Any experience with trihexyphenidyl?
Options

Anglogirl
Online Community Member Posts: 1 Connected
Hello, we're trying out trihexyphenidyl for our daughter who has quadriplegic dystonic cerebral palsy and I was wondering if anyone had any experiences with this medication, in particular the side effects (positive and negative) that came with using it? Thank you very much, in advance!
0
Comments
-
Hi @Anglogirl
Welcome to the community! I hope you will find others here who have some experience or information to share.
How old is your daughter? How long has she been on the medication?
Do look around the categories and jump in on any posts that are of interest to you!
Sam0 -
Hi there
Have you checked out the Dystonia Society website:
http://http//www.dystonia.org.uk/index.php/forum/9-treatments/1802-trihexyphenidyl?start=6
Another useful place to look is a Facebook page dedicated to people who have cp and parents and carers of children with cp. It may be worth joining and posting this question on there as well.
https://www.facebook.com/groups/cerebralpalsyuk/
At Scope we have local Information and Advice Workers who have a specialist knowledge in cp and these can be contacted via the Scope helpline if this would be helpful.
Hope this helps
Jackie
1 -
Hi this was on of the many medications I tried. The dosage was increased gradually. I received no benefit even on a high dosage and began to feel unwell so neurologist stopped it and I moved on to legacies.0
Categories
- All Categories
- 15.2K Start here and say hello!
- 7.2K Coffee lounge
- 87 Games den
- 1.7K People power
- 118 Announcements and information
- 24K Talk about life
- 5.7K Everyday life
- 393 Current affairs
- 2.4K Families and carers
- 863 Education and skills
- 1.9K Work
- 520 Money and bills
- 3.6K Housing and independent living
- 1K Transport and travel
- 879 Relationships
- 255 Sex and intimacy
- 1.5K Mental health and wellbeing
- 2.4K Talk about your impairment
- 863 Rare, invisible, and undiagnosed conditions
- 921 Neurological impairments and pain
- 2.1K Cerebral Palsy Network
- 1.2K Autism and neurodiversity
- 39.1K Talk about your benefits
- 5.9K Employment and Support Allowance (ESA)
- 19.5K PIP, DLA, ADP and AA
- 8.1K Universal Credit (UC)
- 5.6K Benefits and income