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EHCP year 10 annual review
hello My 14 year old daughters annual EHCP review is this week & im so worried, since year 9 they’ve cut her support without putting it on paper when I challenged them they first said we have limited TAs/LSA’s, then they said they are getting daughter to be more independent, this is the wording in her EHCP • “Additional…
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DLA REnewal forms
I was wondering if anyone could help me. My daughter’s DLA award runs out at the end of May. I phone at 20 weeks out for renewal forms and they told me they wouldn’t be sent until 12 weeks out. I phoned a week ago and they told me the forms are automatically sent out from the computer and to phone again in 2 weeks (which…
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ASD Therapy/schools/help
hi my son has ASD, non verbal aged 5. Was due to start school sept 25 but due to no EHCP he stayed in nursery till he turned 5 in December. He now has his EHCP waiting to go to panel for a place at a special school. In the meantime they want me to send him to mainstream (this isn’t suitable and I am fighting this) but in…
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Support group nearby
Hello, My son has cerebral palsy and is currently 3 years old. We live in Birmingham/Solihull area and I was just wondering if anyone knows of any support groups around here that we could go to? We're trying to encourage him to take some steps with his walker and I think if he saw other children using walkers he might be…
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Does claiming carers allowance affect your own PIP
My grandson,12 has just been awarded DLA, higher rate of care, (autism). A leaflet enclosed said may be able to claim Carers Allowance. My DIL who would be claiming is on PIP, (took a tribunal hearing). Worried that if she puts in a claim for Carers Allowance they will want to 'review' / stop her PIP. The care she provides…
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i really need some help
where to even begin i know this is going to come across like i am only focussed on money and sounds terrible but it im struggling a lot and do not have any support sorry if this does not make sense i am panicking and crying i do not know how i will cope today my statement has come and i have been benefit capped and they…
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Educational Psychologist Report
hiya, I hope this is okay to post here! So we’re on week 32 of the dreaded EHCP assessment and had the EP assessment last week. We’ve already submitted a complaint to the LA and we’ve been redirected to the Local Government and Social Care Ombudsman - we’ve submitted our complaint with them. We have just been sent the EP…
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DLA date - is this correct or an error?
Hello, my child currently gets middle rate DLA for care only and has been getting it for a few years. I have just had a letter telling me about the increase from April but it is showing that they will be getting DLA until October 2nd 2027, however, they turn 16 on October 2nd 2026 (this year). Is this correct with DLA or…
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Sleep deprived
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Homeschooling for beginners
Help for parents (beginners) who have recently started to homeschool.
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Providing DLA award letter and birth certificate
Hello. Since declaring to uc that my sons receive DLA uc are wanting me to attend an appointment in person to provide his birth certificate and award letter which I have got and happy to do. I've seen a lot of people just have to upload the pic online is it different for everyone? What should I expect at the appointment?…
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Home schooling
I am just after some advise, we are considering home schooling our boys for secondary school as the local offer is very limited. The LA say if we do they would no longer be supported with SALT and OT. Does anyone know if this is correct? Both have OT and SALT as part of there EHCP.
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DLA
Hello, my son started receiving DLA last June and I had no idea I had to update Universal credit, I've only just found out now as I assumed universal credit would of been made of aware of it🤦🏼♀️ can anyone tell me what I'm supposed to do as I'm worried they are going to think I've been untruthful when I just genuinely…
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Help with sleep for autism toddler
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HELP
HI my name is Sebastian and my sister has a 11 years old boy with severe autistic spectrum. He has the most beatifull simile in the world. From when he was 10 he start to be super violent he punch himself in the head and bites himself and us and hits us with his head. He has no shame in doing this even in the public. Most…
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Need advice
My Son has been awarded dla and is being back paid to April 2024 a substantial amount of money. I will be using some of the money for what he needs and the rest putting it in a savings account in his name for when he is older. As his needs are for life. I am on universal credit will it affect me because of the amount As it…
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Hi, my name is proudmamato7! Is this enough supporting evidence from school?
hi everyone, I’m just wondering if anyone thinks this is enough supporting evidence from school(in blue) he’s obviously masking quite a bit in school.
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Teen Transition from DLA to PIP
Hi, has anyone recently experienced the PIP telephone assessment for a 16 year-old moving from DLA to PIP? I've been informed by an assessor at Capita that my child will have to attend the telephone assessment with me (the appointee). This will be extremely distressing for my child (diagnosed with autism), the conversation…
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Final statement EHCP. Confusion about terms.
Hi there. Just received the final statement for EHCP for my 4 year old who started main stream Primary 1 in September past. She was referred for this by nursery who noticed she was behind her peers and with further assessment from an Educational Psychologist who agreed. She has no official diagnosis but she is awaiting…
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Hi, my name is Diago! School refused EHCP
Hi everyone, My 11 year old daughter has been recently diagnosed with ADHD. She has terrible executive function deficits , started on meds . Academics ok with additional tutoring and lenient strategies at home . Pass in grammar school 11+ . Sure to struggle during transition to secondary school without supports in place .…
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18 month old grandson has a mild(ish) club foo
My 18 month old grandson has a mild(ish) club foot. It is now causing him to trip up constantly and his mum doesn’t like him walking unless he is on grass or carpet. He has never seen a doctor about it and has not had any visits from the health visitor. He needs help. What is the next step we should take to see a…
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8yo without any school place at all - advice please
Hi By this time next week my autistic daughter will be without any school placement at all. Nov 2024 - annual review process started at current mainstream school and consult with specialist requested to ensure she has specialist in time for phase transition, followed by day after delay without explanation or just cause (as…
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DLA to PIP at 16
Hi all so my son is due to turn 16 in the next week and I'm dreading the transition to PIP. We dont have a lot of medical evidence I have reports from when he was at primary school with speech and language therapy and some occupational health reports and his diagnosis. Im so worried about the application process could any…
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DLA renewal MR
hi my sons DLA has just been renewed at the same rate, he has received DLA since he was around 5 years old, he is now 12, I was told years ago by an expert we should of done a MR as he should be receiving high rate, I sent his ehcp and a very detailed sensory 32 page report along with other info, I believe I have a month…
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18 year old son will not leave bedroom
my son who has just turned 18 has not been out of his room for at least 6 months now. It was his birthday yesterday we had all the family round and he would not come down or even open his cards. Its so upsetting we dont know what to do who to turn to as he refuses any type of intervention. He is diagnosed adhd but has not…
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Advice please - Should the school have asked me for consent before contacting child's hospital?
My child has SEN and medical condition. We have a health care plan set up with the school which tell them what to do in an emergency. It also has contact information of his hospital. Care plan clearly states that the hospital to be contacted in an emergency only . I dropped off some emergency medication at the school…
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DFG for loft conversion - anybody been in a similar position?
We are currently looking at ways to adapt our house and to make it more suitable for our daughter’s needs. She is autistic, nonverbal and has GDD. We are in a 3 bedroom house where my husband and I share a bedroom, our daughters share a bedroom and our third bedroom is used as my husband’s office. When our youngest…
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Hi, my name is Spik! help in filling out the DLA forms
My Grandson is waiting for the outcome of a assessment as to if he has ADHD. I have been told we should apply for DLA but being as he has good days and more bad days, I'm not sure how to answer the questions and would like help in filling out the forms. Any help would be appreciated Kindly yours Spik
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Can nursery refuse specialist visiting in nursery?
Hi can our nursery refuse accepting in their premises private specialist s taht we hired for our son? Eg speech and language therapist, occupational therapist. We need also a private educational pstchologist to visit them and assess the child on whether can attend reception next year. What can i do if they refuse accepting…
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Daughter gone into residential school
HI i have a 16 year old non verbal autistic daughter with complex needs. Tonight is her 2nd night away at residential school. I so miss her and as shes never been away for more than 2 nights restbyte i fret she is now realising that she should come home soon and will become upset and anxious when shes starts pointing at…
