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CHC care funding
I know the demographic of Scope members have become radically more diverse with many more types of impairments from those here from past times - but as a severely impaired (but only physically) individual all my life, I am curious to compare situations and support systems others are experiencing in today’s challenging…
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Moving from residential care into solo accommodation: what's the process
Hi All, We need some advice. Our daughter of 23, who is disabled (PWS) is currently in a small specialist residential care home. it has been agreed that she would benefit from being in her own environment. Now, the process has started and had several meeting with existing support agencies and potential new vendors. The…
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University in September BUT no social care in place
Hi there, I'm due to start university in September. I've been on the waiting list for a social care need assessment for a year now with no sign of reaching the top of their list. I'm unsure what to do. If I defer I'm stuck in my parents home where I have no independence, struggle with the stairs, live in a very rural area…
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Care assessment - having to go through re-enablement services (not what I need)
Hi I'm just wondering if I can get some advice, from anyone who's perhaps gone throguh this process. I'm going through a care needs assessment, never gone through one before so I'm very nervous. I have PIP and ESA/UC (both higher levels, both componenets) and am in the support group but never had support/carers etc. In the…
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Take the CQC's Short Survey to Help Improve health and Social Care
Use this form to tell us about: an experience of care - it can be good or bad a concern about a service you work for Give feedback on care - Care Quality Commission Your feedback helps make care better We use what people tell us to understand the quality of care they get from services like care homes, care agencies,…
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DWP phone appointment
Hi everyone, At the moment my heart is in my mouth. Tomorrow morning I have a phone appointment with DWP. I have already submitted my bank statements & a driver licence code(which I've never heard about before). I'll admit my finances are in a bit of a dire state, I'm disappointed with myself, as I've never let them get so…
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What do/can adult social services actually do?
After a few years of stress with the council they've finally stopped ignoring us and we've had referrals submitted that were supposed to be for a needs assessment, which we thought was supposed to involve some kind of social worker? All of the information we've found online says they're supposed to talk to you about what…
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Wrongfully put on child protection
I want to know if anyone else here had the issue with children's services?.... Briefly...wrongfully put on child protection. No significant harm by parents, instead NHS negligence/misconduct and family is held accountable (scapegoat). Bringing evidence supporting our innocence to the social workers was futile, after a…
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Social Services Care
Hi, I have had a lot of problems with the Social Services Care Assessment Team, I have been waiting for an assessment to re-employ PAs for 3 years been using care agencies as my 2 PAs either left or had to leave through their health problems struggled to re-employ new PA's. I was told in December 2024 that if I want to…
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Abdominal fistula
hi all, Ten years ago I had serious complications during a hysterectomy resulting in a perforated bowel which developed into a fistula. It’s a rare condition and pretty awful, I have 2 stoma bags, it’s a very long story. I’m frequently unwell but have learnt to manage it as best I can. It cannot be fixed as it’s too…
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Coping mechanisms
Hi gang. I'm just wondering how other ppl cope dealing with the public and the outside world? My son is 8yo and has quadriplegic CP, Scoliosis, Epilepsy and Hip Dysplasia. He uses an electric wheelchair to get around and I can honestly say we've come across every type of rude scenario / weardo that walks the planet. I'm so…
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Appealing Social Services Decision: Struggling with Care Needs and Parent Carers’ Declining Health
Social services won't get carers in to help me because "my needs are being met by my parents." My parents health is declining they both receive PIP. I am going to appeal the decision. If my parents continue to care for me, it will kill them or break us apart. Any suggestions would be very welcome, I am so stressed and…
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Direct payments - transition to adult services and needs fall between two services
My daughter has a social care transition worker, and after an assessment, we were informed that we could apply for direct payments to fund a personal trainer with experience in cerebral palsy to work with her at the gym. I found a suitable trainer, but now we’ve been told that this is considered a healthcare need, not a…
