CHANGE OF CIRCUMSTANCES

Sorry if this just sounds like I’m repeating myself. Last time I posted (back in March I think) I talked about going to appeal as opposed to a change of circumstances. However, again, I ended up back in hospital and have, again, been quite unwell for the last few months. Although there is some improvement, I still have some way to go.
Because of this, I have now decided against going to appeal as I have neither the physical energy or the mental capacity to go through the process. I feel the only thing I can do now is to either give up and accept their decision (which on principal I can’t) or reapply under a change of circumstances.
I know very little about what this entails and will have to look for information on this. What I was wondering though, as I haven’t seen any info on it, is if your change of circumstances (because of worsened condition) is refused can you apply for an MR in the same way as a first application.
I would be grateful for any advice as, at the minute, I am struggling to search for and find relevant information.
Many Thanks!
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Good to hear your health has improved a little after being in hospital.
As you already have an award you can't reapply. It would just be known as a change of circumstances.
When you ring to report changes they will send you a form to fill in and return with all your information and any additional supporting evidence. You will likely need another assessment because most people have them.
Once a decision is made your award could either remain the same, be increased, decreased or stopped completely.
Once the decision is made if you're not happy you can request the MR like you did that last time. After that, you can proceed to Tribunal.
Please note, a worsening of condition doesn't automatically entitle you to more points for a higher award.
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Sorry I’m late replying Poppy, but I’ve still been unwell for some time. The time spent ‘mulling’ over what went wrong in my Review and MR has been useful. One helpful thing I found, have been some useful online videos, which demonstrated the way to complete your form in order to be more successful in your application. The great benefit of a video was that I wasn’t straining my eyes and becoming really tired by reading through advice.
The main thing I learnt was that, although I wrote a detailed account of my problems and how they impacted on my day to day living, there was too much information. I also feel I put too much detail in my examples of how they impacted on my life. The Decision maker was probably too exhausted and gave up reading!So now, I feel ready to request a change of circumstances, where my condition has deteriorated quite significantly, and will answer in ‘bullet point’ format. Hopefully this will be keeping it straight to the point and make it easier for the DM to come to a decision. I hope this makes sense.
One of my main concerns is that if I had a ‘good day’ I would easily be able to walk 50m or a lot more. However, I spend at least 4 or 5 days a week housebound, because I am in so much pain and exhausted, that I don’t even have the physical energy to get dressed, never mind go out of the house I’m not sure if this would count if I’m showing such a difference between a ‘good’ and ‘bad’ (which is really normal for me) day. Sorry for the long message but I just sometimes think it’s hard to know what to put on the form. Thanks for listening!
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Sorry, but it’s just me again (another example of my constant ‘brain fog’). Yes, I do realise that I could lose this completely but on my last visit to the doctor he said he would be happy to write down exactly how my conditions impacted on my daily living. I’m hoping that this supporting evidence would go some way to maintain my current award! Thanks!
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Hi @scape1960.
I'm sorry you've been unwell. That's great that you found some advice that's worked well for you 😊 It's so hard to know how much/how little to write on the form. I think bullet points are a great idea, that's what I did for mine too, mainly because it was easier for me to read! I hope you get the decision you deserve. Keep us posted.
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Definitely will, but I haven’t requested forms yet so may be a while. I’ve read that the forms you have to complete have now changed. I’ve tried looking online so I know what to expect when they arrive but I can’t find any examples anywhere. 🤷♀️ Are they deliberately keeping them secret so you can’t get a head start! 🤨 Thanks for your support!
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As I don't know what video content you've been watching, I can't comment on how good they were. May I point out that PIP is about how you are the majority of days, & if your condition fluctuates then describe all of your days (I'd avoid using words like 'good' or 'bad,' rather most days you're housebound due to pain, for example).
It's possible that before you didn't keep things absolutely relevant to the PIP descriptors. Giving a couple of detailed examples as to the difficulty you face for each applicable descriptor would be fine, i.e. when did this happen, where, what happened, did anyone see this, & what were the consequences (if any) such as pain, fatigue, etc.
Also bear in mind whether you can do an activity 'reliably' or not, which is very important. This means can you do it safely, to an acceptable standard, repeat it as often as would normally be expected, or does it take you more than twice as long as a person without your disabilities?
It would actually be faster to proceed with a tribunal, which would just be by phone or video call. The success rate of these is way better than those with a MR.
With a 'Change of Circumstances,' as poppy mentioned, you'll have to go through the whole process again; another claim form, assessment, etc.
Please do look again at the PIP descriptors before deciding on a 'Change of circumstances,' as your current award could be adversely affected, as poppy also highlighted. Do you think you could potentially gain sufficient points to increase your award?
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I'd also like to point out that whilst it's really good that you have the support of your GP, it has to be said that a letter from them isn't the best evidence you could send. This is because your GP doesn't spend anytime with you to know how you manage the activities in the PIP descriptors.
If they know those details then it becomes hearsay, which isn't great.
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Thanks to both of you! I totally understand what you are saying and I have thought long and hard about this for most of this year. Poppy, I know what you are saying about the GP and can appreciate that this is likely true in the majority of cases. However, for at least the last 18 months I have had significant contact with my GP because of my complex medical situation.
I have no immune system and this has impacted on many areas of my body triggering other quite serious medical conditions which makes my medical condition and treatment is quite complex. Because of this I am reasonably confident his letter will show considerable knowledge and awareness of both my medical conditions and their impact on my daily living.
Chiarieds, I also agree that the obvious route would be to go to appeal, but the length of time this takes is supposedly taking around 12 months, but to be honest my main reason is that at this time my mental and physical health aren’t up to this task. I also think that if worse comes to worst, I can go to appeal if the first two steps are not successful.
Whatever route I take I know there are going to be some ‘what ifs’, however at this moment in time (even though I know it’s probably the not the correct decision) I feel I have to take the route that will (hopefully) give me the least stress. 🤞
Thanks for your support.
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Sorry, me again, does anyone know where I can see the new forms for applying for PIP? Thanks!
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I respect your decision; we've all got to do what's right for us at the time. Your GP sounds very good, but whilst he understands your complex medical condition(s), & it's likely impact on you, he doesn't actually see you bathe, go to the toilet, dress, cook, etc., so in some aspects it will just be what you may have told him, so hearsay, as poppy mentioned. Remember PIP is about your 'functional' ability, & not any diagnoses. However, of course I wish you well, & hope you kindly keep us all updated.
As far as the forms are concerned, as far as I'm aware, you'll either receive the PIP2 form (the one you received when first applying for PIP), or the AR1 'review' form, which you can see here:
With the 2nd much shorter form, you should still give as much relevant detail as with your initial claim form. So, for those activities/descriptors where there may have been no change, you still should additionally say where you have difficulty, & exactly why, rather than just saying 'no change.' So, in essence the detail needed for either form is the same. With the review form, you can also add extra pages at the end giving your name & National Insurance number on any such pages where you need to add a continuation of your reply.
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You are not applying for PIP because you already have an award. It's a change of circumstances that you need to report, if you choose that route.
I agree with chaireds, your GP maybe very supportive but they do not see you manage the activities based on the PIP descriptors. For this reason a letter from a GP carries very little weight.
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Apologies for late reply. Thanks very much for both of your comments, I will certainly take them on board. I do understand the limitations of a GP’s support but because I have had my medical conditions for many years and are long term, I have very little written evidence now. I do however, have my discharge letters from being in hospital many times over the last two years, do you think it would be worth sending those in as well?
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One more thing, when they ask if and what changes there are are for each descriptor, for where there is no change do I just say that or do I rewrite what I had originally wrote? Thanks!
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If the evidence is relevant then send it. However, if you use the same evidence you recently used for your current claim then you risk the same thing happening again.
I still think you are missing the point we are trying to make with your GP but it's entirely your decision what you do.
I've just looked back at your previous threads can I check please whether you're under state pension age or over? If you're over state pension age and you don't currently receive any mobility, if you report changes you will not be able to claim any mobility part due to your age.
If you currently have standard mobility then you will not be able to increase your award.
If you previously had the mobility part then you can challenge your current decision by requesting the Tribunal and then you will be able to be awarded mobility.
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I do understand what you mean about the GP letter, I just feel that, while it may not help me, I’m assuming it won’t bring me any harm. I do get concerned about having evidence to give them, but apart from hospital discharge letters, there’s not much to show because my illnesses are ongoing and there’s no real productive evidence. I’m not pension age, I won’t receive pension until I’m 67. Can I just clarify your sentence,
‘If you currently have standard mobility then you will not be able to increase your award.’
Does this apply now or just if I was pension age?
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State pension age is 66 and not 67. Therefore it applies once you reach age 66. May I ask why you’re not receiving your state pension until you’re 67? I’m assuming you deferred it?
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poppy said,
‘If you currently have standard mobility then you will not be able to increase your award.’
This does refer to those that have the standard rate for the mobility component once past State pension age.
I wouldn't worry about having little medical evidence, tho hospital discharge letters, if relevant, would be fine to use. Just make sure there aren't any contradictions in any evidence you intend sending, & remember your diagnoses will not be in dispute.
Where you feel there's been no change, don't just say that without describing the difficulties you still have, as I mentioned above.
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I also have to wait until I'm 67 for my pension (from 60 to 67 just like that!)
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scape, I agree that your GP probably knows you better than anyone else. Mine does.
Statement of Fitness for Work (Med3/fit note) says this -
Because of the following conditions… I advise you that you are not fit for work. Comments, including functional effects of your condition(s):
I will not need to assess your fitness for work again at the end of this period.
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