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Hi, my name is Marirose07!
I' m a widowed Mum of one teenager close to leaving school, who is high functioning autistic, severe sensory issues, learning difficulties, comes in about age five. Non verbal, and since June last year also epileptic suffering multiple types of seizures, and due to doctors not understanding what was happening, it took a…
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Refused college place due to EHCP
Hi my son has been refused a college place due to his EHCP, he has Autism, is not a bad lad, just struggles emotionally and that's only if someone was to bully him. I'm in contact with SEN at the college and even she said he is capable of going to the college, he has his heart set on mechanics, is very knowledgeable in the…
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My daughter turning 18 in August and she's been getting PIP since March
Hello and hope everyone are well. My daughter will be turning 18 in August and she's going to be starting full time university in January 2026. She's been getting PIP since March and I have informed UC twice because the first time I informed them, they did not add on the child disability element on my award. I was told to…
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Dla for my son
hello I have filled in some forms for my son but looking at them I feel like giving up I don’t no how to write or explain he’s daily stuggles and I am not good at wording things correctly So my son needs a lot of support in school, he is suspected asd/pda and I have he’s pathway referral report He also needs a mri scan for…
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Hi, my name is Elise123! grandson is 15 years old and was diagnosed with ADHD, struggles with school
Hi can any advise me please, my grandson is 15 years old and was diagnosed with ADHD 5 years ago. He struggles on a daily basis with school , as he talks a lot. He has a high hyperactivity and low concentration, anger issues etc. He was receiving DLA for a few years and now out of nowhere, they have stopped it over a year…
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Deputyship for son with severe learning disabilities
Hi Our son turns 18 in a few months. He has severe learning disabilities and no ability to make decisions for himself on financial or health matters. At the moment he only receives benefits but if either his mum or dad die, he could receive property/money. Also it's likely he'll move into supported living in a few years.…
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Hi, my name is VaniC!
Hello All.. I am looking for a support group for parents with children with Cerebral Palsy (CP). My son is 14 years old on the severe spectrum. I have never reached out to anyone or joined a support group. I live in Northwood, London.
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Hi, my name is amylou8850! I have joined this community because I am really struggling to meet my...
Hi I have joined this community because I am really struggling to meet my daughters care needs she has complex medical needs and challenging behaviour and it is becoming increasingly difficult to manage
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CP Multi level Surgery
HI my son is 10 and will be having multilevel surgery later this year and I wondered if anyone has any advise/information/tips they could share. As a family we are all pretty nervous about it but are hopefully doing the best thing for him. He currently uses a walking frame and sometimes a wheelchair but he is being more…
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Respite
hi everyone I’m obviously a new member here and Im hoping everyone is ok I have a 13 year little lady who has severe learning disabilities and a wheelchair user. I’m a single parent trying to make the best life for us I do have a sw and have lawfully been recognised I need support and was awarded 4 hrs pw p/a and 2…
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Dla
hi I have put in a new claim my daughters scan date is the 20th March I rang them and they don’t give me info about this does anyone know when I will get a decision
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Advice on refusing to leave the house
Hi there, I’m new to the forum, any help is very welcome and I apologise for such a long read, I have a little girl age 10, with autism, also waiting on diagnosis for adhd, as from the Easter break she has refused to go out anywhere and to school, which we are shocked at as she’s always loved going to school…She has high…
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School threatening fines
Hi everyone, I’m looking for advice and support around my daughter’s school attendance and a distressing letter I’ve received from today from the headteacher. My daughter, is 14 and has autism. Over the past 2 year, she has experienced persistent bullying, isolation, and a complete breakdown in trust with her school. This…
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Hi, my name is lucy19!
hello I am currently gathering all evidence for my son from school to support a dla claim the school suspects asd/pda profile and have referred my son to the neurodevelopment pathway I have a copy of the refarrel with strong evidence explaining what my son struggles with in school could I use this as evidence He has…
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Dla claim
hello I am in the process of gathering evidence for my son. He is 8 and struggling day to day. he stuggles more in school the teachers have refarrerd to the neurodevelopment pathway for suspected asd/pda however I have had a copy of the refarrel that expresses a lot of what my son stuggles with and what support is in place…
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Dla
hi my son has anxiety and has sleeping problems has suffered with them from a young age he was on melatonin and has now been prescribed adult medication due to melatonin not working he has at least 1 hour a sleep a night he pulls his eye lashes out due to anxiety he is struggling in school n his attendance is very low due…
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Hi, my name is cathy55! Where can I buy clothing that will not rip my daughter has autism and ...
Where can I buy clothing that will not rip my daughter has autism and is ripping clothes every day up to 4 outfits a day
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I am so stressed with being a SEN Parent
I am currently a single parent to 2 sen children aged 12 and 4. My partner left just before Christmas. My life is incredibly stressful and doing it alone now is even harder. Both my children are on the ASD AND ADHD pathway. My eldest has attempted suicide, has school anxiety and I have to collect her everyday...my youngest…
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Hi, I'm new here, soon to be single mum with a disability, I could do with some advice.
Hi all, I'm new here, I'm a soon to be single mum with a disability and I'm hoping to get some advice and help as I'm feeling very overwhelmed right now
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daughter refusing to attend school - suspect PDA?
Hi everyone, Charlotte here. My daughter is undiagnosed but going through the process. She’s refusing to attend school and has not been for 8 weeks now. Anyone here with children who they suspect has PDA?
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Hi, my name is welbeck! My ASD teen has noise sensitivity, any advice?
Hi,my ASD teen and noise sensitivity
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Disposable swim pants
Hello, I am struggling to find any disposable swim pants to fit my 3 year autistic and non verbal son. He weighs 21kg and in 5-6 year clothes (hes very tall) and I can not seem to find any at all. Are they even a thing to fit this size/weight? Has someone been lucky enough to find any? Any help or pointers in the right…
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Struggling
Hello all, I'm not surebif anyone can offer any advice or information about my current struggles or.not, but at this point, I don't know what else to do or where to turn. I was diagnosed with Fibromyalgia in 2018 after over 20 years of dealing with pain and other symptoms which all declined year after year, I also have…
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EP report/ehcp plan how accurate/
I’m looking for advice regarding my 14 years old daughter with Educational Psychologist (EP) report, which I’ve only recently found after her latest EHCP annual review. I’m still learning about the EHCP process, but I’ve always felt something didn’t seem right with her plan. The EP report is nearly 3 years old and was…
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Suspect our son has ADHD, any advice?
Both me and my husband are in our 40s and have ADHD, our son is 5 and we also think he may have it. The lack of sleep we both recieve is just awful,and is severly effecting all our mental health. We have asked for support from drs and other professionals but nothing seems to help him, we are at a total loss and need some…
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Hi, my name is Kermit_12!
Hi my child is autistic and has PTSD symptoms on going for almost 5 years she has been out of education and has now got an EHCP the content in the EHCP doesn't reflect her needs as written in reports the local authority are wanting a teacher to come to our home this would tramitise her as we still can't mention school…
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Hi, my name is caz2025! Looking for groups for my disabled daughter, any advice?
i am a mum of a disabled daughter and would love to find groups they could go to. They are in a wheelchair
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New member
My daughter has CP is hypotonic, has a learning disability and is on the autistic spectrum. I would like her to be able to join here with her own account. Is this possible. She could do with making some friends outside her very small circle of existing ones.
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Whats the wait for a decision on a child disability claim?
hi wondering if anyone could help me I made a child disability claim in October but was late handing the second part in so when I send that in the called and done the first part again that was in January does anyone know how rough the wait is for decision and do they take support and social work letters into account mines…
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Looking to Move to another city
Hi Everyone, it's nice to be part of a community here. I am a father of a 5 year old boy who has ASD and ADHD. We moved to Birmingham from London in 2023 due to economic reasons but shortly afterwards my son was diagnosed with these conditions, now I am finding really hard to get any support from the LA as the council is…
