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Hi, my name is Sharon15!

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Sharon15
Sharon15 Community member Posts: 5 Listener
I am happy to be here and hopefully get some sound advice on my conditions.

Comments

  • Sandy_123
    Sandy_123 Scope Member Posts: 52,714 Disability Gamechanger
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    Welcome @Sharon15 join with the conversations on the forum and the games if you want to
  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,983 Disability Gamechanger
    edited February 2023
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    Hey @Sharon15. Welcome to Scope’s forum. It is great to see you have joined us. How are you at the moment?

    It is positive to hear you are happy to be here. Are you looking for any advice, in particular? I just want to ensure we provide you with the support you are looking for.

    It might help if you are able to share a little about your conditions if you feel comfortable with this  :)

    Community Volunteer Adviser with professional knowledge of education, special educational needs and disabilities and EHCP's. Pronouns: She/her. 

    Please note: if I use the online community outside of its hours of administration, I am doing so in a personal capacity only.
  • Sharon15
    Sharon15 Community member Posts: 5 Listener
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    It's nice to be here, thank you for having me. I didn't even know this place was here. But happy, non the less 
  • loz_
    loz_ Community member Posts: 39 Courageous
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    Hi @Sharon15!

    Hope you are doing well :) this site is very helpful and the community is very kind. If you don’t mind me asking what your health conditions are? If you feel comfortable sharing of course :) I may be able to offer advice if I am familiar with any of them or they are conditions I suffer with myself. If not i’m sure there will be other people who will be able to advise you :)
    pronouns: she/her. age 25. 🤍
  • Sharon15
    Sharon15 Community member Posts: 5 Listener
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    It's lovely to meet you. I have had spinal problems for years. I won't say the trigger but since my incident I have suffered complete bladder function loss. Mobility and spinal issues. I have Fused vertebrae, Bulging discs also CCS on top of 20+ years of being catheterised with a Supra Pubic Catheter. I would love to know if I am redeemable and NOT wheelchair bound. So sorry for the mass overload. Please forgive my bluntness. 
  • loz_
    loz_ Community member Posts: 39 Courageous
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    It’s lovely to meet you too :) I am sorry to hear that, it must be difficult for you. May I ask what CCS stands for? If you are comfortable with saying. I am sorry for my ignorance on this subject, I don’t know much about it but I am keen to help you if there is any way I can do so, even if it is just listening so you can get things off your chest. I am aware that may be a bit strange as we have only just met but if you would like to just let me know :) you don’t have to apologise, sometimes it helps to talk about our issues.

    Best wishes :)
    pronouns: she/her. age 25. 🤍
  • Sharon15
    Sharon15 Community member Posts: 5 Listener
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    I have Central Canal Stenosis of the spine or the other name is Spinal Canal Stenosis, amongst the other conditions. I just want to know how other people with these or similar conditions cope on a daily basis. Please :)
  • loz_
    loz_ Community member Posts: 39 Courageous
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    Of course :) the forums that may be of help/interest to you could be the Chronic Pain Management forum and the Physical/Neurological impairment forum and there is also an accessability forum that may be able to help with your questions about a wheelchair? If those do not sound helpful there are many more forums with helpful people under Catagories!

    Good luck :)
    pronouns: she/her. age 25. 🤍
  • Sharon15
    Sharon15 Community member Posts: 5 Listener
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    No, that's great, thank you. Some avenues that have not been considered before :)
  • Cher_Alumni
    Cher_Alumni Scope alumni Posts: 5,741 Disability Gamechanger
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    Hello @Sharon15, how are you doing today?

    It's fab you found us and I know many of our other members also have spinal stenosis too. Do you have a good care team supporting you with your conditions?

    You said earlier:
    Sharon15 said:
     I would love to know if I am redeemable and NOT wheelchair bound. So sorry for the mass overload. Please forgive my bluntness. 
    And I wanted to gently offer some support, there's no need to apologise for being 'blunt' or venting, that's exactly what we're here for. Could you explain a little more about being redeemable, just so I know I'm understanding right?

    I look forward to hearing from you again. Take care.
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