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Hi, my name is Gemz66! I have HSP type 10. My medication makes me too tired. Any other options?
I was diagnosed with HSP type 10 after my dad finally received the diagnosis. He had been going backwards and forwards and was told he had loose leg. My mums persistence finally got him the diagnosis but as he is over 60 he receives no disability help. I have problems with my legs and now it’s affecting my arms. I’m also…
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Pain level / pain threshold
How
do you determine the level of pain that you are in? Everybody has different threshold levelsMy wife has started to query the amount of pain that I am in -because rather than walking to the bottom of the stairs, I now simply crawl all of the way - when I try walking, I get shooting pains down my legs and spine (My 6…
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Pain
Good Morning everyone I hope your all OK I haven't slept all night I think my osteoarthritis has spread to my hip and leg it's very painful it hurts to walk
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Is there any hope of pain relief?
According to the Spinal Specialist I have Degenerative scoliosis, degenerative spondylolisthesis and also a small disc protrusion, therefore I have had back pain for many years.Surgery was tried to release a trapped nerve but that made no difference and I was told that I would have to live with it, I am 81 but reasonably…
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Osteoarthritis walking bone on bone
Hi good morning , went to doctor's appointment yesterday she now trying me on injections into my knees and left hip , hopefully this we'll help with my diagnosis stage 4 arthritis which means I'm walking bone on bone they won't do surgery as I am overweight , on oramorph and MST and gabapentin for pain and nerve damage ,…
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Fibromyalgia and severe arthritis in knees and hip and grand mal seizures
Hi my name is Ashley I have the physiotherapist coming today I have fibromyalgia severe arthritis trapped nerve carpal tunnel they give me a gutter frame one I first used I was unable to walk due to the severe pain I am having everyday that Had broken on me after several years of users then they give me a Walker witch as…
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Can anyone recommend support for my shoulder and neck
i suffer from serious shoulder pain and neck pain. siting on the sofa is painful. at the moment i have a lagre pillow case that i put four pillows in. two at the bottom and two at the top. it helps to support my shoulder but is not big enough to support my neck. does anyone know if there is a pillow case outthere that i…
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Pain management
Hi for 2 years I been seeing treat triage al this time I thought it was pain management I’m so frustrated upset I have just found out that it not pain management and not once has my doc or any other professional pick up on this even tho I have phoned my doc begging crying on the phone in so much pain I am now having to…
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Denied ambulance to hospital appointments
I was diagnosed with chronic pain, fibromyalgia, Meniers Disease Syndrome, double incontinence, sciatica (as well as anxiety disorder) over 6 years ago and have ALWAYS HAD ambulances take me to hospital for all my appointments. In November 2021 UCLH hospital refused to send an ambulance to take me for my Audio-Vestibular…
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New member- chronic lumbar pain
Hello forum members- Just a quick synopsis, I’m 67 and have been in pain that’s gotten progressively worse for 3 years. Mostly right side just above the buttock, and has now worked its way into both my hips. Been diagnosed with DDD which is diagnosed as severe-L5 and moderate L4/L3. Had many steroid injections which…
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Hi, my name is NikkiS!
Good Evening Thank you for accepting me to the community! I have been suffering for just over 12 years with my back/legs which for a few years now includes feet/facet joints. I have had two major surgeries, approx 9 and half hours first and 12 hours second. This is aside from the infiltration and now waiting for…
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Disability, L5/SI + memory disturbance?
Hi my name is Adeel, has anyone else experiencing being disc protusion of the L5/SI + memory disturbance.
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Neurostimulator
Hi to you , I had a neurostimulator in my lower back on the left side where my bottom is put in a few years ago about 5 it worked very well for my bladder for about 3 years I then had it removed as it was really painfull * & stopped working properly 💔 Sometimes it was ok and sometimes it wasn't it Varied so let me know how…
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Upcoming spinal fusion surgery…
I’m 62yo male. 4 years ago, missed last step on ladder & injured a 20yo L4-5 inter-body cage fusion. Tried every possible non-surgical option but most recent scans were ugly & aligned with significant the increase of sciatica, IBS-C & the never-ending low back ache. Can’t keep going as is & scheduled for lumbar (L5-T11)…
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Hate the pain im in, with one leg shorter than the other
Im sitting here feeling a bit down. I have one leg shorter than the other due to an accident when i was a baby. during my 20s i didnt really feel the pain but now im 44 im in pain pretty much everyday and night. The pain in my neck and back is really getting me down. My doctor is rubbish and doesnt understand. Does anyone…
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Fibromyalgia and home help
Hi I'm new here and wondered if any of you have managed to get help with housework and self-care. I'm waiting for a support worker at the moment, my doctor referred me. I have struggled with keeping up with everything, even just teeth cleaning and getting myself a meal, it all piles up and up and only just about manage…
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Liquid Ketamine
Hi, Firstly, i'm not sure if discussion regarding medication is allowed. If not apologies and please remove. I had a spinal fusion last year which didn't go too well. The pain has continued to intensify and after several stays in hospital i've been prescribed liquid ketamine to replace oramorph. I'm not asking for any…
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Chronic pain in lower back
Hi there I’m new to this site so please bear with me x I have joined on here really cos don’t no what elese to do and was 🙏🏻 That I may get some advice or help with anybody who is experiencing same similar pain problems . I had herniated degenerated disc in my back from about me been 28 I’m now 46 it never really caused me…
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Hypermobility pain relief advice?
I have Hypermobility and am looking into EDS at the moment too. I am 21 and was only diagnosed in 2019 so am still getting to grips with how to manage my condition. I struggle with work as I cannot find anything at the moment which does not aggravate my back but I am still working with GP's and specialists to try and get…
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Bad back
I’ve managed to pull a muscle in my lower back somehow and have been in some pain lately especially when I try to stand upright and walk or bend slightly. odd thing is I noticed some years ago that eating a banana helped ease the pain somewhat and loosen up the back muscle. So I’ve tried this again yesterday and today and…
