SEND Research opportunity with the Council for Disabled Children

Richard_Scope
Richard_Scope Posts: 3,928 Cerebral Palsy Network
in Cerebral Palsy Network

University researchers and the Council for Disabled Children are running a UK-wide survey about how health, education and social care services are provided for disabled children and young people. We are interested to discover and what a high-quality service might look like.

This is part of a programme of research funded by the National Institute for Health and Care Research.

By sharing your experiences and views you will help build a clearer picture of what families currently receive, what they need, and how to ensure services are better organised and delivered in future.

 

The survey should take no more than 20-30 minutes, depending on how much detail you share in open text responses  Find out more and complete the survey
 

If you experience any issues completing the survey, please contact the research team on pdg.neurodisability@NCL .ac.uk or 0191 282 1379.

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Comments

  • dolfrog
    dolfrog Posts: 597 Trailblazing

    From my perspective and my families experience, the UK health, educations, and social care services need to be trained to understand the four types of Auditory Processing Disorder, the listening disability.

    The Temporal type of Auditory Processing Disorder has been explained by international research of the last few decades as the main underlying cause of both Specific Language Impairment (recently renamed Developmental Language Disorder) and Developmental Dyslexia.

    So the UK services need to get up to date with international research and start providing the services that ,may like me and my family need.

  • SheffieldMan1976
    SheffieldMan1976 Posts: 618 Connected

    It'll be 34 years in April since I left compulsory full time education, and even back then, SEN education was, and apparently still is, awful.

    The SEN support assistants are overstretched and get almost NO help from senior management, and the worst thing for me was the rampant/intense bullying, being an 11 year old from lower Walkley at a school in Norton also didn't help, I was considered an "outsider" even without the disability related issues.

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