I'm 26 years old with cerebral paulsy

m_chowdhury97
m_chowdhury97 Online Community Member Posts: 6 Connected
in Housing and independent living

I'm 26 years old with cerebral palsy and want to move out from my parents house but I struggle to do with daily tasks therefore I don't know how am I going to live on my own. I'm a university student and only have a part time job at university for like no more than 15 hours a month. I only receive PIP and got a motability car which I don't even drive- my parents drive it. They even manage my PIP money. Now, I'm thinking of moving out as I'm nearly finished with my degree and hopefully will begin to work soon. I need advice of moving out to a small flat and get someone to look after me.

Comments

  • Sandy_123
    Sandy_123 Scope Member Posts: 59,306 Championing

    @m_chowdhury97 hi and welcome to scope forum l

    Have you spoken to your parents about this and are they going to support you? Do you have carers that can help when you move. As you say you struggle with tasks you may need to get carers in place to assist you. You could put your name down on a council waiting list or look at private rent. Private rent is quite expensive and council rent may take awhile to be offered a place. Depending on your circumstances.

  • m_chowdhury97
    m_chowdhury97 Online Community Member Posts: 6 Connected
    https://forum.scope.org.uk/discussion/comment/882616#Comment_882616

    Hi

    My mum used to be my carer but I asked her to leave the role. The council gave me social support for 10 hours a week to go out with someone. But they said I'd need to be reassessed if I want to move out. I don't know how because I don't earn enough money for rents and would require everything accessible so I can live on my own.

    I don't want parents support as I'm an adult now.

  • Sandy_123
    Sandy_123 Scope Member Posts: 59,306 Championing

    Yes that's understandable housing benefit will help with rent or towards it and will be other benefits you could claim also.

    Might an idea to look into those.

  • Jimm_Scope
    Jimm_Scope Posts: 5,409 Scope Online Community Specialist

    Hi @m_chowdhury97! That's a big step and it's pretty amazing to want to do it! I wonder if you could take some immediate steps to help you prepare? Are you able to manage your own money right now? If so I wonder if you could ask your parents to let you manage your PIP money from now on?

    I'll think on it more, but I'll also ask my Cerebral Palsy Network colleague to see if they know of any specific support that is available

  • m_chowdhury97
    m_chowdhury97 Online Community Member Posts: 6 Connected
    https://forum.scope.org.uk/discussion/comment/882968#Comment_882968

    Hi. I'm also looking for what support would I exactly get when I start to work? For example, I can't drive or travel on my own and I might need someone to look after me while I'm working. I can't afford to pay the PA cost. My condition can flactuate so one day I can do many things other day I can't. And just by seeing me walking can make people think I don't have mobility issues.

  • Jimm_Scope
    Jimm_Scope Posts: 5,409 Scope Online Community Specialist

    There is the government's Access to Work scheme. However, you have to already be in the job, or knowingly starting a job in the next 12 weeks. When you finish university you can also see about Universal Credit and getting a Work Capability Assessment.

  • m_chowdhury97
    m_chowdhury97 Online Community Member Posts: 6 Connected
    https://forum.scope.org.uk/discussion/comment/882982#Comment_882982

    Hi

    I applied for universal credit but they rejected my application because I live with my parents and they earn. I'm 26 now

  • Kimmy87
    Kimmy87 Online Community Member Posts: 1,637 Trailblazing
    edited June 30
    https://forum.scope.org.uk/discussion/comment/883055#Comment_883055

    For Universal Credit you are counted as a separate household to your parents, so that won't be the reason your application was rejected. Being a student probably the reason, qualifying for UC when a student is a complex area.

    I'd recommend you try a local welfare rights agency for help and advice:

    https://advicelocal.uk/welfare-benefits

  • Jimm_Scope
    Jimm_Scope Posts: 5,409 Scope Online Community Specialist
    https://forum.scope.org.uk/discussion/comment/883055#Comment_883055

    When did you last apply for Universal Credit? As you mention you are a student, and students cannot usually claim Universal Credit, so that may have been the actual reason?

  • m_chowdhury97
    m_chowdhury97 Online Community Member Posts: 6 Connected

    Hi

    Yeah I applied few months ago but I'm still since September 2019. I need someone to advise me what other can I get.

    I also need someone to advise me to contact people who can adjust my home according to my disability needs. Since 2 3 years my condition changed a lot so I need some adjustments.

  • Kimmy87
    Kimmy87 Online Community Member Posts: 1,637 Trailblazing
    https://forum.scope.org.uk/discussion/comment/883133#Comment_883133

    Try the link I posted to find a local welfare rights organisation.

    They don't just deal with benefits but a whole range of things that people need help and advice for.

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