I’m just struggling with what proof I need to send PIP for a change of circumstance,
My diagnosis are stroke, osteoarthritis, complex regional pain syndrome, functional neurological disorder, fibromyalgia, dry macular degeneration, hearing aids, protrusions discs C1 C2 C3, protruding discs C4 C5 C6 & C7, plantar fasciitis agoraphobia , I also see my mental health team twice week for PTSD, Adult trauma and childhood trauma I have my sessions at home as I never leave my home unless I’m with someone as I fear anything that flies from flys to birds, butterflies, moths, I also fear thunder lightening and if it’s really windy out, I need to have someone with me at all times to feel safe, my mental health as took a real dip the last 6 months I’m not suicidal or have no thoughts of self harm, but my fear of getting hurt or thinking everyone is out to harm me is frightening, and my isolation is my safe place, I have no friends and I prefer it to be this way as I have no trust in anyone.
When I spoke to the assessor about the change of circumstances she said I needed to explain why I’m frightened to go out on my own, I didn’t want to tell her my very own personal pain that is what I go to counselling for, she put in her report there is no reason why I can not leave my home without someone and scored me 0 on mobility she also only scored me 6 points on daily living DWP went against her and scored me 18, I have all the letters for my diagnosis but not for my mental health I’m under Safeline as well as the NHS mental health team but I’m worried about what information they will share with PIP as that’s my pain and I don’t want to share it with anyone
kind regards Dee