Cluttering pragmatic disorder Aspergers anxiety differential/comorbidity and family issues — Scope | Disability forum

Cluttering pragmatic disorder Aspergers anxiety differential/comorbidity and family issues

Kathy_Bramley
Kathy_Bramley Member Posts: 132 Pioneering
edited October 13 in Sensory impairments
Hi. I feel like any kind of assessment and/or therapy is potentially opening a can of worms now as it's been our experience at times, but my communication difficulties can be quite frustrating, especially mixed with indications of some ability, and I think it impacts on my ability to parent children with their own mix of disability and ability and emotional hang ups. I doubt this is a consultation, and editing and collating something like that takes a lot of effort and I lose the thread of my sentences and become unclear often so I don't know whether to go into a full history, but I have my reasons for thinking about all the diagnoses/areas/concerns in the subject heading. I don't know what to do about next steps. Family therapy might be as effective as individual assessment but then maybe not, some combined expertise might be best but I imagine that's quite specialist and likely to be private and/or charitable. I would need to convince my defensive state hubby of anything and being involved or expensive seems like a tricky sell. The likes of Dyscovery and BIBIC I have mixed feelings about. At one stage some years ago I was in email contact with Peter Kissagliss about cluttering and whether it could be made worse by anxiety or just caused by it. I'm kind of obsessively interested in difference, politically and practically and emotionally stirring the pot so I am patchily researched and understand neurodiversity meta spectrum as well as specifity of individual syndrome and criteria, and some of the complexity, sharp lines and overlap that are to be outlined behind that pertinently, often. My mum stutters, I've been assessed for SpLDs in the past, high IQ with massive difference between verbal and non verbal, and the ed psych never got back to me to say why it wasn't dyspraxia despite looking like it ticked the boxes at the time. I think she was thinking about another diagnoses maybe, these days. It was a long time ago and she's not in service, retired now I think. I don't know how important her notes would be. She saw me for other things, behaviour issues and underachieving in secondary. I was assessed for developmental delay and hearing issues and so on at primary school, without going any further or seeming conclusive either way. In normal range, but I had difficulties, academic, social, problem solving/practical physical and emotional such that I wasn't. Still the case, though some aspects improved or changed. I stammered early on, but now pause, talk fast, tangentially or circumstantially and linking words, and context, are a problem often coming in half cocked or with hanging and derailed sentences, but I am not necessarily the worst in my family. I'd love to understand the slight differences in the way we do things in a way that's positive though I don't know if that's possible, I need to manage my expectations and manage myself. Limbo isn't helping but it's difficult to see what else I can do. I sometimes find speech and language reporting to be hard to handle, medically pejorative and harsh sounding. Maybe that's just me, but that's rather the point. Why is dyslexia hard to spell; why is assessment so hard to swallow? If you can get it.
Lucky unlucky
Guess my diagnosis,
It may help, but
Don't guess my kids's

Comments

  • Kathy_Bramley
    Kathy_Bramley Member Posts: 132 Pioneering
    I guess my question is can anybody else make any sense of that and tell me where to go in a way to feel confident about.

    But then I have slightly demand avoidant and strong willed tendencies so don't dedicate your life to me or anything
    Lucky unlucky
    Guess my diagnosis,
    It may help, but
    Don't guess my kids's
  • Kathy_Bramley
    Kathy_Bramley Member Posts: 132 Pioneering
    Bibic seems like an idea but I don't know, and can they deal with all four of us at once with or without being astronomical in price, or is there specialist Relate or NHS services local to Bradford that are better options!? We've been involved in our CDC psychology services. Speech therapy seems like a specific thing. I tend to be pedantic in a different way to my son and husband and daughter and we frustrate each other,standard salt report advice isn't so easy to apply being a type of skill we already struggle with. I think extra help could be good but I am unsure whether it really exists?
    Lucky unlucky
    Guess my diagnosis,
    It may help, but
    Don't guess my kids's
  • Kathy_Bramley
    Kathy_Bramley Member Posts: 132 Pioneering
    (And I get stuck in a loop regarding technical details, knowing what buttons to press where and why in the system. GPs aren't experts,neither are caf and social support teams we've had together in the past and the motivationand organisation to dive deeper and organise extra appointments isn't always there!)
    Lucky unlucky
    Guess my diagnosis,
    It may help, but
    Don't guess my kids's
  • Kathy_Bramley
    Kathy_Bramley Member Posts: 132 Pioneering
    Sorry for very long post. Thanks for reading. 
    Lucky unlucky
    Guess my diagnosis,
    It may help, but
    Don't guess my kids's
  • Kathy_Bramley
    Kathy_Bramley Member Posts: 132 Pioneering
    @LondonSpeechTherapy Happy Easter. 
    Lucky unlucky
    Guess my diagnosis,
    It may help, but
    Don't guess my kids's

Brightness