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Caring for a son with paranoid schizophrenia while struggling with my own mental health
Hi everyone,i felt i must join a forum like this as i found it was full of people experiencing the same struggles and problems as myself.I find it extremely difficult to know where to start but it all begins with my son who has paranoid schizophrenia but has tried to kill me a few times and has physically attacked me…
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Disability Price Tag - Changing from DLA to PIP at 16 - For Parents and Carers
As we're focusing on the disability price tag of raising a disabled child this week, this post talks about the transition from Disability Living Allowance (DLA) to Personal Independence Payment (PIP). I know this change can be quite overwhelming for many parents so I've created this post to hopefully make the process a…
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Are You a Premature/Pre-term, NICU Baby?
FROM NICU TO NOW YOUNG PEOPLE’S VOICE IN RESEARCH Were you in the NICU as a baby? We’d love to hear your story! The Neonatal Medicine Group at Imperial College London is looking to set up a group for young people (aged 17-24) to help shape neonatal research. Why join? Inform neonatal research Share your thoughts and…
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How to Achieve Optimum Quality of Life for People Living with Dysphagia
This nutrition-themed blog has been written by Sophia Cornelius, Development Dietitian for Wiltshire Farm Foods, about improving life for people living with dysphagia. An alarming 51% of people living with swallowing difficulties – also known as dysphagia – are at risk of malnutrition1. The physical and psychological…
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Ex is witholding DLA award letter and child is missing out on support
Hi! My ex has been witholding my childs DLA award letter for some reason but it’s seriously impacting the support she receives. We have 50/50 parental responsibility. I have rung the DWP 6-7 times just asking for a copy of the award letter. They will not share it with me as i am not the appointee. Im told to get a court…
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International Women's Day - Celebrating Disabled Mothers and Mothers of Disabled Children
Part 2 - Navigating Motherhood With A Disability with Sarah Part 3 - Challenging Attitudes Towards Mothers of Disabled Children with Jenna It is International Womens Day this Saturday and so in the leadup to that, this weeks focus is going to be on celebrating disabled mothers and mothers of disabled children. Motherhood…
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Parent Survey - Talking and Thinking About Disability in Education
This sounds like a great opportunity for parents and carers to get involved in😀
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International Womens Day - Navigating Motherhood With A Disability with Sarah
Part One - Celebrating Disabled Mothers and Mothers of Disabled Children Part Three - Challenging Attitudes Towards Mothers of Disabled Children with Jenna As part of celebrating International Womens Day on the community this week, this is an interview with Sarah who is a Child and Family Specialist on Scope Helpline This…
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International Womens Day - Challenging Attitudes Towards Mothers of Disabled Children with Jenna
Part One - Celebrating Disabled Mothers and Mothers of Disabled Children Part Two - Navigating Motherhood With A Disability with Sarah For our final part of our week long celebration of International Womens Day, this is an interview with Jenna who is a mother to 2 disabled children. We hope this will help shine light on…
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What Do Parents/Carers/Families Want To See From The Community?
I am interested in what parents/carers of disabled children and their families want to see from the family side of the online community. This will let me know what content to create and how I can be most helpful for you and your family! Please vote in the poll or comment below what you would like to see on here from me or…
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Advice about esa support group EDP tax credits disabled child element
Im on esa support group with EDP what shows as disability income guarantee i get the higher payment on my esa for EDP as in a couple . My partner is a add on to my esa claim well i assume this as all my esa letters come in my name and i started esa before we got together. How does this affect me at all . Would i be able to…
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Cerebral Palsy Awareness Month-Archie's Story
BBC-Same But Different. Archie's Story In this short film for primary schools we meet Archie, a ten year old boy who has cerebral palsy. Archie tells us how he views himself and how he would like others to view him. Archie plays wheelchair basketball, where he loves to socialise and be part of a team. Archie sees his coach…
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CP Scotland Play and playfulness in children with cerebral palsy
Webinar - Play and playfulness in children with cerebral palsy Wednesday 2 April, 10.30-12.30 pm In this session, we will explore ways to support play and engagement in children who: require significant physical assistance to move and engage in activities, and/or who are not able to use speech to easily communicate The…
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Eating Disorder Awareness Week- Types and Signs of Eating Disorders in Disabled Children
Eating Disorder Awareness Week - Part One Eating Disorder Awareness Week - Part Three As part of this weeks focus being Eating Disorder Awareness week, this post will look at some of the types of eating disorders, their traits and how to recognize signs of eating disorders in disabled children. Types of Eating Disorders…
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Eating Disorder Awareness Week - What To Do If I Am Concerned About My Childs Eating Behaviour?
Eating Disorder Awareness Week - Part One Eating Disorder Awareness Week - Part Two As we wrap up this weeks focus, this post is about the steps you can take if you feel like your child has an eating disorder or if you are concerned by your childs eating behaviours. This post also includes where you can find for additional…
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Disability Price Tag - Tips and Guidance for Applying for DLA - Parents and Carers
This weeks focus is the disability price tag of raising a disabled child so I am going to talk about the different benefits you might be able to claim as a parent. To help you get started, I've already put together DLA Information for Parents and Carers and todays post is a follow-up to that. I hope it makes the DLA…
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Eating Disorder Awareness Week - Introduction For Parents and Carers
Eating Disorder Awareness Week - Part Two Eating Disorder Awareness Week - Part Three This week is Eating Disorders Awareness Week and often the intersection of disability and disordered eating can often go unnoticed but creates unique challenges. This is why we are making it this weeks focus. For many parents of disabled…
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Exciting Event with Cerebra and Pedal Power in Cardiff
You’re invited to an exciting day of fun, community, and celebration at the Relay Your Way launch event being held at Pedal Power in Cardiff on Saturday 8th March. This free, family-friendly event marks the official public announcement of Relay Your Way. Created by the national children's charity, Cerebra, Relay Your Way…
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Exciting Launch Event with Cerebra and Pedal Power
You’re invited to an exciting day of fun, community, and celebration at the Relay Your Way launch event being held at Pedal Power in Cardiff on Saturday 8th March. This free, family-friendly event marks the official public announcement of Relay Your Way. Created by the national children's charity, Cerebra, Relay Your Way…
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Transform Your Child’s Progress This Easter / Spring School Holiday with Intensive Therapy!
From Monday 7th April to Thursday 17th April, we’re offering Intensive Therapy to help children with cerebral palsy and other movement disorders make real progress. Available dates are: Monday 7th to Friday 11th April – 5 days Monday 14th to Thursday 17th April – 4 days Can’t make those dates? No problem. We offer…
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Help us make the outdoors more accessible
We’re researching the biggest barriers disabled people face when accessing outdoor activities like hiking, rowing, and cycling. This is part of a project to help a business develop solutions that improve accessibility. What challenges have you encountered? Whether it’s a lack of adaptive equipment, inaccessible paths, or…
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International Epilepsy Day - Support and Signposting for Parents and Carers
As we wrap up our focus on epilepsy this week, I want to provide resources and support for parents of children with epilepsy. This post offers signposting to organizations that can offer further support, information and advice. Epilepsy Action Epilepsy Action provides information, advice and support to people with epilepsy…
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International Epilepsy Day - Reflecting on Childhood Experiences with Sara
As part of International Epilepsy Day, this is a conversation with @SaraC_Scope who was diagnosed with epilepsy as a very young child. This interview talks about her childhood experiences, explores the impact of the condition and highlights the positive and supportive role her parents played. We hope this is a helpful read…
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International Epilepsy Day - What Questions Do You Have? (For Parents & Carers)
It is International Epilepsy Day today and this is a worldwide event dedicated to raising awareness and understanding about epilepsy. It is a little bit different from the well known Purple day as International Epilepsy Day is a collaboration from the International League Against Epilepsy and the International Bureau for…
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International Day of Education - Inclusive Education
It's International Day of Education today and in this post we will talk about the importance of inclusive education for disabled children and young people. Inclusive education is crucial for disabled children because it creates confidence, empowerment and boosts their self-esteem. Inclusive education is more than just…
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Children's Mental Health Week
It's Children's Mental Health Week this week (3rd - 9th February). What a great way to raise awareness of Children's Mental Health and Wellbeing. Each year the charity Place2Be run and organise this event to raise funds, and encourage people to get involved in spreading awareness of mental health in children and young…
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Accessibility Project
I'm currently working on a project for college, looking at accessibility in clothing for disabled individuals and their carers. I'm going to post my proposal and a link to an online survey. It would mean a lot if some of you were able to fill it out to aid my research. I plan on working on this project further than college…
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Hi, my name is theo_uu!
Hi, I'm very new to discussion forums so please excuse my behaviour. My brother is disabled and mostly unable to move. He has a trachea and cannot feed orally, instead using a PEG. I want to learn more about other things he is dealing with but I am no very well renowned on medical terms. I struggle to understand what he is…
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International Day of Education - Inclusive Education
It's International Day of Education today and in this post we will talk about the importance of inclusive education for disabled children and young people. Inclusive education is crucial for disabled children because it creates confidence, empowerment and boosts their self-esteem. Inclusive education is more than just…
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A heartwarming story from Asda's Stockton store
Man with cerebral palsy steps in to help young boy with cerebral palsy. When an eight-year-old boy with cerebral palsy wasn’t sure if he had enough money to buy a big cuddly toy from our Stockton store, checkouts colleague Paul stepped in to help pay for it. Paul, who has cerebral palsy himself, said: "I told the boy it…
