounge ( in between his top and bottom teeth)
Can't hear certain pitch (told by the audiologist) he goes for a 3rd test in 3months. also licks on metal
Was fully potty trained 6mths plus night and day and now back in dipers
Was walking up and down stairs now crawls or bumbs down refuse walking down on his own
Involving movement
Can any one relate to our situation or point me in the right direction as his doc has a habit of resolving things with out treating, diagnosis or explaining and how when he still doing then same stuff. Only reason I got hearing and other test done is because I near had a nervous break down the her office.

He forgot how to feed weeks after birth
Diagnosed with sickle cell trait
Reflux
Protein allergy's
Blank epioside ( doc say it resolve but no diagnosis and still has them and witness by health worker) had a eeg done it was neg. But I was told they only help if the having a fit as they testing) so that was no help
Slow digestion. He had a test done forgot name of test) shows his stomach takes longer time.
Constipation
Excessive sweating when sleeping
Twitshing/jerking (worst when sleeping everynight)
Can't settle in sleep always moving
Pain like screams ( can last for hours can't settle him got wait it out)
Falls ,stumbles
Tell me his legs hurts
After walking about 10mins he is hurting and wants picked up
Tip toe when walking (after walking or running a bit)
Drags left leg with left foot turn in and bend at knee. (When being active for short period of time)
*Told by physo that he both feet are flat foot , left leg shorter then right and possible left hip dislocation waiting for xray appt)
Prefer soft food *that when he eats chewy or meats food he won't do tried every trick
Speech delay (waiting for speech therapy appt)
Drools really bad
Low vitamin d and calcium
Anemia
Does a weird thing with his tounge ( in between his top and bottom teeth)
Can't hear certain pitch (told by the audiologist) he goes for a 3rd test in 3months. also licks on metal
Was fully potty trained 6mths plus night and day and now back in dipers
Was walking up and down stairs now crawls or bumbs down refuse walking down on his own
Involving movement
Can any one relate to our situation or point me in the right direction as his doc has a habit of resolving things with out treating, diagnosis or explaining and how when he still doing then same stuff. Only reason I got hearing and other test done is because I near had a nervous break down the her office.
Replies
You could give Scope or Contact a Family a ring, they may be able to give you more advice or put you in touch with local parent support schemes. There is lots of help around, it is just a case of finding it and finding the people that can give you information about local and national services and entitlements.