Hi, my name is Snowdog!
Options

Snowdog
Online Community Member Posts: 2 Listener
I'm already a regular direct debit donator to Scope and think it's an incredibly far reaching charity with all thats happening in Britain of late.
I have Primary Progressive Multiple Sclerosis and was diagnosed in 2009 aged 50. I am currently fighting the revised ESA form (on top of my PPMS and COPD) and I wish those in power recognised that any ONE of those is enough to put you into despair.
I have Primary Progressive Multiple Sclerosis and was diagnosed in 2009 aged 50. I am currently fighting the revised ESA form (on top of my PPMS and COPD) and I wish those in power recognised that any ONE of those is enough to put you into despair.
0
Comments
-
Hi @Snowdog welcome to the community and thanks so much for being a regular donator to Scope!
I hope you enjoy the community, take a look at Recent Discussions for all the latest posts and you can search all the categories here.
We have a How To guide for the online community here that might help you navigate around, if you have any questions, just ask away, we are a friendly group.0 -
Oh. I ended up getting it back to them late, even with the help of my MS team.
I haven't done anything like it for years, and I try to avoid anxiety because I know how seriously that triggers my cognitive MS. Having that under control recently I hadn't realised how much it had declined until I faced a form.
It made no sense to me at all !!! Even with help I struggled !!!
Annoyingly I have Primary Progressive Multiple Sclerosis and nearly all questions required an 'It varies' response. On the surface it suggested I'm fine but I'm really not, as my original ESA assessed me medium(care) and high(mobility) for a non- specific (wrong word) period.
I know I can't expect to improve, as it has no cure and is degenerative (in my case loss of faecal and urinary incontinence, drop foot, leg and hip pain have all added since my initial assessment) but there's no facility to clarify that and even MS specialists don't understand PPMS.
Ah, well, now I have no choice but await the worst and then try to appeal. I really do not need the uncertainty on top of all else but...
0 -
Hi @Snowdog as you say, when you have an impairment that fluctuates it is very difficult to get across your day to day needs on the forms.
Best of luck with your claim, if it isnt good news, there is lots of information here about mandatory reconsideration and appeal.0
Categories
- All Categories
- 15.2K Start here and say hello!
- 7.2K Coffee lounge
- 88 Games den
- 1.7K People power
- 121 Announcements and information
- 24.1K Talk about life
- 5.7K Everyday life
- 406 Current affairs
- 2.4K Families and carers
- 864 Education and skills
- 1.9K Work
- 523 Money and bills
- 3.6K Housing and independent living
- 1K Transport and travel
- 882 Relationships
- 255 Sex and intimacy
- 1.5K Mental health and wellbeing
- 2.4K Talk about your impairment
- 863 Rare, invisible, and undiagnosed conditions
- 922 Neurological impairments and pain
- 2.1K Cerebral Palsy Network
- 1.2K Autism and neurodiversity
- 39.2K Talk about your benefits
- 6K Employment and Support Allowance (ESA)
- 19.5K PIP, DLA, ADP and AA
- 8.1K Universal Credit (UC)
- 5.6K Benefits and income