-
Hi, my name is Katycmrs!
Good afternoon all Hope all is well. Im here because im on day 2 of summer holidays and im struggling with my adhd and autism daughter already! There seems to be no support for me coping/managing her behaviour and i feel overwhelmed. How we all coping? Thanks
-
Advice for childcare payments for child receiving DLA
Hi, hope everyone is doing well!! I am in a couple and I work full time whilst my partner works self employed and receives carers allowance for our son who gets DLA. This month we have been declined childcare for our son as they said the cost is excessive and my partner should care for him as he is his carer. We also have…
-
Hello 👋🏻
I'm a mum of 2. I have taken the leap and de-registered my 13yo son from mainstream this week to homeschool. My gut was telling me it was the right thing and already I have seen an improvement. My son is known ASC and we are on the pathway for ADHD. He had a burnout in 2024 and since then I don't think I have ever seen him…
-
First time flying - severe cp' -oxygen hire- transfers
Looking for advice specifically around oxygen hire, transfers and managing flying for the first time with a complex child please 🙏 Our son is 2 and half , gmfc level 5, immobile, non verbal, with epilepsy, Tof/oa, dystonia, severe gastroesophageal reflux, visually impaired, chronic lung disease, gastro jejunally fed and…
-
caring for a teenager
hi every one i am a carer for my daughter aged 13 who has asd anxiety and ebsa and sometimes its very draining and i find it makes my fibro and osteoathritis, and other conditions reaally flare up, wondering if anyone else on here is in the same positiion and any tips for support thanyou
-
Hi, my name is Julia247! How to overcome barriers with other parents?
Hi, I’m a Grandma, looking for ways to support my family with a child with AuDHD in mainstream. In addition to supporting their child, they face lack of understanding from other parents. Has anyone successfully overcome these barriers and educated the school community? The teachers are excellent, it is the wider, negative…
-
Hi, my name is welbeck! My ASD teen has noise sensitivity, any advice?
Hi,my ASD teen and noise sensitivity
-
10 month old -, seeking advice on early intervention & intensive therapy
Hi everyone, I’m a first-time poster and honestly don’t quite know where to start. Our daughter is 10 months old. From quite early on I noticed some things that concerned me — a very sensitive Moro reflex and very clenched fists — but I hoped she’d catch up. It wasn’t until 6 months that we were referred to paediatrics.…
-
School SENCO ignoring requests for SEN support – advice needed
I am an AuDHD parent and my child shows many autistic traits (social communication, sensory, emotional regulation difficulties, and high anxiety around school). I first raised concerns with teachers at Reception and formally requested SEN support and support for an autism assessment in September. Since then, the school has…
-
Hi, my name is Tc57!
I have a daughter who is autistic and has sensory, auditory processing disorder, anxiety and is in year 10 and is struggling with her learning , so far behind that it takes a lot for her to get into school , She has mental health issues and self harms and is on the watchlist committing suicide due to the fact that these…
-
Advice on autistic child
I hope you're well. I’m reaching out to you for some advice, as I’m feeling unsure where else to turn. My daughter is 10 years old and undiagnosed autistic, though we are confident she is and shes been on MATT pathway a few years. She experiences extreme anxiety around school, and even stepping onto the playground is a…
-
Private Educational Psychologist
Hello all. I’m considering arranging a private Educational Psychologist assessment for my child, to better understand her educational needs and what support or provision may be most appropriate for her. This would be the first time I have gone privately for this type of assessment, so I would be very grateful to hear from…
-
Teen Transition from DLA to PIP
Hi, has anyone recently experienced the PIP telephone assessment for a 16 year-old moving from DLA to PIP? I've been informed by an assessor at Capita that my child will have to attend the telephone assessment with me (the appointee). This will be extremely distressing for my child (diagnosed with autism), the conversation…
-
Anyone else?
Does any one else have anxiety about what others think of you as a parent because of your child’s behaviour related to their special needs?
-
Hi, my name is reenieroo!
hi my daughter is autistic and is ebsa due to anxiety. she hasnt attended school since year 5, shes now in year 10. she has a ehcp and sees a mentor not connected to the school two days a week for three and a half hours each day that the ehcp is paying for. she has been seeing that mentor for 5 years and has an extremely…
-
Hi, my name is Gemzie246!
hi i’m new here im looking for advice my son is 9 he’s autistic i’m really struggleing with him at the minute he’s got a thing abou tv the weather if he sees clouds he has huge melt down if the sun is creeping through he has a melt down i can’t get him to school as they keep ringing me to get him , and can’t get him to…
-
I am deciding whether to homeschool and wondered if you can give me some advice
Hi, My son is year 8 with ASD & ADHD with mental health issues since July 2025. School performance & SEN provision has not been adequate and curriculum content concerning. I am deciding whether to homeschool and wondered if you can give me some advice of your own journey? My son doesn’t have an EHCP. Don’t have any…
-
Hi, my name is Asaint! Issues with SENCO, EHCP and college
Hello my daughter has an ehcp, the college named on her ehcp refused her based on her predicted grades. I've been told that as the college is named they cannot refuse her. The school she is currently at the senco is horrible and keeps lying and has offered no support. Even thought she has an ehcp. AAny Advice
-
Friendship
Hi am a Sen mum my son is now at college I was just wondering if any one else in the some place as my son can't get it groups in the week he's getting his confidence and I would love to help my son make a friend
-
Hi, my name is Jimbones13! my child is stuggling at school.
Hi, i am guardian to my 6 year old granddaughter, she is currently on the waiting list to be diagnosed for adhd. She has only just been accepted on the list for diagnosis and could take a year/18 months to happen. The reason i am here is to try and get some advice or help regarding my childs school. She struggles with…
-
EP report/ehcp plan how accurate/
I’m looking for advice regarding my 14 years old daughter with Educational Psychologist (EP) report, which I’ve only recently found after her latest EHCP annual review. I’m still learning about the EHCP process, but I’ve always felt something didn’t seem right with her plan. The EP report is nearly 3 years old and was…
-
DLA Mobility Timescales
Hello automatic review forms came out as son turned 5, DLA received them back 9th march. Can anyone advise of current wait times for a decision?
-
Our Son is nine and Autistic. My husband is ...
Our Son is nine and Autistic. My husband is very bothered by what others think when our Son is lashing out or behaving in ways that at best seem unusual and at worse could be very dangerous because of problems communicating or Sensory processing difficulties. Any advice?
-
School is recommending for residential placement. Local authority panel refused
My son is having a school breakdown. School is recommending for residential placement. Local authority panel refused
-
Hello I have a 9 year old grandson he has autism I...
Hello I have a 9 year old grandson he has autism I don't know how to help him he doesn't like leaving the flat all he wants to do is stay in his pjs on his phone I have tried to talk to him but he won't talk and tell us what's wrong is there any advice you can give me please my daughter is a single parent
-
Looking for other mums for support
I have a son called Finlay who is two and has global developmental delay. I am thinking that he may be autistic but we wouldn’t know until he’s older about that. He stims a lot, he cannot speak or walk yet but bum shuffles everywhere to get himself about. He’s very funny and babbles all the time, he says mama and dada and…
-
Support for chldren under 5
Good afternoon all, I am new here, I'm a single mum with my autistic son who is nearly 4 yrs old, he's become increasingly difficult outdoors, i tried to let him run off some steam at a local park, early in the morning so the park was fairly quiet, and my son would not leave, kicked and screamed and was hurting himself and…
-
How to get support for adult daughter after my death
hi my daughter is 32 and lives with me (mum) she is autistic , Asperger’s as well as moderate learning difficulties. A social work assistant said years ago my daughter presents better than she functions. so while she appears capable, life for her is really a struggle. She makes poor diet choices , poor hygiene choices ,…
-
Hi, my name is AmyLaura!
I wondered if anyone has any advice please, I’m a 35 year old woman with Cerebral Palsy, a history of Epilepsy and depression and although I can walk short distances I’m a wheelchair user. I have been with my husband for almost 16 years and married for about 9 and a half years and we are the same age. Although my husband…
-
Help
so long story short, my daughter is awaiting diagnosis, showing pda traits. Now a teenager and has started vaping to fit in at school. Masks all day at school and at home has meltdowns, burn outs, is forever trying to control every situation. I don’t know how to deal with the vape situation and feel the more I’m going on…