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Teen Transition from DLA to PIP
Hi, has anyone recently experienced the PIP telephone assessment for a 16 year-old moving from DLA to PIP? I've been informed by an assessor at Capita that my child will have to attend the telephone assessment with me (the appointee). This will be extremely distressing for my child (diagnosed with autism), the conversation…
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EHCP shall I stop?
Hello to everyone. Dear forum members please help me. I am looking for some advice regarding my son, who is currently in Year 11 and has an EHCP. He would like to continue to a mainstream school Sixth Form and study A-levels.I am worried about whether having an EHCP could affect his chances of being accepted into a…
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DLA Mobility Timescales
Hello automatic review forms came out as son turned 5, DLA received them back 9th march. Can anyone advise of current wait times for a decision?
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Home schooling
I am just after some advise, we are considering home schooling our boys for secondary school as the local offer is very limited. The LA say if we do they would no longer be supported with SALT and OT. Does anyone know if this is correct? Both have OT and SALT as part of there EHCP.
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Hi, my name is proudmamato7! Is this enough supporting evidence from school?
hi everyone, I’m just wondering if anyone thinks this is enough supporting evidence from school(in blue) he’s obviously masking quite a bit in school.
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18 month old grandson has a mild(ish) club foo
My 18 month old grandson has a mild(ish) club foot. It is now causing him to trip up constantly and his mum doesn’t like him walking unless he is on grass or carpet. He has never seen a doctor about it and has not had any visits from the health visitor. He needs help. What is the next step we should take to see a…
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Daughter gone into residential school
HI i have a 16 year old non verbal autistic daughter with complex needs. Tonight is her 2nd night away at residential school. I so miss her and as shes never been away for more than 2 nights restbyte i fret she is now realising that she should come home soon and will become upset and anxious when shes starts pointing at…
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Child with undiagnosed severe learning disability
Hello all. I'm new here. I have a 10-year-old daughter who's autistic and has a severe learning disability. I'm struggling to get a learning disability diagnosis for her when her disability is 100% obvious. I'm looking for advise about getting a diagnosis for my daughter, please. My daughter was diagnosed with autism when…
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Help with finding accessible hobbies for teen
Hi ,I'm just wondering if anyone has any good links or advice on where or how to start helping our cp/asc teen get involved in a hobbie , they have been in autistic burnout for almost a year and not at school due to this so lost any peer support or any feelings of worth , they currently have showed an interest in formula 1…
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Hi, my name is Malemax96!
Hello, I would like to share a little about what has happened in recent months with my son's benefits. My son is on the autism spectrum. He was diagnosed when he was 2 and a half years old. We applied for DLA, which was accepted and he was given middle rate. Then I applied for carer allowance, and it was the same. My son…
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Hi, my name is Rachjono2014! Appealing against issues with my son's college transport, any advice?
Hi, I am looking for support or advice, my son attends an SEN college he has Autism and communication difficulties likened to Selective Mutism and toileting problems and was using minibus travel that was awarded but due to issues with him feeling threatened with other children talking at him, toileting issues due to…
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ADHD benefits for my child
hi guys I’m new to this so please forgive me if I do any thing wrong. My name is miv and my 15 year old daughter has just been diagnosed with adhd. She believes that she is entitled pip or whatever. Could some one please let me know if this is true and if so how to apply thanks for now guys xx
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Hi, my name is clare12311! I disagree with daughters award. It should be higher.
Hi,my daughter has quite a few issues as cerable palsy on autistic spectrum global delay no danger awareness!shes only on low mobility which i thinks wrong .
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Child with anxiety.
My daughter has been home schooled since last October,I've manged to get her an appointment with a mental health worker.Do you think they can help me to get her into a smaller pupil size school with children that also suffer with what she suffers?
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Hello from a Dad who wants to support his son to the best of my abilities
Hi all, Ive got a 12 Yr old who we recently started to homeschool. The struggles are there, small upsetting events cam lead to meltdowns and larger issues can be explosive meltdowns. I see adhd as a super power just need to understand how best to help him. Fpr instance teaching him to boil an egg because it firstly fell on…
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Scottish child disability payment
hi I applied for child disability payment for my son 11 weeks ago and I’m still awaiting a decision. How long did it take you to hear back? he’s away to be one in three weeks. I’m also wondering if we can apply for the UC side of it too and how is that affected if myself and his father are both working? Thanks in advance
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info about what will be available 18 year old in terms of housing/care/work?
I have joined for my 18 year old daughter. I am her full time carer but eventually she wants to be living independently of me. She is a full time powerchair user. We find it very hard to find out any information about what will be available for her in the future in terms of housing/care/access to work etc and would welcome…
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Hi, my name is Katycmrs!
Good afternoon all Hope all is well. Im here because im on day 2 of summer holidays and im struggling with my adhd and autism daughter already! There seems to be no support for me coping/managing her behaviour and i feel overwhelmed. How we all coping? Thanks
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Advice for childcare payments for child receiving DLA
Hi, hope everyone is doing well!! I am in a couple and I work full time whilst my partner works self employed and receives carers allowance for our son who gets DLA. This month we have been declined childcare for our son as they said the cost is excessive and my partner should care for him as he is his carer. We also have…
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Hello 👋🏻
I'm a mum of 2. I have taken the leap and de-registered my 13yo son from mainstream this week to homeschool. My gut was telling me it was the right thing and already I have seen an improvement. My son is known ASC and we are on the pathway for ADHD. He had a burnout in 2024 and since then I don't think I have ever seen him…
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First time flying - severe cp' -oxygen hire- transfers
Looking for advice specifically around oxygen hire, transfers and managing flying for the first time with a complex child please 🙏 Our son is 2 and half , gmfc level 5, immobile, non verbal, with epilepsy, Tof/oa, dystonia, severe gastroesophageal reflux, visually impaired, chronic lung disease, gastro jejunally fed and…
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caring for a teenager
hi every one i am a carer for my daughter aged 13 who has asd anxiety and ebsa and sometimes its very draining and i find it makes my fibro and osteoathritis, and other conditions reaally flare up, wondering if anyone else on here is in the same positiion and any tips for support thanyou
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Hi, my name is Julia247! How to overcome barriers with other parents?
Hi, I’m a Grandma, looking for ways to support my family with a child with AuDHD in mainstream. In addition to supporting their child, they face lack of understanding from other parents. Has anyone successfully overcome these barriers and educated the school community? The teachers are excellent, it is the wider, negative…
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Hi, my name is welbeck! My ASD teen has noise sensitivity, any advice?
Hi,my ASD teen and noise sensitivity
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10 month old -, seeking advice on early intervention & intensive therapy
Hi everyone, I’m a first-time poster and honestly don’t quite know where to start. Our daughter is 10 months old. From quite early on I noticed some things that concerned me — a very sensitive Moro reflex and very clenched fists — but I hoped she’d catch up. It wasn’t until 6 months that we were referred to paediatrics.…
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School SENCO ignoring requests for SEN support – advice needed
I am an AuDHD parent and my child shows many autistic traits (social communication, sensory, emotional regulation difficulties, and high anxiety around school). I first raised concerns with teachers at Reception and formally requested SEN support and support for an autism assessment in September. Since then, the school has…
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Hi, my name is Tc57!
I have a daughter who is autistic and has sensory, auditory processing disorder, anxiety and is in year 10 and is struggling with her learning , so far behind that it takes a lot for her to get into school , She has mental health issues and self harms and is on the watchlist committing suicide due to the fact that these…
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Advice on autistic child
I hope you're well. I’m reaching out to you for some advice, as I’m feeling unsure where else to turn. My daughter is 10 years old and undiagnosed autistic, though we are confident she is and shes been on MATT pathway a few years. She experiences extreme anxiety around school, and even stepping onto the playground is a…
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Private Educational Psychologist
Hello all. I’m considering arranging a private Educational Psychologist assessment for my child, to better understand her educational needs and what support or provision may be most appropriate for her. This would be the first time I have gone privately for this type of assessment, so I would be very grateful to hear from…
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Anyone else?
Does any one else have anxiety about what others think of you as a parent because of your child’s behaviour related to their special needs?
