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Sleep help - 5 yr old
Hi all, my daughter has been having extended wake ups for well over a year but used to self settle. Now she wakes and comes in to our room but can take hours to go back to sleep. She’s so restless and then starts getting aggressive where she’s so tired. It affects her next day and we’re all struggling. Would love some…
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Hello, my name is MaddyB. Speech and language assessment for my toddler.
I am the parent of a toddler who suffered a brain injury as a result of Meningitis when a baby. We are playing the waiting game to see the extent of the impairment. They are about to have a speech and language assessment (we are paying to go private for this) and they are on a long waiting list for an assessment for a…
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Hi, my name is fudgee!I have a son who is autism and PDA . Its great to share ideas
I have a son who is autism and PDA I am also studying child psychology and speech and language to help support him, we have gave many issues and overcome so much, it’s great to be part of the community here to help and share ideas.
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Hi, my name is christina1513! Group for my daughter, who has autism and anxiety
Hi, I have a 16 Yr old daughter that has autism and high anxiety. She has been out of school for 3 years and has missed out on making friendships with people of a similar age. She loves arts and craft, sewing, crochet and would like to chat to someone similar and maybe meet up. Can anyone point me in the right direction.…
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Advice on rights around daughters care needed
I have joined this community because I need advice regarding how to help my Daughter. she is presently in a residential flat but will be having 28 days notice served on her soon as she has very challenging behaviour/learning disabilities/complex needs and is undiagnosed at the moment with detachment disorder and this is…
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Claiming DLA - son gone to college
Not sure what to do. As we all know, the PIP/DLA people are not the fairest so I'm not sure what to admit to. Both PIP (went to tribunal) and DLA (appeal) they gave him zero points to start with. In my experience they try not to pay anyone. He was diagnosed on the Spectrum 5 years ago now. He REALLY struggled but now hes…
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I have a teenager with autism and mental health who has become socially isolated
Hey I was wondering if any one can point me in the right direction I have a teenager with autism and mental health who has become socially isolated and has not left the house because of her mental health I was wondering if there are are any nhs hairdressers or advise as she can’t leave house for any appointments due to…
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Fragile X Syndrome
Hi everyone, my name is Ali. I am 42 and the mother of 4 boys, 15, 17, 19, & 20. My two younger boys have Fragile X Syndrome. My 15 yr old is mentally about 10, but my 17 yr old is mentally 3 & always will be. Is there anyone else with a child like my 17yr old? I feel very alone and stressed out most of the time. I would…
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What to expect with jejunostomy feeding (PEGJ)
The heading of this sounds like we are new to this but Noah, our 5 year old son, has had a PEGJ since being 5 months old. We are SO frustrated right now. Noah had undergone very few tests to get to the bottom of why he cannot thrive eating orally. I was a nurse for 20 years & now his full-time carer. We have been faiuled…
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mobility scooter concerns and other tips re: elderly father
hi-i'm new and wasn't sure what section to put this in..... Hoping someone can give me some tips and help. My father who is 80, uses a mobility scooter to go to the shops regularly in his area. The area is a congested 'ghetto', with youth racing around in cars and turning corners fast. The pavements are all taken up by…
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Hello, my name is pipsqueak my sister has recently become disabled
I am not disabled, but am here as my sister has recently become disabled after having a cardiac arrest, heart attack and a severe stroke. I'm not sure where to go to help her, but I want to help her as much as I can. I hope it's OK for me to join.
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Support for pre-teen with CP
Hello, I am looking for some advice on how to help my 12 year old son who has mild CP. He started year 7 in September and he has become withdrawn and very self conscious. Whilst I understand this is normal tween behaviour - he has started to speak very negatively about having CP (which has never been a big deal before) and…
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Son diagnosed with ASD, on housing list
My sonnwas diagnosed with asd in March 2022 after a 7 year battle for help. We live at my parents home with my younger brother. We sleep in a box room sharing a single bed. I struggle to get him to school and were always tired as he will be 9 this march. I applied for the housing list in May 2022. I recieved a decision for…
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I'm really struggling
I don't know where to start. But I feel like I don't want to be here anymore. I'm really struggling to be around my 4 year old. She has rare conditions and is non verbal and lately all she does is whinge whinge whinge. I have ADHD and the noises she makes Peirce my ears like a knife and I end up leaving the room. Im…
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I am worried about my daughter with cerebral palsy. She accuses me of destroying her chance to walk
This post is actually three posts that I have posted on different subreddits for people with disabilities. However, I have not found support there. Maybe I can get support here? I wonder if it's me demanding too much , or if my daughter may be depressed. To be clear : We are not from US or UK My daughter is 27 years old,…
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Hi, my name is Scott need advise
Hello I'm wondering if someone could help me with some hints and tips for getting my 3 year old to sleep. She was born with part of her brain missing and has seizures since the last one no matter what I do she won't sleep till 4 or 5 in morning and back up at 8 and I can't seem to help her making me feel like I'm a bad…
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Interested in looking at prepaid debit cards and the most useful forms of ID for my son
I'm interested in looking at prepaid debit cards and the most useful forms of ID for my learning disabled son
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cuppa tea and a chat?
Does anyone know of any social groups in the Sandwell area for physically disabled adults and their carers?
Both my Wife & myself are feeling pretty isolated, we'd love to see a different face and meet new people for a cuppa and a chat
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Hi to all. My sister is being nasty to me about my past. What can I do to help myself?
My other sister who lives in Ireland is been nasty to me about my past because I find it very hard to deal with what happened she's says I should forget what happened and move on but their is so much to deal with trauma what I've been through she not me she hasn't had my experiences and she dosnt understand how I feel…
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Looking for advice for my 5 year old sister. She may have autism and ADHD
Hi. I’m looking for any kind of help for my sister. She is 5 years old. She is typically well behaved and kind but recently it is becoming more often where she gets violent and won’t listen. I cant find a trigger for this change of behaviour, it’s literally like a switch has been flipped. Sometimes she lashes out at…
