-
Hi, my name is Rosies_Dad!
Yesterday I took my twin daughters to Hospital for a routine physio appt and was blind sided with a Cerebral Palsy diagnosis for Rosie it now makes sense why she can’t walk. My wife is away with the Army so wasn’t there is person. We are now waiting to go back for more physio and hopefully some sort of walker. Can anyone…
-
EHCP declined!!
Hi, my grandson is awaiting a scan to confirm CP although working diagnosis has always been evolving CP. He will be 3 next month, in nursery where he has standing frame, brillio seat and a walking frame. He can sit cross legged independently, roll and just about beginning to do an army type crawl, at great effort. He has…
-
ADHD benefits for my child
hi guys I’m new to this so please forgive me if I do any thing wrong. My name is miv and my 15 year old daughter has just been diagnosed with adhd. She believes that she is entitled pip or whatever. Could some one please let me know if this is true and if so how to apply thanks for now guys xx
-
12 year old son who is suffering with school anxiety
I have 12 year old son who is suffering with school anxiety.We haven’t been able to get him to school for 10 weeks now.as the summer holidays are approaching it’s a worry for us that if he doesn’t go in then it could be harder for him when he starts his 2nd year in September.We are in constant contact with school who are…
-
Mistake on DLA form
Looking for a bit of advice. I sent my daughters DLA renewal forms back today. I did a full day in a diary form including night time of a day whilst she was on her period to show how much extra support she needs at these times. I included an extra night time page for a day she wasn’t on her period to show her care needs on…
-
Hi, my name is munma2three! Where can I get advice on behaviour issues for my two boys?
Hi. I have 1q21.1 microduplication. I know that two or my boys both have it. Waiting on ADHD testing for the 3 of us. And an autism test on the oldest son. I have been having so many behaviour issues with both boys. And tbh I have no idea where to look and I do not understand it all. Any help aor info would be greatly…
-
Struggling to help son with asking for a job
hi I’m new my son has just left school he is socially awkward has limited facial expression and quite rigid in thoughts .we have always known Leon has ASD but he refused an assessment and because he’s high functioning and been ok at school and with his group of friends we have let him make that choice .however now he’s…
-
Single occupant accessible toilet
Hi all, I wonder if you can help with a question: my son has anxiety about using the toilets at college so sometimes won't eat or drink. His college says he cannot use the single occupant accessible toilet as staff use them. 2 of these toilets have 'Staff only' on the door. There is a third on the ground floor, away from…
-
Hi, my name is luu855! Is sen right for my child?
hello i have a 7 year old in mainstream school. Has has been diagnosed woth ASD and has a active echp. The school has told me they feel he needs specialist schooling as smaller classes and more attention and facilities will help him learn better. His school osnt large as its a little village school in norfolk. I am worried…
-
help getting an ASD diagnosis for my daughter.
hi, I'm tiggywinkle, i have a nearly 10 year old daughter and i suspect she has autism with a pda profile. the problem I'm having is she masks really well in school and they don't agree with me but she is totally different at school than she is at home. I don't know how to go about getting her a diagnosis without the…
-
Hi, my name is clare12311! I disagree with daughters award. It should be higher.
Hi,my daughter has quite a few issues as cerable palsy on autistic spectrum global delay no danger awareness!shes only on low mobility which i thinks wrong .
-
My son 18 with Autism is struggling in his head , says all his relationship..
HI My son 18 with Autism is struggling in his head , says all his relationships are superficial. He goes to college level 4. But dosnt like people in class, has no friends at all , struggles to express feelings , in concerned for him just dont know how to lead him , I believe I am and his dad are autistic too , his sister…
-
Has anyone claimed DLA for a Baby with structural talipes (clubfoot) please?
hi just seeing if anyone has a child with structural talipes (clubfoot) please. As my child was born with it he’s now 6 months old and I’ve been advised by midwives and nurses to apply for dla for him, just seeing if anyone else has done this and was they accepted please before I make a claim
-
When my toddler wasn’t talking, I blamed myself. I didn’t know what was normal anymore
It started out with little things. My son didn’t babble much. He wasn’t saying “mama” or calling out for things the way other kids his age were. At first, I told myself he was just taking his time. Everyone around me kept saying kids develop differently, and I wanted to believe that. But as time went on, I noticed the gap…
-
Hi, my name is Shireen22!
Good Afternoon, My daughter who is Year 5 is having a Educational Pysch assessment next Wednesday. What sort of questions will they ask me and what are good questions I should ask them to help get the best out of the meeting. Thank you
-
DLA renewal
hello, I have to renew my sons DLA claim form soon. He was getting the highest rate of care. CAHMS are discharging him soon because he has an EHCP now. He still needs nightly supervision on his worst days though. I am not sure whether to ask his psychiatrist or his doctor for the part where it asks for more information…
-
Child dla
I received a notification a few days ago in regards to my sons dla saying he had been awarded it . Fast forward to today I rang and obviously pressed the wrong digit the lady couldn’t say much just that a decision had been made I’d receive a letter or call back press option 5 , so I did , to be presented with the most…
-
Looking to connect with other who have similar questions
Hello Scope community, I want to introduce myself. I am the mum of a 9 year old with CP. It's relatively mild (GMFCS 2) so he can do quite a bit, and is at a mainstream school. I face a number of issues from to time regarding his development, and wondered if I could connect with others who have similar questions or…
-
Universal credit
Hi we currently dont claim universal credit due to being over threshold. When doing a benefit checker if our daughter qualifies for DLA we will receive a payment each month. Does this get backed when we make a new claim due to DLA delay . Thanks
-
Stuck
Hi folks I'm father to 20 yr old boy who has struggled with life since he left primary school at 12. Left school at 15, no education, no friends, lovely kid but wracked with self doubt. Used to be such a happy child with friends, sport and hope. Now on antidepressants and honestly we do not know how to help him. He has no…
-
Refused college place due to EHCP
Hi my son has been refused a college place due to his EHCP, he has Autism, is not a bad lad, just struggles emotionally and that's only if someone was to bully him. I'm in contact with SEN at the college and even she said he is capable of going to the college, he has his heart set on mechanics, is very knowledgeable in the…
-
Transport to school costing too much
Hi I am new here so i dont know how this works. Am a single mom with an ADHD child. Still waiting for DLA but in the mean time am on low income, my daughter's school is very far, we cant cange it because we are in tempolary accommodation. She has serious anxieties we cant take a bus but taxi. Its costing me £30 a day.…
-
Daughter gone into residential school
HI i have a 16 year old non verbal autistic daughter with complex needs. Tonight is her 2nd night away at residential school. I so miss her and as shes never been away for more than 2 nights restbyte i fret she is now realising that she should come home soon and will become upset and anxious when shes starts pointing at…
-
Hi, my name is mummyof2boys!
Hi, I'm a 30 yes f and a mother of 2 boys one is 8 weeks and another is 13yrs. I have a moderate learning disability and ASD. I also work as a teaching assistant in a special needs college with student with a verity of disabilities and learning needs. I'm a very friendly person, I love harry potter and I do Morris dancing…
-
Pushchair
hi all I’m looking for some advice on suitable pushchair . My son is seven and around 33kg , I’m looking for a pushchair that will accommodate him , it’s only required for long days out for rest breaks and power naps . Currently have the McLaren major however the footplate is difficult to manage when having to collapse ect…
-
Hi, my name is Marirose07!
I' m a widowed Mum of one teenager close to leaving school, who is high functioning autistic, severe sensory issues, learning difficulties, comes in about age five. Non verbal, and since June last year also epileptic suffering multiple types of seizures, and due to doctors not understanding what was happening, it took a…
-
My daughter turning 18 in August and she's been getting PIP since March
Hello and hope everyone are well. My daughter will be turning 18 in August and she's going to be starting full time university in January 2026. She's been getting PIP since March and I have informed UC twice because the first time I informed them, they did not add on the child disability element on my award. I was told to…
-
Dla for my son
hello I have filled in some forms for my son but looking at them I feel like giving up I don’t no how to write or explain he’s daily stuggles and I am not good at wording things correctly So my son needs a lot of support in school, he is suspected asd/pda and I have he’s pathway referral report He also needs a mri scan for…
-
Hi, my name is Elise123! grandson is 15 years old and was diagnosed with ADHD, struggles with school
Hi can any advise me please, my grandson is 15 years old and was diagnosed with ADHD 5 years ago. He struggles on a daily basis with school , as he talks a lot. He has a high hyperactivity and low concentration, anger issues etc. He was receiving DLA for a few years and now out of nowhere, they have stopped it over a year…
-
Deputyship for son with severe learning disabilities
Hi Our son turns 18 in a few months. He has severe learning disabilities and no ability to make decisions for himself on financial or health matters. At the moment he only receives benefits but if either his mum or dad die, he could receive property/money. Also it's likely he'll move into supported living in a few years.…
