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Did you grow up with a sibling with ADHD or autism? (Participants needed)
This study explores the how support during childhood associates to adult psychological well-being among siblings. Within families where a child has a neurodevelopmental condition, siblings can often play important roles within the family system. Research suggests that siblings may take on additional responsibilities, adapt…
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Did you grow up with a sibling diagnosed with autism and ADHD?
This study explores the how support during childhood associates to adult psychological well-being among siblings. Within families where a child has a neurodevelopmental condition, siblings can often play important roles within the family system. Research suggests that siblings may take on additional responsibilities, adapt…
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SEND Research opportunity with the Council for Disabled Children
University researchers and the Council for Disabled Children are running a UK-wide survey about how health, education and social care services are provided for disabled children and young people. We are interested to discover and what a high-quality service might look like. This is part of a programme of research funded by…
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UK-based parents and caregivers of children with scoliosis needed!
Hi everyone! I'm a psychology student at the University of Bath researching something that often gets overlooked: how caring for a child with scoliosis affects parents and caregivers. While medical care rightly focuses on the child, I working to understand the caregiver experience too - how you perceive your child's…
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Feedback on accessible housing if you are homeless
Have you stayed in emergency or temporary accommodation that was not accessible for you? Are you likely to need emergency or temporary accommodation in the next couple of months and are worried it may not be accessible for you? We're creating a new webpage for the Scope website about accessible housing if you are homeless…
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Women and Theatre: Women with CP Telling Their Stories
Bridging The Gap Funders University of Birmingham ESCR IAA User Engagement Fund The Burdett Trust for Nursing Bridging the Gap is a partnership project with Women & Theatre and the University of Birmingham. It responds to research undertaken by Dr Sonali Shah, about the experiences of women & girls with Cerebral Palsy in…
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Project for parents with learning disabilities!
Hello! My name is Robyn, and I am running a project with parents who have a learning disability. The project is about a questionnaire for people who are having a baby. The questionnaire helps people say how confident they feel about becoming a parent. You would meet with me, complete the questionnaire and then answer some…
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Dystonia IMPACT study
DYSTONIA IMPACT STUDY UPDATE The Dystonia IMPACT Qualitative Study explores what matters most to children and young people living with dystonia and other hyperkinetic movement disorders, and to their families. We are pleased to share that since opening, the study has recruited 27 parent/carers and 15 children and young…
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A Better way to Understand Pain in Cerebral Palsy Study
How do adults with cerebral palsy experience and communicate pain? I'm Rebecca Taylor, a researcher at the University of Ulster, studying this important issue. Many individuals with CP struggle to express their pain, which can hinder their access to support and treatment. I'm seeking insights from adults with CP,…
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How adults with cerebral palsy successfully confront and cope with ableism
Back in 2024, Scope took part in a study about cerebral palsy (CP) and ableism, alongside Ability First, Cerebral Palsy Australia, Scope Australia, Cerebral Palsy Support Network, CP Achieve, Cerebral Palsy Support Network and Healthy Trajectories. Purpose This study focused on how adults with cerebral palsy successfully…
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First christmas alone research
A week before Christmas, I become a researcher again. Not the neat, academic kind with clean questions and manageable variables. The kind you become when your life turns into an experiment you didn’t consent to and your only tool is attention. I study my own days the way a historian studies a crumbling archive: carefully,…
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Research Opportunity: Were You A Premature Baby?
Summary Around 1 in 10 babies worldwide are born preterm, before 37 weeks of pregnancy. Thanks to advances in neonatal medicine, 95% of babies that are born preterm now survive to adulthood. We know a lot about the challenges these babies face early in life, but much less about what life is like when these preterm babies…
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Join an Exciting Project on Cerebral Palsy
We need children diagnosed with Cerebral Palsy and their parents to help with a PhD project. Your insights can help improve condition management through technology. Take part in shaping the future! What You Will Do: • Co-design Sessions: Share your experiences through fun, creative activities. Eligibility Criteria: • Age:…
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FIDELIO Project Falling in the lives of adults with Cerebral Palsy
FIDELIO Project Falling in the lives of adults with Cerebral Palsy: Taking action to prevent, manage, and support through the life course Can you help the University of Nottingham and Scope? Purpose of the study is to collect information about: Why adults with cerebral palsy fall, trip, stumble – from standing, from a…
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Consequences of Falls in Individuals with Cerebral Palsy
Please join us to learn more about the Consequences of Falls in Individuals with Cerebral Palsy Next Monday, October 27, at 1 am UK / 8 pm ET, clinical scientist Liz Boyer, PhD, will share findings of her study about falls in people with CP called “Consequences of Falls in Individuals with Cerebral Palsy.” This…
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Research Opportunity - Parents of adult children with an Intellectual Disability
Hello everyone My name is Stephanie Bremner and I am a Trainee Clinical Psychologist studying at the University of Oxford. I am currently completing research exploring factors which may impact the quality of life for parents of adult children with Intellectual Disability (Learning Disability). Can you help? Name of study…
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Help Nexer uncover the 'Hidden Journey' of online shopping
Nexer are looking for people to fill in a survey to find out about the 'Hidden Journey' of online shopping for disabled people and their families. You can find out more about Nexer and their research below. If you have any questions about the survey please contact Nexer. Human-centred design agency Nexer Digital are…
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Cerebral Palsy and Stigma Study with the University of Surrey
The study has now been published in an academic paper, and I wanted to again express my thanks for all the support that you gave with the project. You have all been thanked in the acknowledgements for the project, as we couldn't have done it without you. Description of study A University of Surrey researcher and 2 adults…
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Participants wanted: can you help us tackle online ableism?
Hello! My name is Sarah Hill and I am a disabled researcher based at Newcastle University. I am working on a project exploring disabled people’s experiences of ableism online. The research has been approved by the Humanities and Social Sciences Ethics Committee. The aim of this research is to find out more about disabled…
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Help Amplifying nuerodivergent voices in autism interventions
Hello! I am Joe Pasquariello, a Neurodiversity-affirming PhD student at the University of South Alabama. I am conducting an IRB-Approved online study on parents of autistic children's perceptions and acceptability on common autism interventions. While we want to hear from all caregivers, it is crucial that we hear from…
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Research Participants still needed!
Hi All, I am looking to speak to a few more women about how disability and intimacy are represented on Instagram! To take part, you must be over 18 and self-identify as a woman with a physical impairment. You do not need to have Instagram! The expression of interest form can be found here - https://lnkd.in/g9PFXrcn - or…
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Research Participants still needed!
Hi All, I am looking to speak to a few more women about how disability and intimacy are represented on Instagram! To take part, you must be over 18 and self-identify as a woman with a physical impairment. You do not need to have Instagram! The expression of interest form can be found here - https://lnkd.in/g9PFXrcn - or…
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Could You Help with Standing Frame Research?
Hi! I am a researcher who is looking to co-design research around standing frames. It would help me to know about your experiences of standing frames. How did your children find using a stander to begin with? How is it now? How was it for you as a caregiver when you were introduced to supporting your child to use a…
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Share your volunteering experiences
Are you an autistic adult in the UK or Australia who has volunteered for at least 6 months? You are invited to take part in a research study exploring how volunteering influences the identity and wellbeing of autistic people. What does participation involve? A one-off 45–60 minute interview (or two shorter interviews, held…
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Would you like to help shape a study on autistic experiences of volunteering?
Name of study: Volunteering, Identity, and Wellbeing in Autism Description of research: Through interviews with autistic volunteers, this qualitative study aims to better understand if and how volunteering impacts the identities and wellbeing of autistic adults in the UK and Australia. What is the purpose of the research?…
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TheAlienGame - A Study of Emotion Recognition in Children
Hello, My name is Will Turton, and I am a Trainee Clinical Psychologist at the University of East London. As part of my doctoral research, I am running a study designed to explore and improve how we assess emotion recognition in neurodivergent children, aged 8–11. The project is called ‘The Alien Game: A New Game for…
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Research Participants wanted! Disability and Sexuality research
Hi Everyone! My name is Bev Enion, and I am a second-year PhD researcher at the University of Sheffield. I am researching how disability and intimacy are represented on Instagram. An Instagram account is not needed to take part in this research. I am looking to speak to women who are over the age of 18 and who have a…
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Participants needed!
Are you physically disabled? If so, please consider taking time to be a participant for this research project. Attached is a QR code which will ask you some questions and if you are eligible and happy to be interviewed that would be appreciated to contribute to physically disabled daily lives. Thank you for your…
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We want to hear from you!
We want to make research more accessible for disabled people and their families. We're running a short survey to understand your experiences, what works well, and what needs to change. Your insights will help shape more inclusive research practices. As a thank you, you will have the chance to enter a £40 prize draw. Here…
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Looking for Participants
Hello everyone! I'm a Master's student with Cerebral Palsy conducting research on the experiences of young women with physical disabilities. I'm seeking participants who are: -Female -Gen-Z (ages 18-28) -Living with any physical disability (not limited to Cerebral Palsy) -Based in the UK Your voice and experiences matter,…
