Hello everyone. Recently put on LCWRA after tribunal, 18 months of battling with the DWP

It's been very frustrating. I just seem to be deteriorating little by little each month, and to not have any clear cut answer as to why is both frustrating and also scary. That money is now hopefully going to allow me now to get some answers, and some closure as to why I'm suffering like I am.

I don't really do any self care per say. I just do what I can to get through the days to be honest. I watch YouTube quite a lot, I have a dog (it's my parents), but I can't play with him and walk him as much as I'd want to. A good chunk of my day is spent resting and lying down depending on how badly my fatigue and neuro issues are flaring that particular day. I do enjoy listening to music as well actually. (What's your favourite genre of music?), and I'll have some rum when I turn my playlist on, and I will just chill to the music, and maybe play some drunk video games with my online friends of I can manage it

Alcohol weirdly is one of the only things that doesn't really make my symptoms worse, it takes the edge off ever so slightly. But this isn't a long term solution and I know this. I only found this out recently though, since getting sick I haven't touched alcohol at all, so the best part of 4 years, I just did it as an experiment one night because I thought to myself "well I've experimented with pills enough, let's try something less pharmaceutical. Oddly it does more than any OTC and prescribed medications have done for both my gut issues and neurological ones, but I think that's just because it diverts my attention away from my usual symptoms, and so then I'm focused on the things that come with being drunk lol. Being drunk is much more pleasant than how things usually are normally though, but it doesn't completely eliminate my symptoms. I tried weed once as well, and that did not go well unfortunately. Gave me a huge panic attack and my neurological symptoms became absolutely awful for an hour or so

Oh no, do not be concerned, drinking is something reserved for the weekend to have a laugh with my online friends, if I feel up to it. I could easily see how someone in my position could end up abusing it, but I'm not drinking every day to try and cope or anything like that. If anything, it's something to do to feel a sense of normalcy for a few hours, since my life is anything but normal, if that makes sense?

I thought I was the only one lol, I love watching creepy YouTube videos haha. Our dog is an English bulldog. He's not a cuddly dog 🤣. He's a bit "special" I think 🤣, he's only a year old, so he's got more energy than I have most days lol.