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Mainstream
Hi, I had a bruising time getting my daughter into a specialist school that could implement her EHCP. Both her mainstream school and the LA failed her. I want to put in a formal complaint to let the school and LA know that their inaction was detrimental to my daughter forcing me to remove her. Her mainstream school…
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Hi, my name is LittleFlower1986!
hello, I have joined as I need good advice on a situatuation. My daughter has a disability, mostly neuro, overlapping migrainal/epilepsy disorders. After finishing 6 form school she went to college to get better marks for English/maths, this was over a 2yr period, she was on dla from 17yrs old, in 2016 she was put on ESA…
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Hi, my name is sage26
I know rules have recently changed but I am currently in receipt of LWRCA and pip enhanced rate and low mobility. My adult child is going through psychotic episode and has been told by the psychiatrist he cannot work and will not be able to attend uni in September as he had hoped as he definitely will relapse due to…
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Hi, I'm new here, soon to be single mum with a disability, I could do with some advice.
Hi all, I'm new here, I'm a soon to be single mum with a disability and I'm hoping to get some advice and help as I'm feeling very overwhelmed right now
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Support
hiya, my daughter was diagnosed with a progressive neurological condition at the start of this year. I’m finding it very hard to come to terms with and really feel alone in it. I would love to talk to other parents whose children have similar disabilities. For reference my daughter is only 7. Thank you.
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Advice on autistic child
I hope you're well. I’m reaching out to you for some advice, as I’m feeling unsure where else to turn. My daughter is 10 years old and undiagnosed autistic, though we are confident she is and shes been on MATT pathway a few years. She experiences extreme anxiety around school, and even stepping onto the playground is a…
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Room for husband
Hi, in a 3 bedroom, got son at home and daughter with her 7 mnth old baby, im in 3rd room and husband sleeps downstairs ( has done for 2 years) im his carer hes recently been diagnosed with young onset dementia along with alot of other health issues , barely sleeps throught the night which has me up and down, ( went down…
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DLA decision to payment, timescale?
Hi all, I have a 10yo (W) & a 5yo (A) both boys… W has been diagnosed/medicated/receiving DLA for 3/4 years now, and I seem to remember getting the back payment before even the explanation letter! For A we have been waiting since forms went back in 13/08 last yr. Since we hit the 20wk mark I’ve called DLA twice & (yay!) a…
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EHCP Help
Hi I wonder if you can help me, My daughter is on the waiting list for ASD and ADHD assessments. But with her being in year 5 at school we need to get her EHCP done so that when we apply for school at end of 2025 we can look at special schools. The school she goes to have said they wont apply for EHCP until she has a…
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Community paediatrics rejecting baby with CP
I am a foster mum. Baby R is with me, 3 months old with emerging spastic cerebral palsy following birth trauma.., community peads team rejected him saying he needs acute care, ( as possibly I am Seeing vacant episodes and spasms). in the last 3 weeks we have visited 4 nhs hospitals and had 1-4nights in 2 of them… acute…
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Awaiting autism assessment for both son's
I've been really fed up ciz my little one has been awaiting a diagnostic assessment now for nearly 2 years now. I feel really let down by CAMHs who they are also under due to social and generalised anxiety and emotional dysregulation. It's been a really tough old ride. Does anyone else feel their precious children have…
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Help/advice
hello, I am a mum of 2 disabled children, my oldest is just physically disabled my youngest is non verbal and completely dependent, I cope very well with day to day life but recently I’m scared of them growing into adults I’m scared my oldest will be bullied and she understands everything and my youngest I worry who will…
