Brain Injury

Hales92
Hales92 Online Community Member Posts: 2 Listener
edited October 2021 in Rare, invisible, and undiagnosed conditions
Who's out there with a brain injury?

Comments

  • Geoark
    Geoark Online Community Member Posts: 1,464 Championing
    Hello @Hales92 and welcome to the community.

    Sorry I don't have brain injury, but wanted to welcome you.
  • Hales92
    Hales92 Online Community Member Posts: 2 Listener
    Aww thankyou :)
  • Sam_Alumni
    Sam_Alumni Scope alumni Posts: 7,602 Championing
    Hi @Hales92 welcome to the community - are you aware of Headway? Do you want to tell us a bit more about yourself?
  • steve51
    steve51 Online Community Member Posts: 7,121 Championing
    Hi @Hales92 welcome to the community, l'm a newbie here & I suffered a Brain Injury in 1998 on a holiday in Spain. Since then I have had more ups & downs than a rollercoaster. I would be very happy in helping you in anyway that I can???
  • gjt1971
    gjt1971 Online Community Member Posts: 5 Listener
    I have epilepsy and 2 abi's, I can offer some advice if I can as a patient who has suffered like most and getting very much better but the process is an ongoing thing and everyday is a challenge
  • gjt1971
    gjt1971 Online Community Member Posts: 5 Listener
    edited August 2017
    In addition to my last comment, the very first step to recovery  
    in my opinion to this and in fact any long term disability is ACCEPTANCE.
    If you are in the lucky position to be able to crack this one, then your on to a winner.



  • Brendacastle
    Brendacastle Online Community Member Posts: 1 Listener
    I had a stroke and now paralysed down left sidemy epilepsy also returned during stroke am on medication again for them x
  • louise321
    louise321 Scope Member Posts: 58 Contributor
    anyone heard of Adynimia after a brain injury. Makes life so difficult 
  • Wibbles
    Wibbles Online Community Member Posts: 2,270 Championing
    edited March 2024
    I had a brain injury (basal ganglia damaged) - in 1990 - I was diagnosed with Parkinsonism, 3 years later and since then, I have lost the use of my legs (I am immobile) and my arms are now starting to give up (I have a form of Rotator cuff on both shoulders - which is extremely painful.
    I was helped by Headway some 25 years ago - but now I am left to my own devices (with my wife).
    I have a metal knee (part replacement in 2016) and I suffer  from undiagnosed diahhorea/constipation - finally - I have a "lump" in my lower abdomen which I am trying to get diagnosed now - but have been refused an MRI - but keep on being offered a CT scan - which does not even penetrate to the depth of the bowels !!
    You name it - I've had it - from DVT to hyperextended knee joints
    I worked full time until 2009 and part time until 2020 - I am now 60 !

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