Brain Injury — Scope | Disability forum
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Brain Injury

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Hales92
Hales92 Community member Posts: 2 Listener
edited October 2021 in Rare, invisible, and undiagnosed conditions
Who's out there with a brain injury?
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  • Geoark
    Geoark Community member Posts: 1,463 Disability Gamechanger
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    Hello @Hales92 and welcome to the community.

    Sorry I don't have brain injury, but wanted to welcome you.

    As an individual I stood alone.
    As a member of a group I did things.
    As part of a community I helped to create change!

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  • Hales92
    Hales92 Community member Posts: 2 Listener
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    Aww thankyou :)
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  • Sam_Alumni
    Sam_Alumni Scope alumni Posts: 7,671 Disability Gamechanger
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    Hi @Hales92 welcome to the community - are you aware of Headway? Do you want to tell us a bit more about yourself?
    Scope
    Senior online community officer
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  • steve51
    steve51 Community member Posts: 7,153 Disability Gamechanger
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    Hi @Hales92 welcome to the community, l'm a newbie here & I suffered a Brain Injury in 1998 on a holiday in Spain. Since then I have had more ups & downs than a rollercoaster. I would be very happy in helping you in anyway that I can???
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  • gjt1971
    gjt1971 Community member Posts: 5 Listener
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    I have epilepsy and 2 abi's, I can offer some advice if I can as a patient who has suffered like most and getting very much better but the process is an ongoing thing and everyday is a challenge
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  • gjt1971
    gjt1971 Community member Posts: 5 Listener
    edited August 2017
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    In addition to my last comment, the very first step to recovery  
    in my opinion to this and in fact any long term disability is ACCEPTANCE.
    If you are in the lucky position to be able to crack this one, then your on to a winner.



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  • Brendacastle
    Brendacastle Community member Posts: 1 Listener
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    I had a stroke and now paralysed down left sidemy epilepsy also returned during stroke am on medication again for them x
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  • louise321
    louise321 Scope Member Posts: 58 Courageous
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    anyone heard of Adynimia after a brain injury. Makes life so difficult 
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  • woodbine
    woodbine Community member Posts: 11,618 Disability Gamechanger
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    I have had several strokes and for 26 years epilepsy, my brain damage has in recent months badly effected my eye sight as my eyes and brain don't work together as they should.
    2024 The year of the general election...the time for change is coming 💡

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  • Wibbles
    Wibbles Community member Posts: 1,588 Pioneering
    edited March 27
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    I had a brain injury (basal ganglia damaged) - in 1990 - I was diagnosed with Parkinsonism, 3 years later and since then, I have lost the use of my legs (I am immobile) and my arms are now starting to give up (I have a form of Rotator cuff on both shoulders - which is extremely painful.
    I was helped by Headway some 25 years ago - but now I am left to my own devices (with my wife).
    I have a metal knee (part replacement in 2016) and I suffer  from undiagnosed diahhorea/constipation - finally - I have a "lump" in my lower abdomen which I am trying to get diagnosed now - but have been refused an MRI - but keep on being offered a CT scan - which does not even penetrate to the depth of the bowels !!
    You name it - I've had it - from DVT to hyperextended knee joints
    I worked full time until 2009 and part time until 2020 - I am now 60 !
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