Hi, my name is Emi — Scope | Disability forum
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Hi, my name is Emi

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17emifon
17emifon Community member Posts: 4 Listener
I am a 25 year old disabled girl who is still undiagnosed 4 years after my symptoms got bad. 

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  • Beaver79
    Beaver79 Community member, Community Co-Production Group, Scope Member Posts: 21,076 Disability Gamechanger
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    Hi @17emifon Welcome to the Community. Is your GP helping you with referrals to Consultants for tests to find out what your condition is and what treatment you need? Have a look around and join in when you are ready. If you have any questions please ask. Take care.
  • Albus_Scope
    Albus_Scope Posts: 4,439 Scope online community team
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    Heya @17emifon and welcome to the community from me too!

    I'm sorry to hear you've still not had a diagnosis, as Beaver has already asked, are you still in touch with your GP for more tests? 
    If you need support with anything, please just ask away and we'll do our best to help. :)
    Albus (he/him)

    Online Community Coordinator @ Scope

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    Neurodivergent.
  • 17emifon
    17emifon Community member Posts: 4 Listener
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    Thanks guys! My GP has sent me to many specialist, and we are pretty sure what ever is causing it is an Autoimmune, we just don’t know which. My rheumatologist has don’t like a million tests, but no luck. 
  • Jimm_Scope
    Jimm_Scope Posts: 2,785 Scope online community team
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    I have Crohn's which is an autoimmune disease, it took me 4-5 years to get diagnosed too @17emifon! It's a long journey I know, I hope you find out what it could be soon.
    They/Them, however they are no wrong pronouns with me so whatever you feel most comfortable with
    Online Community Specialist

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