Not sure what to do next
Options
ShaunRobert1234
Community member Posts: 3 Listener
This discussion was created from comments split from: Did you acquire your impairment as an adult?.
Comments
-
Developed IPF as a Adult in 2007. Had lung transplant in 2014. Not a cure, many side effects of medication which I find hard to deal with. Had to give up work after managing to get back due to being off sick a lot. Pick up aii the bugs. Lost DLA, refused pip. Mental health not good, Struggle getting up stairs or carrying anything. Only real difference is I do not need Oxygen and can walk a little better, Also had Colitis from the age of 14 , Colon and large intestine taken out at 32, Now have leakage from back passage, Always need to know where there is a loo. Not even sure if I am registered disabled anymore since DLA . My kidneys are also failing along with a host of other problems. Not sure what to do next. In anger I have ODed on insulin once lucky for me I had used slow release and there was not a lot units in the file. right at that point I just picked up the first syringe and injected. Pressure I do not seem to be able to handle anymore and have been informed Pressure is the last thing a transplant patient needs.
-
Hi @ShaunRobert1234,
I've moved your comment to a new thread.
I really appreciate the offer to help with our new information product, but I think the best thing for you might be to give our helpline a call - 0808 800 3333 -to discuss the above.
-
Hi @ShaunRobert1234 I have colitis too and had my colon removed, when you say you have leakage I was just wondering, do you have an ostomy or an internal pouch?
Scope
Senior online community officer
Brightness
Categories
- All Categories
- 13K Start here and say hello!
- 6.6K Coffee lounge
- 104 Games lounge
- 416 Cost of living
- 4.3K Disability rights and campaigning
- 1.9K Research and opportunities
- 199 Community updates
- 9.3K Talk about your situation
- 2.1K Children, parents, and families
- 1.6K Work and employment
- 777 Education
- 1.7K Housing and independent living
- 1.4K Aids, adaptations, and equipment
- 615 Dating, sex, and relationships
- 363 Exercise and accessible facilities
- 737 Transport and travel
- 31.6K Talk about money
- 4.4K Benefits and financial support
- 5.2K Employment and Support Allowance (ESA)
- 17.1K PIP, DLA, and AA
- 4.9K Universal Credit (UC)
- 6.3K Talk about your impairment
- 1.8K Cerebral palsy
- 869 Chronic pain and pain management
- 180 Physical and neurological impairments
- 1.1K Autism and neurodiversity
- 1.2K Mental health and wellbeing
- 319 Sensory impairments
- 825 Rare, invisible, and undiagnosed conditions