Help

Margaret
Member Posts: 3 Listener
Hi everyone. I wonder if anyone as the same problem as me. I have cerebral vasculitis which has left me having three strokes and epilepsy. My extended family have been so unsupportive especially my brothers. The problem is I look ok and they think I must be ok, they haven't come outright and said I am making it up, but I am sure that is what they think. I am so lost as I keep explaining it to them. I just don't know what to do anymore. Thank you for listening x
Comments
-
Hi @Margaret,
Thanks for sharing. Your comment about looking ok - so people think you're ok - reminded me of @LucyB's fantastic post last year about having to perform her disability: https://community.scope.org.uk/discussion/27541/guest-post-im-fed-up-of-having-to-perform-my-disability
It must be really hard for you that your brothers don't understand - I wish I had an easy answer to that one! I guess it's just really important to keep talking with them. Are there other people in your life who are able to give you the support you need?
Brightness
Categories
- 53.9K All Categories
- 10.6K Start here and say hello!
- 5K Coffee lounge
- 4K Disability rights and campaigning
- 1.5K Research and opportunities
- 154 Community updates
- 12.1K Talk about your situation
- 1.8K Children, parents, and families
- 792 Work and employment
- 588 Education
- 1.2K Housing, transport, and independent living
- 1K Aids, adaptations, and equipment
- 291 Dating, sex, and relationships
- 265 Exercise and accessible facilities
- 21.6K Talk about money
- 2.1K Benefits and financial support
- 4.4K Employment and Support Allowance (ESA)
- 12.5K PIP, DLA, and AA
- 2.6K Universal Credit (UC)
- 4.1K Talk about your impairment
- 1.3K Cerebral palsy
- 686 Chronic pain and pain management
- 704 Rare, invisible, and undiagnosed conditions
- 759 Autism and neurodiversity
- 937 Mental health and wellbeing
- 311 Sensory impairments