Medical Records

Wibbles
Wibbles Online Community Member Posts: 2,271 Championing
edited August 2024 in Coffee lounge

What is the primary purpose of medical records - for the patient to be able to get updates of their health needs or for the health professionals use ?

https://306medicalcentre.nhs.uk/health-records-information/

Doesn't even mention that Patients even be allowed to view their own records !

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Comments

  • Wibbles
    Wibbles Online Community Member Posts: 2,271 Championing

    I am aware of that - but in my case.

    I have access to all of my latest records (from the last 40 years) but in the middle of this time, I lived elsewhere, and these missing years are lacking in detail of records

    They are there but not in detail..…

    And more recently I find that my records are just things like

    19th August

    Letter received

    17th August

    Letter received

    This I would like to know who the letters are from and what they say...

  • Cantilip
    Cantilip Online Community Member Posts: 623 Empowering

    Think maybe need to define 'medical records'. These as in the medical records library of every hospital are a folder which until recently when at least some data came onto the hospital's computer network contained

    • the handwritten notes made by the doctor at each consultation at that hospital
    • paper copies of the results of every investigation you have had at that hospital
    • a copy of every letter written about you by anyone at that hospital
    • every letter or result received by the hospital about you
    • a copy of every prescription issued to you by that hospital

    Whatever you are looking at saying 'letter received' is what? Your GP's summary? Your GP will have an actual file on you which contains those letters and that is your actual medical record.

    Seeing your medical records | The Patients Association (patients-association.org.uk) Anyone can request their medical records. Just ask. They possibly won't like it, not for any sinister reason but because they're short-staffed and it may mean someone has to spend a long time at the photocopier or the printer, but you have a legal right and they have to do it.

    Getting copies of medical records

    A request for information from medical records has to be made with the organisation that holds your records – the data controller. For example, your GP practice, optician or dentist.

    For hospital records, contact the records manager or patient services manager at the relevant hospital trust. You can find a list of hospital trusts and their contact details here.

    NHS England » Getting copies of medical records

  • Wibbles
    Wibbles Online Community Member Posts: 2,271 Championing

    Thanks but where will the records of an accident that I had 34 years ago be ?

    Will they have transferred to my "new" GP or will they be with my original GP surgery / hospital ?

  • Cantilip
    Cantilip Online Community Member Posts: 623 Empowering

    What should happen is your GP records move with you: whenever someone changes GP, everything is automatically sent to the new practice. A record of the accident should therefore be with both whomever is your current GP, and with whichever hospital treated you then.

    The GP should have received everything necessary for your continuing care, but that is not necessarily everything. For instance the hospital might have written something like "Patient X attended A+E on…A CT scan was performed which showed….[whatever it showed about the part of you affected by the accident and which needed treating]" but the GP wouldn't necessarily have got a copy of the full CT report.

    The following are factors re hospital records:

    There's been a lot of amalgamation and indeed closing down of hospitals and with that things get lost.

    Hospitals archive the records of those who are no longer current patients - and things get lost.

    If I were you, first thing to do is check the hospital you were treated in 34 years ago still exists exactly as it was then. When you're sure where your records should be, contact medical records there and say exactly what you're looking for because different things are filed in different sections of the folder, e.g. you want the report of a scan, the report of surgery, the report of the doctor who saw you first, your blood results on admission, whatever.

  • Wibbles
    Wibbles Online Community Member Posts: 2,271 Championing

    I am not really after blood tests etc

    I.am trying to find out what happened to me, which departments I was in..dates etc

  • Wibbles
    Wibbles Online Community Member Posts: 2,271 Championing
    edited August 2024

    The hospital was QA Portsmouth so it does still exist

    I was in because of a drunken fall.

    I fractured my skull, was read the last rights, in a coma, "recovered '" went home and was back at work 2 weeks later!!

    I am trying to get that confirmed

    but my GP records simply say "

    Coded entry

    Skull base fracture (XE1kQ) (New Episode)

    Coded entry

    Had a fit (XE0rw) (New Episode)

  • Wibbles
    Wibbles Online Community Member Posts: 2,271 Championing
    edited August 2024

    Maybe my GP has the records and just has not yet added them to my record

    It's only been 25 years

  • Wibbles
    Wibbles Online Community Member Posts: 2,271 Championing

  • Wibbles
    Wibbles Online Community Member Posts: 2,271 Championing

  • Cantilip
    Cantilip Online Community Member Posts: 623 Empowering

    Any admission is followed by a discharge summary narrating what happened - contact the hospital.

    I'd also suggest dig. The GP practice didn't learn that by thought transference and it's extremely unlikely they learned it by phone. They should have received a copy of above-mentioned discharge summary and/or other paperwork. Ask where they file old correspondence and so on. I know staff turnover is an acute problem and anyone currently at your practice might only have been there 6 months, so it might turn into an exercise in archaeology, but they should know what has happened to all medical information that has passed through their hands. Perhaps in the basement are rather tatty cardboard boxes….

  • Wibbles
    Wibbles Online Community Member Posts: 2,271 Championing
    edited August 2024

    So basically they never should throw any records away?

    They are "somewhere" ?

  • vikingqueen
    vikingqueen Scope Member Posts: 1,721 Championing

    @Wibbles wouldn't it just be simpler to email the practice manager!!

  • Wibbles
    Wibbles Online Community Member Posts: 2,271 Championing

    I have done and received a vague reply -

    "We are only able to add clinic letters that have been sent to us to your medical record.
    We have given full access to your medical records so you should be able to see the same as we can see.
    If you have queries with regards to the NHS app they have online help which may answer your queries."

    To start with - that is clearly not true - when I cannot see documents - sent by the hospital - I see 100's of "CODED ENTRY XaKqD" which obviously looks like a hidden document

  • Wibbles
    Wibbles Online Community Member Posts: 2,271 Championing

    I pushed a little harder and……..………success !!

    "Medical records are not disposed until years after a patient passes away.

    You are 100% correct with the past medical history being stowed away in paper form. I will get your paper notes out and have a look for any correspondence I can find.

    Where possible I will get them scanned on so you are able to view them. Sometimes the documents are just impossible to scan due to poor quality copies etc but I will do my best.

    I hope this helps with your queries. I will be in touch when I have processed your paper records. "

  • Cantilip
    Cantilip Online Community Member Posts: 623 Empowering

    So basically they never should throw any records away?

    They are "somewhere" ?

    The good news is yes. The bad news is in theory. Information governance, data protection, confidentiality mean no medical information should ever ever ever end up in the waste paper basket. Even just skimming this document will tell you the matter is taken hugely seriously and quite rightly. You do not want the details of a hernia operation fluttering over the local tip or of course more sensitive things like STDs or MH.

    NHSE Records Management CoP 2023 (england.nhs.uk)

    The British Medical Association says as follows:

    Minimum length of retention of GP records

    Nation

    Retention period

    England and Wales

    Retain for 10 years after death.

    For Electronic Patient Record Systems:

    Where the system has the capacity to destroy records in line with the retention schedule, and where a metadata stub can remain, demonstrating the destruction, then the Code should be followed in the same way for digital as well as paper records with a log kept of destruction. If the EPR does not have this capacity, then once records reach the end of their retention period, they should be made inaccessible to system users upon decommissioning. The system (along with the audit trails) should be retained for the retention period of the last entry related to the schedule.

    The shredder has been invented. Who's to know? I'm not up to date with pollution legislation - are bonfires in the garden now illegal? Let us say it would be a little naive to think that every single piece of medical information is preserved as though it were gold - but it should be.

  • egister
    egister Posts: 586 Empowering

    https://en.wikipedia.org/wiki/Read_code
    https://digital.nhs.uk/services/terminology-and-classifications/read-codes

  • Wibbles
    Wibbles Online Community Member Posts: 2,271 Championing
    edited August 2024

    That says 10 years - I have seen others quote 10 years after death - so I really have no idea

    All I know is that my records are sitting in a box file at my GP's and a kind admin lady has offered to sort through them and upload them to my medical record - so I can view them on-line…

  • Cantilip
    Cantilip Online Community Member Posts: 623 Empowering

    Excellent outcome, great! touch wood everything you could possibly want is there.

  • Wibbles
    Wibbles Online Community Member Posts: 2,271 Championing

    I have just made a Subject to Access request on myself - to obtain more records from the hospital that I was originally transferred to (Southampton Neurological unit)

  • Wibbles
    Wibbles Online Community Member Posts: 2,271 Championing

    I am now convinced that some of my medical records are being hidden from me

    Why - despite asking several times to be able to view EVERYTHING - has more not been made available to me ?

    https://www.hwetraininghub.org.uk/storage/Accelerating-access-to-GP-records---FAQs.pdf

    Tells me that they MUST let me see everything - unless there's a chance that it could harm me knowing that certain events happened on certain days - over 30 years ago and that in the last 12 months, I have had a cancer scare, that turned out to be a spinal problem etc etc etc