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Whats the wait for a decision on a child disability claim?
hi wondering if anyone could help me I made a child disability claim in October but was late handing the second part in so when I send that in the called and done the first part again that was in January does anyone know how rough the wait is for decision and do they take support and social work letters into account mines…
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Suspect our son has ADHD, any advice?
Both me and my husband are in our 40s and have ADHD, our son is 5 and we also think he may have it. The lack of sleep we both recieve is just awful,and is severly effecting all our mental health. We have asked for support from drs and other professionals but nothing seems to help him, we are at a total loss and need some…
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Looking to Move to another city
Hi Everyone, it's nice to be part of a community here. I am a father of a 5 year old boy who has ASD and ADHD. We moved to Birmingham from London in 2023 due to economic reasons but shortly afterwards my son was diagnosed with these conditions, now I am finding really hard to get any support from the LA as the council is…
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Hi, my name is welbeck! My ASD teen has noise sensitivity, any advice?
Hi,my ASD teen and noise sensitivity
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Relocating from Spain to England - Education Advice For 15 Year Old
Hi I'm a UK born parent of a UK born soon to be 15-year-old son Joe. He has exceptional needs - almost non-verbal ASD & needs constant care. We have been living in Spain for 12 years where we have found the schooling very disappointing. I've recently relocated to my native North Tyneside & we're exploring the possibility…
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Hi, my name is funtastic2676! I am looking fur days out for my older son who is autistic.
I am looking fur days out for my older son in the northwest that are suitable for autism & not over stimulating
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New member
My daughter has CP is hypotonic, has a learning disability and is on the autistic spectrum. I would like her to be able to join here with her own account. Is this possible. She could do with making some friends outside her very small circle of existing ones.
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Child DLA renewal
Hello, We get DLA for my child which is due to be renewed in Oct this year. Is this straightforward process? I heard online somewhere that it is just a light touch when revering child DLA claims. My older child in receipt of PIP, I am appointee for both of them just worried that at the time for child DLA renewal it won’t…
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Charity suggestion
Hi everyone. I'm looking for a charity that helps supply garden toys for children. I stumbled across one a while ago but can't seem to find it again now 🙄 Does anyone know of a Charity that can help? Looking to apply for a special needs swing. Thanks in advance 👍
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PIP not given for ADHD/mental health
I got my decision letter from PIP today, didn't get it. I am also awaiting outcome of WCA (UC50). If I am refused LCW I won't be able to cope with 35 hours a week of job searching ☹️ I have been waiting for NHS mental health support since October 24 and now told by GP it will be another 15 weeks for initial appointment…
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11 year old that has severe anxiety and is currently being assessed for ASD/ADHD
Hello everyone new to this group. I am a single parent to an 11 year old that has severe anxiety and is currently being assessed for ASD/ADHD. I'm struggling everyday especially with her school and getting her there. It's so hard especially when she has meltdowns, I feel hopeless and like a useless mum most of the time.…
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Child dla
Hi, my son who is 12 has had his child dla turned dwn he has a hearing aid its gone to a mandonatory reconsideration they declined it as he doesn't need care attention for a child same age as him. We have sent doctors letter as supporting evidence. Can someone tell what's next steps and has someone else got it for a 12yr…
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EHCP declined!!
Hi, my grandson is awaiting a scan to confirm CP although working diagnosis has always been evolving CP. He will be 3 next month, in nursery where he has standing frame, brillio seat and a walking frame. He can sit cross legged independently, roll and just about beginning to do an army type crawl, at great effort. He has…
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Hello!
Good morning all!! I've just joined this group in hope to find information, support and a sense of community. I am a mother of the most happiest, cheeky, determined little boy who just so happens to have bilateral CP, bilateral PVL and global developmental delay. None of his diagnosis stops him or hinders him to be the…
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EHCP- I don’t know if daughter needs one!
hi everyone, A bit of background…my daughter is 7 years old. She was seen By a consultant who felt she had ADHD was going to await school questionnaire and then diagnose. He retired by the time it got sent back she was then passed onto an ADHD nurse, whilst the score scored high for inattentive adhd, she scored borderline…
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Relocation
Good afternoon My name is Hannah im new to the site. Im looking to relocate to cornwall in 2026 with my 4 children 2 of them have Adhd and Asd. What are the best schools and location would you recommend? Thank you Hannah
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Hi, my name is tired_mum! Hi, hope someone can give me some advice please. My 11 year old son...
Hi, hope someone can give me some advice please. My 11 year old son has been diagnosed with autism and has never really slept well. Over the last 4 months he has not slept much at all, we didn't sleep at all last night. He does not let me and my husband sleep as when he can not sleep he wants one of us with him. He gets…
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Sitting in on a phone as an advocate for 17 year old son during PIP assessment
Has anyone else had a PIP assessment for their teen child ? I’m absolutely astonished with their lack of empathy for a 17 year old . I understand the process but she was grilling him to the point it reduced him to shock. I had to tell her stop and remind he was a 17 year doing an adult assessment. I said he had already…
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Please please give me some advice 🙏
Hi guys, I posted on here a few weeks back about my autistic daughter and got lots of advice.. so here goes... My daughter is 10 years old and has several learning difficulties and severe school anxiety. She has a EHCP in place, which is not helping with her anxiety. Every day is a struggle to get her to school and every…
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Can I just appeal mobility rate for DLA?
Good morning, I need help regarding DLa mandatory reconsideration. My Son has ASD/Adhd. He got high rate on care and low rate mobility .we want reconsideration on mobility, but I read on line they will reconsider whole again .and might be they put low in both criteria or refuse too. Can I ask for look only mobility rate?
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SEN secondary school placement appeals
Hi , Please can someone help me. My son has learning disabilities and other illnesses. He attends a SEN school. He has been given a place at a school that was not my preference. I have been told the preferred school says they can not meet his needs. I also have issues with his EHC Plan. It contains things about him that…
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Daughter moving from DLA to PIP
Hi I am a mum of two girls. both my girls have special needs
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Hi, my name is Chamberlin_scope! I joined this group because I want to meet people like me...
I joined this group because I want to meet people like me who are in similar situations. I am in my early 20s, and my mother had her second stroke in 2013 and has been disabled since. I was 9 when I found her. She is the strongest woman I know. In recent years, things have become really tough for her, both emotionally and…
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Hi, my name is Katiemc94! Any advice on pathological demand avoidance?
New here, my son is currently being referred for ADHD and ASD, not sure on the ASD but there is so many over laps the school advice to tick both boxes. He's symptoms have been so much worse the past month. I think this is due to my parenting style has completely changed. I have ADHD so very short fuse and explosive. Since…
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Hi, my name is cordicole! Any guidance on my son's behaviours?
I have a 7 year old son who I believe may be ASD he is high functioning and school haven't picked up on alot of things, but more symptoms present as he gets older and I am personally finding it hard to navigate some of his behaviours that are not dangerous to others but mentally self harming to himself. Need any help and…
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Children's Wellbeing and Schools Bill
I'd like to bring your attention to an issue that I have been working on since the 17th of December last year when the government decided to introduce a new bill that could potentially strip parents of their parental rights in certain situations. We approached Steve Broach Specialist Barrister KC when the changes to rights…
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Hi, my name is NannieAnnx5! I'm hoping I can get some help/ advice to pass on.
I'm hoping I can get some help/ advice to pass on. I have a grandchild who has a disabled mum and has periods of chronic pain, she tries at all costs for him to be aware which has a huge impact on her energy levels. Her little boy is often aware and at such times he becomes emotional, very demanding of her no one else will…
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Second language English and disabled - support networks?
Hi, I am an adult second language teacher in Wales. I am looking to find support for several students who are learning English (so not fluent speakers/readers). I was wondering what the chances are of people from this community being able to help us. One student has a brain injury, one has a brain tumour, another is…
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Activities in West London for 15-year-old
reaching out to see what’s available in west London please. Am asking for our 15yr old daughter who uses a walking frame to get around.
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Sen child school placement
Hi I'm hoping someone can give me advice please regarding my sons application for high school and a matter which has arisen which I'm not sure is even legal, feeling confused and upset, if this is anyone's area of expertise, he has an EHCP in place is currently on a partial timetable and my belief is mainstream school are…
