hi all,
Ten years ago I had serious complications during a hysterectomy resulting in a perforated bowel which developed into a fistula. It’s a rare condition and pretty awful, I have 2 stoma bags, it’s a very long story. I’m frequently unwell but have learnt to manage it as best I can. It cannot be fixed as it’s too dangerous. I nearly died when they tried to fix it as I had sepsis and respiratory failure.
im getting very fearful of growing older with this, losing my independence and ending up in a home where they’d have no experience of this as it’s rare. I’m 64, my husband is 70 but no carer, he can’t cope with it. Does anyone else think like this, I know I should enjoy todsy when I can but it’s really playing on my mind. Probably because the social care system is so bad and all I’m hearing are horror stories.
