Thought I would introduce myself to this forum properly. I'm Sam, I'm 27 and I've been sick now for the best part of 4 years total up to this point. It started when I was 22 but for the first year it was tolerable. It began with a mystery sickness bug during the first quarter of 2020 that landed me in the hospital, and since then, my health, both physical and mental, have declined quite rapidly.
My main symptoms started out as gut issues and dysautonomia symptoms such as fatigue, shortness of breath, heart palpitations, becoming intolerant to temperatures that are to hot or too cold. Frequent awakenings during sleep, high heart rates after eating a meal, not even exercising or anything. Then in 2021 I started getting heart palpitations out of nowhere (PVC's), in 2022 my fatigue started to worsen and I started to develop neurological symptoms towards the end of the year that of course the doctors attributed to anxiety. in 2023 those neurological issues worsened significantly, to the point now where I experience dizziness and vertigo basically any time I am on my feet and moving around. Bending over is a huge trigger for this. I've started to become unsteady on my feet when walking and my head feels like it's going to slide off my neck, and my body feels like it's being pulled down into the ground
Recently I have come across a condition called CCI (cervical instability), and I have managed to find a medical study that is exploring this condition that I have signed myself up for, because it seems no doctor in this country even knows about it except for literally a couple of very expensive specialists, that my LCWRA backpay will mean I can finally go and see to get evaluated for this condition, as that was the barrier previously.
But yeah… I won't keep this going for too long, just thought I'd say hi and introduce myself. I'm pretty limited in what I can do physically because of the combination of issues I have, but I'd say 75% of it is due to the neurological symptoms. Being finally awarded LCWRA after all this time feels like a huge weight has been lifted. Finally I can actually go and see the specialists I've been wanting to see for months now, and hopefully I can get some answers to improve something about my situation.
