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housing for families with disabled children.
housing for families with disabled children. We have 10 year old daughter with disability and receive the higher rate of DLA. We have a property up north which is on rent and looking go sell however we still won’t have enough to buy a house down south and we desperately need a house so we can get it adapted for my…
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Disabled transport cuts Lincolnshire
I’m a carer to a 8 year old child who has autism and is at best pre verbal. Four years ago Lincolnshire council instead of getting us a place in the send school in his town sent him to one 45 minutes away. That’s how it’s been for four years and tbh school change would be huge now so I have to stomach it. Over the years…
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College not giving a place this year citing attendance he had an EHCP
my godson had been in college for a year, he had an EHCP, the case officer is nowhere to be seen, the college are saying they don’t have to treat children differently so they are refusing any course based on attendance which, compared to school where he ended up not attending, has been amazing and passed functional skills…
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Hi, my name is LozA100! Any tips for helping my teenage son?
Hi all. My son is 12 and autistic. He had 1:1 support in mainstream primary, then had a benign brain tumour 2 years ago that has left additional processing difficulties and as you can imagine, really took a toll on his physical and mental health and wellbeing. He's been amazing and I'm incredibly proud of him. I don't know…
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really struggling through the summer holidays
hi everyone, I’m really struggling through the summer holidays. I have 3 children, one has complex special needs and one is awaiting an autism assessment. I feel completely worn down and exhausted. Family and friends just don’t understand
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Help with finding accessible hobbies for teen
Hi ,I'm just wondering if anyone has any good links or advice on where or how to start helping our cp/asc teen get involved in a hobbie , they have been in autistic burnout for almost a year and not at school due to this so lost any peer support or any feelings of worth , they currently have showed an interest in formula 1…
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Hi, my name is Malemax96!
Hello, I would like to share a little about what has happened in recent months with my son's benefits. My son is on the autism spectrum. He was diagnosed when he was 2 and a half years old. We applied for DLA, which was accepted and he was given middle rate. Then I applied for carer allowance, and it was the same. My son…
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Mild CP
My 2 year old has recently been diagnosed with mild CP. It causes her left arm and leg to be stiff but she can use them both. She has OT assessment tomorrow and physio assessment on Tuesday. She was born at 24 weeks and had 3 surgeries so far, so she’s already been through so much. Can anyone give me a sense of what’s to…
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12 year old son who is suffering with school anxiety
I have 12 year old son who is suffering with school anxiety.We haven’t been able to get him to school for 10 weeks now.as the summer holidays are approaching it’s a worry for us that if he doesn’t go in then it could be harder for him when he starts his 2nd year in September.We are in constant contact with school who are…
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Struggling to help son with asking for a job
hi I’m new my son has just left school he is socially awkward has limited facial expression and quite rigid in thoughts .we have always known Leon has ASD but he refused an assessment and because he’s high functioning and been ok at school and with his group of friends we have let him make that choice .however now he’s…
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Hi, my name is Ellie_el43! Where I can find SEN support ?
Hello ,I have child age 8 .He have SEN plan at school .Not diagnosed.Where I can find support ?We live in East Cheshire
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need help with the EHE form
Hi I have A child with Autism he's currently receiving home education From myself I have been having problems with my council and need help with the EHE form because it has been passed over to an Educational welfare officer Also been having problems with send My Son is called Wesley Thanks guys
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right to choose
hi Can you give me some more information on ‘right to choose’ My grandson age 11 has been waiting for cahms assessment for several years. He seems to be getting worse and my daughter is at her wits end. We have just taken him and his brother away for a break and are having to come home early as he has kicked off several…
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Discriminating against a nine year old
Also my 9 year old has autism and mental health issues . I've been trying to get him back into a mainstream school and the school tha the local authority have applied to phoned me, the assistant head told me thst the year group i want my son to go in to in seltember has a lot of children with needs and that it would…
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Hi, my name is Rachjono2014! Appealing against issues with my son's college transport, any advice?
Hi, I am looking for support or advice, my son attends an SEN college he has Autism and communication difficulties likened to Selective Mutism and toileting problems and was using minibus travel that was awarded but due to issues with him feeling threatened with other children talking at him, toileting issues due to…
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Hi, my name is MM12! I would like to ask anyone who has a baby with hemiplegia how they manage ...
I would like to ask anyone who has a baby with hemiplegia how they manage their babies night time sleep. My grandson is awake most of the night. He has melatonin to and is 16 months old. Any suggestions would be most gratefully accepted. Thank you
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ADHD benefits for my child
hi guys I’m new to this so please forgive me if I do any thing wrong. My name is miv and my 15 year old daughter has just been diagnosed with adhd. She believes that she is entitled pip or whatever. Could some one please let me know if this is true and if so how to apply thanks for now guys xx
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Hi, my name is Rosies_Dad! Just received a CP diagnosis for my daughter, any book recommendations?
Yesterday I took my twin daughters to Hospital for a routine physio appt and was blind sided with a Cerebral Palsy diagnosis for Rosie it now makes sense why she can’t walk. My wife is away with the Army so wasn’t there is person. We are now waiting to go back for more physio and hopefully some sort of walker. Can anyone…
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Child dla , when to apply for pip
Morning, I've just renewed my daughters dla, they received it on the 8th of July, and renewed it on the 12th July, yes 4 days to make decision, it didn't end untill mid October, so very fast, anyway my question, they have given her it untill her 17th birthday, do I apply for pip then when it comes to the end ,,or will I…
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lady with son who has autism needs help
hi all im posting here my story is today i met lovely lady jodie is her name.I met her whilst in a supermarket in bradford leeds lovely lady she was having a terrible day today i stopped to ask her if she was ok, And she told me this week she's only had 2 hours sleep with her son he is 12 yrs old and has autism,Becasue its…
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Hiya
Hope all are well My venting moment I’ve been quiet. I’ve followed the rules. I’ve written emails, filled out SEN diaries, attended meetings, and trusted the process. But nothing changes. My daughter is a neurodivergent teenager who needs support. Real support. Not words. Not promises. She needs people who understand her,…
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Advice on refusing to leave the house
Hi there, I’m new to the forum, any help is very welcome and I apologise for such a long read, I have a little girl age 10, with autism, also waiting on diagnosis for adhd, as from the Easter break she has refused to go out anywhere and to school, which we are shocked at as she’s always loved going to school…She has high…
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Your not alone
Hello all It’s been a week since my daughter had a severe mental health crisis, and I’m still trying to process everything. She has SEN and has been struggling with extreme school-related anxiety for some time. I’ve been raising concerns for months—logging behaviours, attending meetings, sending emails, doing everything…
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first time mummy to my Isabella who was born with spinabifida mylomeningocele and hydrocephalus!
I am a first time mummy to my Isabella who is currently 3, she was born with spinabifida mylomeningocele and Hydrocephalus! I am the only one of my friend group with a child who has special needs, so seeking out for some mummy friends like me!
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EHCP declined!!
Hi, my grandson is awaiting a scan to confirm CP although working diagnosis has always been evolving CP. He will be 3 next month, in nursery where he has standing frame, brillio seat and a walking frame. He can sit cross legged independently, roll and just about beginning to do an army type crawl, at great effort. He has…
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Mistake on DLA form
Looking for a bit of advice. I sent my daughters DLA renewal forms back today. I did a full day in a diary form including night time of a day whilst she was on her period to show how much extra support she needs at these times. I included an extra night time page for a day she wasn’t on her period to show her care needs on…
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Hi, my name is munma2three! Where can I get advice on behaviour issues for my two boys?
Hi. I have 1q21.1 microduplication. I know that two or my boys both have it. Waiting on ADHD testing for the 3 of us. And an autism test on the oldest son. I have been having so many behaviour issues with both boys. And tbh I have no idea where to look and I do not understand it all. Any help aor info would be greatly…
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Single occupant accessible toilet
Hi all, I wonder if you can help with a question: my son has anxiety about using the toilets at college so sometimes won't eat or drink. His college says he cannot use the single occupant accessible toilet as staff use them. 2 of these toilets have 'Staff only' on the door. There is a third on the ground floor, away from…
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Hi, my name is luu855! Is sen right for my child?
hello i have a 7 year old in mainstream school. Has has been diagnosed woth ASD and has a active echp. The school has told me they feel he needs specialist schooling as smaller classes and more attention and facilities will help him learn better. His school osnt large as its a little village school in norfolk. I am worried…
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help getting an ASD diagnosis for my daughter.
hi, I'm tiggywinkle, i have a nearly 10 year old daughter and i suspect she has autism with a pda profile. the problem I'm having is she masks really well in school and they don't agree with me but she is totally different at school than she is at home. I don't know how to go about getting her a diagnosis without the…
