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Hi, my name is proudmamato7! Is this enough supporting evidence from school?
hi everyone, I’m just wondering if anyone thinks this is enough supporting evidence from school(in blue) he’s obviously masking quite a bit in school.
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Teen Transition from DLA to PIP
Hi, has anyone recently experienced the PIP telephone assessment for a 16 year-old moving from DLA to PIP? I've been informed by an assessor at Capita that my child will have to attend the telephone assessment with me (the appointee). This will be extremely distressing for my child (diagnosed with autism), the conversation…
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Final statement EHCP. Confusion about terms.
Hi there. Just received the final statement for EHCP for my 4 year old who started main stream Primary 1 in September past. She was referred for this by nursery who noticed she was behind her peers and with further assessment from an Educational Psychologist who agreed. She has no official diagnosis but she is awaiting…
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Hi, my name is Diago! School refused EHCP
Hi everyone, My 11 year old daughter has been recently diagnosed with ADHD. She has terrible executive function deficits , started on meds . Academics ok with additional tutoring and lenient strategies at home . Pass in grammar school 11+ . Sure to struggle during transition to secondary school without supports in place .…
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Does claiming carers allowance affect your own PIP
My grandson,12 has just been awarded DLA, higher rate of care, (autism). A leaflet enclosed said may be able to claim Carers Allowance. My DIL who would be claiming is on PIP, (took a tribunal hearing). Worried that if she puts in a claim for Carers Allowance they will want to 'review' / stop her PIP. The care she provides…
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18 month old grandson has a mild(ish) club foo
My 18 month old grandson has a mild(ish) club foot. It is now causing him to trip up constantly and his mum doesn’t like him walking unless he is on grass or carpet. He has never seen a doctor about it and has not had any visits from the health visitor. He needs help. What is the next step we should take to see a…
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8yo without any school place at all - advice please
Hi By this time next week my autistic daughter will be without any school placement at all. Nov 2024 - annual review process started at current mainstream school and consult with specialist requested to ensure she has specialist in time for phase transition, followed by day after delay without explanation or just cause (as…
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DLA to PIP at 16
Hi all so my son is due to turn 16 in the next week and I'm dreading the transition to PIP. We dont have a lot of medical evidence I have reports from when he was at primary school with speech and language therapy and some occupational health reports and his diagnosis. Im so worried about the application process could any…
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DLA renewal MR
hi my sons DLA has just been renewed at the same rate, he has received DLA since he was around 5 years old, he is now 12, I was told years ago by an expert we should of done a MR as he should be receiving high rate, I sent his ehcp and a very detailed sensory 32 page report along with other info, I believe I have a month…
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Educational Psychologist Report
hiya, I hope this is okay to post here! So we’re on week 32 of the dreaded EHCP assessment and had the EP assessment last week. We’ve already submitted a complaint to the LA and we’ve been redirected to the Local Government and Social Care Ombudsman - we’ve submitted our complaint with them. We have just been sent the EP…
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18 year old son will not leave bedroom
my son who has just turned 18 has not been out of his room for at least 6 months now. It was his birthday yesterday we had all the family round and he would not come down or even open his cards. Its so upsetting we dont know what to do who to turn to as he refuses any type of intervention. He is diagnosed adhd but has not…
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Advice please - Should the school have asked me for consent before contacting child's hospital?
My child has SEN and medical condition. We have a health care plan set up with the school which tell them what to do in an emergency. It also has contact information of his hospital. Care plan clearly states that the hospital to be contacted in an emergency only . I dropped off some emergency medication at the school…
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DFG for loft conversion - anybody been in a similar position?
We are currently looking at ways to adapt our house and to make it more suitable for our daughter’s needs. She is autistic, nonverbal and has GDD. We are in a 3 bedroom house where my husband and I share a bedroom, our daughters share a bedroom and our third bedroom is used as my husband’s office. When our youngest…
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Hi, my name is Spik! help in filling out the DLA forms
My Grandson is waiting for the outcome of a assessment as to if he has ADHD. I have been told we should apply for DLA but being as he has good days and more bad days, I'm not sure how to answer the questions and would like help in filling out the forms. Any help would be appreciated Kindly yours Spik
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Can nursery refuse specialist visiting in nursery?
Hi can our nursery refuse accepting in their premises private specialist s taht we hired for our son? Eg speech and language therapist, occupational therapist. We need also a private educational pstchologist to visit them and assess the child on whether can attend reception next year. What can i do if they refuse accepting…
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Daughter gone into residential school
HI i have a 16 year old non verbal autistic daughter with complex needs. Tonight is her 2nd night away at residential school. I so miss her and as shes never been away for more than 2 nights restbyte i fret she is now realising that she should come home soon and will become upset and anxious when shes starts pointing at…
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Daughter ASD, college & EHCP, about to be kicked out
my daughter is in her second year of college and is really struggling as this is her first year doing level 3 courses. Her self harm has gone through the roof and she is becoming very distant which is not a good sign as we have been here many times before. I don’t know what to do!! She has an EHCP in place who I’ve tried…
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toddler turning 3
Hi, Please help I have toddler turning 3 this October and still overwhelmed. Maybe im still on denial stage, waiting for ped consultation re:developmental stage. He has signs of autism and not talking much and was diagnosed as suspicious of autism in other country as it was too lokg to wait for NHS. This answered my…
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College not giving a place this year citing attendance he had an EHCP
my godson had been in college for a year, he had an EHCP, the case officer is nowhere to be seen, the college are saying they don’t have to treat children differently so they are refusing any course based on attendance which, compared to school where he ended up not attending, has been amazing and passed functional skills…
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child to teens/young adults
My son is now 20 and we are beginning to notice the lack of help . He goes to college this will be his third year although he didn't attend for most of the last year because he didn't get on with the course . He has had a specialist chair all the way through school and college (Bambach). As he wasn't in attendance the…
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decision to start home schooling
Hi I have a daughter 13 with SEN and 3 yrs into trying and failing to I get a diagnosis for Autism and other things. She’s refused school on and off since primary and now in her 3rd year at high school, has not attended for a year and a half leading to the decision to start home schooling as of now. No idea what I’m doing…
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Hi, my name is mamaneedingadvice! are there courses I can take to help my son?
Hi I'm lucky enough 2 have a son & daughter (13yrs age gap) my son is miracle I never thought I'd have as lost my first daugher at birth then years if I've for my daughter. When Dr who had told me I was pre menopause suggested hospital. I remember this day with huge fondness as thought my cervical cancer was back but my…
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Hi, my name is emie!
my parter works and I have a 1 (will be 2 at the end of the year) old and I’m desperate to get back to work. I can’t afford childcare and both our parents work.. we claim UC and they said that they would cover up to 85% of childcare costs if I was to go back to work.. at the moment I’m only getting around £20-£40 from UC…
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Child with undiagnosed severe learning disability
Hello all. I'm new here. I have a 10-year-old daughter who's autistic and has a severe learning disability. I'm struggling to get a learning disability diagnosis for her when her disability is 100% obvious. I'm looking for advise about getting a diagnosis for my daughter, please. My daughter was diagnosed with autism when…
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Elective Home Education with an EHCP
Hi, my young person is on roll at a Specialist Post 16 college with an EHCP. We are looking at Electively Home Educating her. I know that if a child is on roll at a specialist placement then the LA have to give permission. But what if, as is my daughter's case, the young person is over 16 i.e. not of compulsory school age…
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Hi, my name is nilupa!
HHi I'm writing to behalf ofy son, he has dinosaurs autism, learning difficult and anxiety, eye problems, so he has received DLA until 16 year old ,now my son 17 year old and I did applied PIP, The PIP diction was refused his clam after I did reconditioning to his clams, aging same diction was Now I trying to appeal I…
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Hi, my name is rainbow1234!
hi everyone I have a 13 year old son who maybe autistic. he hardly leaves the house and doesn't attend school I'm worried about him. he does have friends on line but that's all
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Childcare
Hi I was wondering if I could get some advice about childcare I have a 3 year old and both myself and my partner receive benefits universal Credit and limited capability for work and work related activity for my partner as he has health problems I care for my partner every day and I suffer with my mental health I wanted to…
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housing for families with disabled children.
housing for families with disabled children. We have 10 year old daughter with disability and receive the higher rate of DLA. We have a property up north which is on rent and looking go sell however we still won’t have enough to buy a house down south and we desperately need a house so we can get it adapted for my…
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Disabled transport cuts Lincolnshire
I’m a carer to a 8 year old child who has autism and is at best pre verbal. Four years ago Lincolnshire council instead of getting us a place in the send school in his town sent him to one 45 minutes away. That’s how it’s been for four years and tbh school change would be huge now so I have to stomach it. Over the years…
