ageing with cerebral palsy

ruth1
ruth1 Community Member Posts: 44 Contributor
in Cerebral Palsy Network
Hi 

I am 26 years old and I have told that I could arthritis  as my blood test has back I have inflammation. I am waiting for next blood test appointment. 

Comments

  • Richard_Scope
    Richard_Scope Posts: 3,945 Cerebral Palsy Network
    Hi @ruth1
    Have you been experiencing more pain in your knees, and ankles?

    Arthritis is a common Post-Impairment Syndrome symptom for people like us living with cerebral palsy. But it is best to wait for your next blood test.
  • ruth1
    ruth1 Community Member Posts: 44 Contributor
    hi Richard 
    I do experience severe pain in both of my knees and my hips.
  • ruth1
    ruth1 Community Member Posts: 44 Contributor
    I also experience severe pain in my neck and lower back, shoulders, my hips, my knees and in my ankles too. which my doctor knows about it now.
  • ruth1
    ruth1 Community Member Posts: 44 Contributor

    I have recently diagnosed with Dystonia but I do not qualify for any medication but thankfully UCLH Cerebral Palsy Clinic is helping me.

  • Jimm_Alumni
    Jimm_Alumni Scope alumni Posts: 5,713 Championing

    Hey @ruth1, sorry to hear you don't qualify for any medication. It's good you are still getting help though, have the Cerebral Palsy Clinic given you any idea of what sort of help they can provide?

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