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Hi my name fiona
Hi im fiona im new to this site. Im a carer to my 10 year old son who has autism anxiety and ocd. Im hoping to get some advice as my son going through a bad time with his ocd. His is anxiety was high but thats fine so far but his ocd is very high. He keeps asking for wipes so he can wipe is arms and hands. He asks if there…
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Work aren’t very supportive
Hi everyone, I have a 5year old daughter who has asd, life is very challenging and i feel extremely depressed. I’m currently on anti-depressants and ant-anxiety tablets and I’m still really struggling. I have scoliosis myself... I’m really struggling to find a balance between work, being a mum, caring for my daughter, my…
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Hi, my name is Anna_Louise! My daughter has ASD and dyspraxia and needs some help with life skills
Hi I'm the mother to a 17 year old daughter with ASD and dyspraxia. I also have dyspraxia and am sure I have ASD but have never got tested. I'm trying to help her with life skills and am trying to find a course to help because I'm finding it really hard to help her.
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Stressed Disabled Parent
Hi everyone I’m new here, I’m basically on standby for a kidney removal it’s been nearly 3 years of going back and fourth to two different hospitals in taxi as I’ve been advised not to go on public transport. I have a server Autisic daughter who’s lashing out on me, I’m constantly living on painkillers and can’t work. I’ve…
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Hi, my 8 year old son has HSP
My 8 year old son has HSP. His walking is very limited and mainly uses wheelchair. He takes max dose oral baclofen. He’s been offered an ITB pump to help reduce spasticity and make everything a bit easier. Currently weighing up the benefits, versus risks and implications of living with lifelong implant. Would be interested…
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Hi, I'm robnvik! Daughter aged 10 has started her periods and they have sent her off the rails
we have a daughter age 10 and she has started her periods and they have sent her off the rails with psycosis and wondered if anyone has had any history of this she has pvl and cerebral palsy
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housing
im a tenant of a housing association, they have rented the house next to me to a couple who constantly smoke cannabis outside their house, weve had to stop opening windows, and cant even go into the garden as the smell is so bad, the housing have said just fill in an anti social form, no help as usual, this is the second…
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Hi, my name is mamalou72! Can my daughter claim carers allowance?
My 17yr old daughter has basically become my carer due to severe deppression and mental health. She's at college 3 days a week and I claim child benefit for her. I'm support Groupon esa and I get standard rate pip. Can she claim carers allowance for helping me
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Don’t know what’s wrong and struggling to find help.
Hi everyone, I’ve joined this forum as I’m at a loss as to what’s wrong with my son and what to do for the best. I’ll try to keep this brief! 5 weeks ago my 10 year old son woke with sore legs. It was straight away bad enough to limit his mobility and keep him off school. Within 24 hours the electric shock type pain…
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Autism development query. Anyone have experience of autism in young children?
Hi, My son has a recent diagnosis of severe Autism. He is 3 and we are applying for an EHCP. We have been told it may be blocked because he is starting bucket therapy and object association. And they want to give this time to work. My concern is he is nowhere near ready for school in a years time as he is non-verbal and…
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Hi, my name is andersf! Ranting about loss of respite care ?
Just found out that the residential home at my son's school is closing so our respite care package is stopping ?? feeling cross, frustrated and upset and abandoned! H has very complex physical, mental and health needs and overnight residential care has been an absolute lifeline for us as a family. Social worker is looking…
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Hi, my name is Piggy11! Looking to gain support from likeminded parents
I am looking to gain some vital help with likeminded parents - feeling the struggle!
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Hi, I'm HippyRick! My partner's child is in care due to her being disabled, can anyone help?
I’ve joined the community because my partners child is in care due to her disability. I’m with her now, but also disabled and they are saying we are not the right parents for our child despite him screaming to come home with his Mammy at every contact meeting. Our solicitor is useless and we believe he is in cahoots with…
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Can I use my DP to pay for the cost of taking my PA with me on holiday?
I’ve booked to go on a short 4 night holiday in July and need my PA to come with me to provide assistance. Can I use my DP to pay for the cost of taking her? There is more than enough money in my pot and one of my goals on my support plan is to travel more. There is not a specific action plan for that goal, only to bank…
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Carers allowance help
Hiya Have informed all the necessary benefit sections about temp change of circumstances ie my son is in hospital...my sons PIP has been suspended untill he comes hope, which is expected to be in the next week or two. I recieve carers allowance and informed them online but when I rang about my income support the said they…
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Can you claim backdated SSP if GP can provide sick note for that period?
Hi all, my wife has been acutely unwell since February, is it possible to claim backdated SSP if the GP can provide a sick/fit note to cover that period?
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Hi, my name is Kay1013! My son has autism, and I'm struggling with his sleep
Hi
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Friends for my daughter like her, and getting chiropody on the NHS
Hi - i have a 20 year old daughter with cerebral palsy. She does have friends, but still becomes disheartened because her disabilities are more physical than mental/learning and she is still keen for a close friend with whom she feels she has a lot in common. We are not disrespecting people with mainly learning/mental…
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Advice, guidance for my daughter transitioning to adult life
I have join this group to get as much support as I can for my disabled daughter, she is 20 in August and learning problems, epilepsy, chronic pain syndrome, depressed because she has no social life. She wants to start some kind of work part time but she has limited mobility due to pain. She did want to stay on at college…
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Support Worker for Autistic Adult
Hello everyone. I would like to know of your experiences and contacts if you have any, for funding for a support worker for my 21 years old autistic son. He hasn't been out of the house for nearly two years. He was at a special school who took him out regularly (for a coffee, walk etc). Since leaving school at 19 he's…
