Hi, my name is Jueju16! — Scope | Disability forum
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Hi, my name is Jueju16!

Jueju16 Community member Posts: 1 Listener
I have Adpkd 1 pkd for short, anyway I have had this horrible disease since birth I'm guessing ...wasn't found until 1987 when I was 19 ...babbling sorry ...it is the most draining silent killer that creeps up on you and before you know it ...your suffering with high blood pressure, nausea lack of sleep, tiredness exhausted all the time, not to mention the full feeling that continues from morning to night...I'm a woman of 54 ..I look 9 months pregnant...I have little confidence in my self any more ..and struggle to wear nice things, sorry not moaning just being truthful, also  suffering from shortness of breath ...I have just applied for pip I have an assessment over the phone ...not sure how thus is going to go ...i also have cerival spondylitis of the neck ....any fed back would be appreciated 


  • Alex_Alumni
    Alex_Alumni Scope alumni Posts: 7,562 Disability Gamechanger
    Hello there @Jueju16 and welcome to Scope's online community, thanks for taking the time to introduce yourself :) Everyone here is very friendly and welcoming, and there's plenty of our members who have shared experience of long term health conditions too, so join in whenever you're ready.

    Have you had your PIP assessment, or do you have a date for it coming up?

    If you'd like to get to know everyone, the best place to head to is the Coffee Lounge :) 

    Let us know if you need anything further, and we'll do what we can to help.
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