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Hi, my name is Sweety! Any ideas about helping my autistic adult son to live independently?
My autistic adult son (27) is still living at home and I am hoping to teach him to live independently. I would love to hear from any other parents who have any ideas on this! Thanks.
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Introducing myself
hi everyone my name is Wendy. I have recently joined the community and can’t wait to meet you all! :) I have recently created a community group called “Empoweru Today” based in London. EmpowerU Today is a community driven organization committed to supporting individuals with disabilities, chronic illnesses, and learning…
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Hi, my name is sarahs182008! Help with son interacting with others
Hi iam struggling to get my son who is 14 years old to access the outside world he was diagnosed with adhd/ASD a few months ago. He has medication which he takes but it’s early days as to how effective it is. He completely shuts the world out and is very happy to stay in the house he won’t attend any schooling at home or…
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Hi, my name is lori! 5 year old son struggling in school - ADHD and ASD
my son is 4y10 months, 5 in January. He recently started reception in September however has attended the school including the nursery since 3. He has struggled throughout this time and I have been having TAF meetings for 1.5 years. He does not have a diagnosis yet but school suspect he has ADHD and ASD. Dad also has ADHD.…
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Trusts
Hi 👋 I have a disabled child and am going to set up a trust. I am getting legal advice but just wondered if anyone has any experience of this? Also the pros and cons of a disabled person’s trust and a discretionary trust? Many thanks 😊
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Pip horror story - Going to Upper Tribunal
It seems that everyone is having the same problem with pip as me. They wrote things that I didn’t say in their report. The tribunal said because my son went to mainstream school, could drive and had 2 temporary jobs in 6 years and gained qualifications he has made sufficient progress therefore he is not eligible. The worst…
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In Memory of Tina Sharp 1966 -october 2021
So, on the 17 October, it will be three years since my sister, Tina Sharp passed away at 55yrs . Whoever said time is a great healer, was wrong, as my grief for her, is stronger than ever. People do not understand how difficult it is to lose a disabled loved one. I was 5yrs when Tina was born, with quadruplegic cerebral…
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Hi, my name is GerberaJ9! Eligibility for UC, disabled son and Carers Allowance
My son is 16 and receives only 3 hours of education per week mainly due to him not being able to handle any more because of his conditions. He has higher rate Care and Mobility PIP. I understood from government online guides that he may be eligible for UC if he is deemed LCWRA. Following an in person appointment at the…
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I need an extra bedroom for my disabled daughter
hi I need help to try get an extra bedroom as I live with my 2 daughter who are 7 and 15 my 7 year old has ADHD and is not sleeping til early hours in the morning so my eldest daughter is suffering as she can’t go to bed til my youngest is asleep she gets high rate DLA and low rate care I’ve sent proof of her DLA to the…
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From DLA to PIP
Hi Everyone My son has Diaplegia Cerebral Palsy he needs the daily use of AFO's/splints on his lower legs to be as mobile as it is possible ,the health professional are concerned however going forward that his needs will get greater He turned 16 three weeks ago & I had a letter asking him to apply for PIP which we duly…
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Power hockey taster session
The British Power Hockey Association is having a taster day on 2nd November between 11AM - 14PM For more information go to British Power Hockey Association Website Image description: Full shot of a poster promoting a "Power Hockey Taster Day." The top portion of the poster features three images, each showing multiple…
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Hi, my name is Daffodil94!
I’ve just discovered Scope and am looking forward to exchanging information and ideas with you all. I'm a 71 year old Mum, grandma and friend to disabled members of my family and community. I also have my lovely cat Nova who is 3.
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Hi, my name is mum002! Child's respite stopped suddenly with no alternative given
Hi, I've just found this forum. And looks like a wealth of information. I have 2 sons with high needs. 1 funded by council and 1 funded by chc. Such a minefield. My son who is funded by chc has just had his 1 night a week respite stopped with immediate effect with no thought to the detrimental effect it will have on him…
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Help. Disabled son and struggled with finding home for him.
Hi! I really hope someone could help in some way or point us to what to do next as we are absolutely exhausted. My partner (we don't live together) she's currently living in 2bed home with her 3 sons (disabled 24 yo, 15yo and 11yo). Due to lack of space and home being unsuitable for her disabled son K. He does need her…
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Hi, my name is jon1108! Son with Duchenne struggling to keep up with friends
Hi, I am a dad to a wonderful son of 8 with Duchenne. He is getting really upset that he can't keep up with his friends at school, which is heartbreaking and I am struggling with how to support him. Thanks
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Spotlight On Rainy Days
The summer weather does not seem to want to stay! So we’ve been thinking about rainy day activities for our children (and us!) Many indoor activities can be adapted for disabled children and adults. Need to burn energy? Have a kitchen dance party. Enjoy making things? Cornflour, water and food colouring mixed together…
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Shouting in the garden at 2,3 or 5am
Hi just a quick query about what to do. My daughter who lives at home, is starting last year at uni. She also suffers from Epilepsy and POTS. To keep her epilepsy and pots controlled, she needs to get a good amount of rest and undisturbed sleep. As well, she must not overheat. Her window therefore, needs to be open. A…
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Grants for Soundproofing and Padding Rooms
Hi there, My names is Atlanta and im an OT working in housing. i have a case where a child due to ADS on other challenging behaviors is causing harm to themselves and causing significant noise issues for neighbors due to "headbanging", is any one aware of any grants or funding available out there that may be helpful.…
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UC won’t backdate higher rate dla
Hi I have discovered that I have been missing out on the difference between lower and higher disabled child element of UC in October 2023 my child was awarded the higher rate care component of DLA. which means I should have been getting the higher rate on UC but didn’t know about this I contacted UC and they backdated 2…
