Diagnosed with HSP7. Looking for stories and information.

Irishguy
Irishguy Online Community Member Posts: 6 Listener
edited March 12 in Talk about your impairment

Hi everyone, Got diagnosed with HSP7 last October 2024. I'm 41 years old. Recently married with 2 young kids. Living over in Ireland. Taking 5mg Baclofen three times a day. Anyone else in a similar situation? Don't really know what's in my future and would love to hear some stories/information.

Comments

  • luvpink
    luvpink Online Community Member Posts: 1,996 Championing
    https://forum.scope.org.uk/discussion/130949/hsp

    Hi and a very warm welcome to the community.

    I have no idea what HSP7 is, sorry.

  • Irishguy
    Irishguy Online Community Member Posts: 6 Listener

    Oh sorry, Hereditary Spastic Paraplegia 7 😂

  • luvpink
    luvpink Online Community Member Posts: 1,996 Championing
    https://forum.scope.org.uk/discussion/comment/995414#Comment_995414

    no worries.

    Are you Irish yourself?

  • Irishguy
    Irishguy Online Community Member Posts: 6 Listener

    I sure am! Just reaching out to see if anyone's in the same boat. Looking on Google just scares me 😂

  • Albus_Scope
    Albus_Scope Posts: 9,650 Scope Online Community Coordinator

    Hey there @Irishguy A big welcome to the community and an extra big congratulations on the recent marriage. 😁

    I'm afraid I don't know a great deal about HSP7, but hopefully if I move your discussion, more people in the know will see and hopefully offer some top advice. I hope that's OK?

  • Irishguy
    Irishguy Online Community Member Posts: 6 Listener

    You're the boss! 😂

  • Albus_Scope
    Albus_Scope Posts: 9,650 Scope Online Community Coordinator

    I'll be back in a minute, I'm just showing this to my boss. 😆

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