What do you think about people on benefits spending on luxuries?

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Comments

  • Catherine21
    Catherine21 Community member Posts: 2,263 Championing
  • OverlyAnxious
    OverlyAnxious Community member Posts: 3,274 Championing

    Thank you for that reply. I had not really considered the working people getting PIP, although my post was about benefits as a whole rather than just PIP. The main feeling I have about total income is that people who are unable to work and on benefits should get enough to live a comfortable life, as should everyone working a full time job. However, if working people want luxuries, they have to sacrifice something to pay for them, extra time, extra energy, extra stress, etc. I just don't feel it's fair on them for those of us on out-of-work benefits to be able to afford the same luxuries without having to make additional sacrifices. I must also state that I've heard many taxpayers complain about how benefits are spent, particularly from my own family members!

    Unfortunately the reason I can't get out now is because I'm trapped in an unsuitable property. I can't change much because it is owned by the landlord. But it is also very small, meaning that most decent kitchen appliances don't fit so I've ended up with cheap ones that don't work (and have have further exacerbated my conditions). The bed is built in, attached to the wall, so I can't change that despite it being very low and uncomfortable, and while I do own a couple of chairs, I ordered a new one that I had to return, and can't face all that hassle again unless I am eventually able to go out and physically test some in shops before buying. I also can't cope with anyone in to redecorate and can no longer do something like that myself.

    The problem I have with the current system is that it's all about money. Extra money is of no use in my situation. Yet it seems to make other people jealous and angry.

    What I really needed when I first applied for PIP (along with 1 bedroom rate of housing) was access to the Motability scheme. I could only use my own vehicle to travel, always alone, only very short distances, and it had to be very smooth riding, not too firm and not too bouncy due to vertigo & digestive issues. It also had to be very reliable, which was the main problem with my car at the time. On paper, common sense and logic would dictate that someone in that position would hugely benefit from a Motability vehicle, but unfortunately I did not fit any of the PIP Mobility descriptors because I could go out alone on the majority days, irrespective or the distance or vehicle requirements. Motability do not allow external applications. I eventually lost the ability to drive altogether, and was then awarded more money, which seems absolutely absurd.

    So now I'm trapped in an awful situation, in a property that is unsuitable and continuing to damage my health, and being completely unable to move or access healthcare now that I cannot travel at all. Yet I'm getting a load of money that I can't use, which adds to my guilt, and means that I'm constantly having to watch the savings limits, causing additional stress. I don't know why anyone would be jealous of this situation, it seems that most believe money would solve all of their problems, which just isn't my experience at all. Honestly, I wish I'd never applied for PIP now, the process caused damage to my health which has not improved since, and the extra money has not created any improvement in my situation, largely because I couldn't access more suitable housing (turned out no-one wants people like me in desirable properties), I couldn't access a more suitable vehicle when I really needed it, and couldn't access suitable healthcare either.

    Just to answer the final questions. I don't agree with the £6k savings limit for means testing. It just creates unnecessary stress. If we look at the common things disabled people have to save up for, such as Motability advance payments or private health treatment, that £6k doesn't go very far in todays world. I believe there does need to be a limit, but it needs to be much higher than it currently is. As for whether or not you should get PIP with savings over £6k, to me that depends on what you can use it for. I'm not aware of your specific situation, but if you can spend the money on items that are needed because of the impact of a disability then yes, of course you should get it. But if, like me, the money is of little to no use to your conditions then no I don't believe that's fair. (Again, that's my opinion, not intended to upset anyone and I certainly don't judge anyone individually for which benefit they get or what they spend it on, just a broad general point.) If you have extra financial needs due to a disability but your colleagues don't, then yes I would say it's fair that you get the extra money and they don't.

    (Again, just to clarify, this is all my opinion based on my own circumstances and past experiences, not intended to upset anyone.)

  • Albus_Scope
    Albus_Scope Posts: 7,883 Online Community Team

    Thanks for sharing @OverlyAnxious I agree the savings cap can lead to a lot of hurt and stress to many disabled people.

    It's also worth noting to everyone that what some see as luxury items, may be actual necessities to others.

  • noman
    noman Community member Posts: 1,177 Pioneering

    I have just bought a new Apple MacBook and will be getting a new iPhone when it’s released next week,my money to spend on whatever I want!

  • OverlyAnxious
    OverlyAnxious Community member Posts: 3,274 Championing

    Hi Vikki,

    That is what I had intended to use the extra money for. I couldn't afford a more suitable property when I was on ESA and shared-rate housing benefit, as most of the ESA was going on the rent, similar to your situation.

    But once I got the extra income from one-bed housing benefit (along with PIP & SDP) every private property I enquired about was immediately refused due to being on benefits. It turned out that my income was no longer the limiting factor in my housing situation.

    Then I applied to the local housing association, and was accepted with a high band for medical need, however there are so many limitations on my application that there hasn't been anything suitable for me to bid on in nearly 2 years. What I need is a bungalow as I can't safely & reliably manage stairs due to the vertigo (so a stair lift would not work in my situation), but there are so few bungalows in my area, and almost all of them are 2 bedroom, which I'm not allowed to bid on as a single person. [As a side note, I also feel it would not be fair to take a 2 bed bungalow from a family that need it even if I was allowed]

    My daily life would be improved so much by a more suitable property, but it just seems like a complete impossibility now.

    I must admit I've very rarely had the landlord do any maintenance here, as I always found it difficult having people in, and they always seemed to fix one problem and create another, so I'm not sure that I would spend much more on maintenance in an unfurnished property. I can make minor repairs myself. But had set aside a certain amount to cover a few bits of furniture etc ready for a move.

  • Rachel_Scope
    Rachel_Scope Posts: 1,537 Online Community Team

    It's been great to read everyone's perspectives on this. It's a good question and I can totally understand your feeling guilty @littleaspiegirl1993. However, you don't need to feel guilty. We're entitled to the money as we have a disability that limits what we're able to do. The extra money makes things a little easier. Do the hobbies! Get the tattoo! Treat yourself!

    I hope the voluntary job role comes through and that it goes well. What kind of job is it? I have anxiety and depression and I didn't work for a few years as it was just too difficult. I felt the same guilt as you but it's not necessary. It's there for us because we need it.

    Tell us more about the singing! I love to sing too, what kind of music are you in to?

  • littleaspiegirl1993
    littleaspiegirl1993 Community member Posts: 16 Listener

    @vikki66 I'm very sorry if I came across as rude, not at all my intention.

  • Cantilip
    Cantilip Community member Posts: 625 Empowering

    I think because all of us here have got common sense we're assuming everyone has! What I mean is I think probably all of us, tax-payers or not, would be OK with people spending whatever they have left over after essentials on whatever gives them a bit of pleasure but would not be impressed by not being able to feed the children or pay the rent because all the money's been spent on things you do not actually need.

  • Catherine21
    Catherine21 Community member Posts: 2,263 Championing

    If you tell pip you have pets they use against you I spend all my money on face creams I've got no impulse control been therapy many times still can't stop before that I used to drink I've actually spent money and not paid bills Mental health is real I don't act like Mary Poppins people to say you think you get to much wait till you start running a house flat you won't be saying that then sounds like you haven't got many responsibilities so like spending money to you

  • MW123
    MW123 Scope Member Posts: 801 Championing

    I was deeply moved when I read your post. I am truly sorry to hear about the struggles you are facing, especially being trapped in an unsuitable home and dealing with the stress of a system that does not seem to address your most pressing needs. It is heart breaking that, despite receiving financial support, it has not led to the improvements in your life that you so desperately need and truly deserve.

    Your insights into the savings limit and system flaws highlight the significant challenges many face. The £6,000 limit for means-tested benefits is increasingly inadequate in 2024, as it fails to account for rising costs and the need for savings to cover unforeseen expenses. Adjusting this limit is an urgent necessity to better support those managing health problems and to ensure they are not penalised for having essential savings. The threshold needs to reflect the realities of our time, rather than being based on outdated models that no longer address current needs and challenges.

    It is distressing that the system meant to support you instead adds to your stress and invites unwarranted judgment from others. Your situation highlights the need to move beyond simplistic views of financial support and recognise that, alongside financial aid, there are deeper needs that often go unmet. Take care xx

  • littleaspiegirl1993
    littleaspiegirl1993 Community member Posts: 16 Listener

    @vikki66 I hope you can accept my apology for coming off rude. Really not at all my intention.

  • littleaspiegirl1993
    littleaspiegirl1993 Community member Posts: 16 Listener

    @vikki66 no I read your other reply, I just wanted to say again that I hope you can forgive me.

    I'm thinking of joining a gym or martial arts class or something too.

  • littleaspiegirl1993
    littleaspiegirl1993 Community member Posts: 16 Listener

    @vikki66 i've always wanted to be an inspiration to people.