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Social Inclusion is for Everyone.
Good Morning All As a new member to discussion groups I would like to say "hi" I have worked with disabled people for over 16 years, supporting clinicians with equipment solutions to help enhance lives. Very recently I was visiting a school which provides for special needs and witnessed the anguish of a care member, the…
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childs behaviour out and about, feeling judged by the public, police called.
Hello my daughter has numerous disabilities such as suspected autism, proprioception disorder and selective mutism, whilst we were out in public recently on two seperate occasions where members of the public phoned the police because she was acting out with her brother, instead of coming over to speak with us we had the…
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not sure where to turn next
HelloThanks for welcoming me to this forum. I have never joined a forum before, so please forgive me if this isnt the correct aproach.To cut a very long story short. My father was diagnosed with MS,when i was 14. i am now 53 (39 years) and i am still lucky enought to have both my parents but sometimes i wonder??My dad is…
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I'm a full time carer for my sister. I need help to make sure she receives the right claims
Hi I am a 20 year old and i am a full time carer for my sister who is 10 years old. She cannot do anything on her own so she needs full time help and support. I need guidance and need all the help to make sure she receives the right claims. Thanks
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Hi, my name is Shekar Reddy! Can you help me find a one to one support worker for my daughter?
Can someone please help me to find one to one support worker for daughter with additional needs during this summer school holidays.
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Long fight Ahead. My daughter has been diagnosed with an autoimmune disease
My daughter who became so unwell 3 months ago so suddenly after many test coming back negative and I was begging the consultant not to give up I pleaded and pleaded with him my daughter has been admitted twice to hospital and last week was the last straw as the consultant was putting it down to mental health and not…
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Hi, my name is Alwiya4! How can I get help for my son who finds it hard to sleep?
How can i get help and support for my son who finds it’s difficult to sleep through the night
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Anat Baniel Method for children with special needs
Hi all, wondering if any parents
in Essex/ East London are familiar with, or ever wanted to try ABM (Anat Baniel Method)
with their children. I have used it in the past with my son who has Cerebral
Palsy and brain damage and it’s been great for him, but there are so few
practitioners in the country that it’s hard to…
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Hi, my name is keren77! Looking for local support groups for my 16 year old
H
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Leaving employment to care or someone
i am on ESA in the support group and claim PIP. My partner claims carers allowance for looking after me and works part time. What happens if my partner finishes her part time work to look after me. Will this effect our weekly living allowance.
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Hi, I'm Monsoon55! Despairing of getting SDS to help pay for my 11yo son's respite.
Despairing of ever getting SDS to help pay for respite care for my 11 year son with GDD. Council are saying there's no funding and I should apply again when he's 12 years old as he's entitled to more funding. Am widowed parent of two disabled kids, oldest is Aspergers. Not sure exactly who's getting the respite care, to be…
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Psychological help for my daughter.
Hi,I have a 29yr old daughter who has a learning disability and is on the autistic spectrum. Approximately 5 years ago she said she hurt a hand whilst dancing around in her bedroom. We have since this time had issues with her arm/hand. We went through various medical examinations and saw various experts in the NHS, the…
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Sharing experiences with Scope
Hi everyone! I hope everyone is doing well. My name is Emma, and I recently became the Lead Policy Adviser for the Children and Young People team at Scope. My first big project is looking at inclusive environments. I would love to know if anyone here had any experiences accessing soft play centres or any places like that…
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Seeking summer club for complex needs child
Please can you help me? I am desperately seeking holiday provision for my daughter, she is 7 years old and has complexed needs including learning delay and is unable to stand or walk unaided. Usually she would attend her school summer club but this year the provision has been offered to free school meal families only. This…
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Is there anywhere in Berkshire where I can pay for residential/day care for our disabled daughter?
Interesting to hear about respite support being taken away . Whilst our EHCP indicated respite care I was informed later that it was given in error. This was really frustrating given our requirement for this based on our daughters tantrums and impact on her sibling. I have appealed but it's fallen on deaf ears . Do you…
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Looking for your help. I'm planning to offer respite for parents during the school holidays
HiI am a tutor for children with autism and those with SEMH problems. I am planning to offer respite for parents during the school holidays and thought here would be a great place to find out what people need, your good and bad experiences that I can learn from and people's expectations. I feel I know a lot of this through…
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Discrimination advice
Hi, My brother is completely blind and lives alone since his wife died 3yrs ago. He's currently having renovations in his home and is paying a LOT of money for this to an expensive independant kitchen/bathroom company. I've been his eyes during this process and there have been a number of errors, some major like doors &…
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Step mum trying to understand ASD
Hi, I was blessed to become a step mum in 2019 to two very troubled children. I’ve been told that I’m doing a fantastic job but sometimes I don’t feel like I am. My son (15) was diagnosed with ASD in December 2020 and he is very loving on a good day, but my husband and I are struggling to parent him. When he doesn’t get…
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Advice for child struggling
This may be long, so I apologise now, but I don't know where else to turn, I guess this may be more of a rant? I don't know I am a mum to 4 children, G12, B9, b8, g7. G7 is lovely, a typical cheeky, occasionally misbehaving for her age, B8 is a sarcastic emotional little sod, G11 nearly 12, is far too grown up, but is…
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Survey of Parents' Experience of Services Accessed for their Children
Action Cerebral Palsy is a charity that works at a national level towards improving public, professional and political awareness of the issues facing children and young people with cerebral palsy. To support this, we would like to get new feedback from parents about their experiences of the services (both statutory and…
