Proof for PIP

DeeOxnard
DeeOxnard Community member Posts: 22 Connected
in Everyday life

I’m just struggling with what proof I need to send PIP for a change of circumstance,

My diagnosis are stroke, osteoarthritis, complex regional pain syndrome, functional neurological disorder, fibromyalgia, dry macular degeneration, hearing aids, protrusions discs C1 C2 C3, protruding discs C4 C5 C6 & C7, plantar fasciitis agoraphobia , I also see my mental health team twice week for PTSD, Adult trauma and childhood trauma I have my sessions at home as I never leave my home unless I’m with someone as I fear anything that flies from flys to birds, butterflies, moths, I also fear thunder lightening and if it’s really windy out, I need to have someone with me at all times to feel safe, my mental health as took a real dip the last 6 months I’m not suicidal or have no thoughts of self harm, but my fear of getting hurt or thinking everyone is out to harm me is frightening, and my isolation is my safe place, I have no friends and I prefer it to be this way as I have no trust in anyone.

When I spoke to the assessor about the change of circumstances she said I needed to explain why I’m frightened to go out on my own, I didn’t want to tell her my very own personal pain that is what I go to counselling for, she put in her report there is no reason why I can not leave my home without someone and scored me 0 on mobility she also only scored me 6 points on daily living DWP went against her and scored me 18, I have all the letters for my diagnosis but not for my mental health I’m under Safeline as well as the NHS mental health team but I’m worried about what information they will share with PIP as that’s my pain and I don’t want to share it with anyone


kind regards Dee

Comments

  • Meredithshep
    Meredithshep Community member Posts: 66 Contributor

    It's really difficult to share your personal pain and experiences, much harder than describing your physical difficulties but sometimes you need to so that they understand as much as they can about how you're affected on a daily basis.

  • Dendoo
    Dendoo Community member Posts: 105 Empowering

    I’ve heard that you don’t have to tell them what happened to you your gp will

    Probally have the info ? I think

    Your meant to refer to it as past trauma and apparently they can’t dig what that is .

  • poppy123456
    poppy123456 Community member Posts: 61,416 Championing
    https://forum.scope.org.uk/discussion/comment/938068#Comment_938068

    They very rarely contact anyone for any evidence so you shouldn't rely on them doing that. If you don't tell them about your health conditions and how they affect you, how are they supposed to assess you?

  • Dendoo
    Dendoo Community member Posts: 105 Empowering

    I’m referring to what caused a persons trauma . Might be best to ask someone who knows the rules .

  • poppy123456
    poppy123456 Community member Posts: 61,416 Championing
    https://forum.scope.org.uk/discussion/comment/938783#Comment_938783

    Pardon? I know the rules but thank you for your comment.

  • Dendoo
    Dendoo Community member Posts: 105 Empowering

    I think your confused I meant about with regards to revealing sensitive issue's to them . I only replied to the post with love .

  • Summerlove
    Summerlove Community member Posts: 237 Empowering
    https://forum.scope.org.uk/discussion/125266/proof-for-pip

    The assessor is being difficult.

    If you told them you have agoraphobia.

    It doesn't need to be explained in great detail most people can have a phobia and not know why

    Thats why its regarded as an irrational fear of something.

    Maybe a letter from GP or a therapist stating this would be enough however some have not recieved mobility if they don't go out at all as they feel you will not need it.

    If you need someone with you at all times when going out that is qualified for mobility element whatever they say as it was challenged in court and they had to backdate many claims over it.

  • DeeOxnard
    DeeOxnard Community member Posts: 22 Connected

    I’m having a good evening so I wanted thank you for all your comments, again going through the pip form as sent me into tearful week, I just don’t understand how to answer them due to the last assessment and the assessor getting short with me, sighing and rushing me, I’ve had a few meetings with the mental health team and as I have my counselling from home the Lead occupational therapist said she would look at the form and answer the questions and how it’s affecting me, and do a full report for me bless her it took hours, as she has seen me at my worst explaining the falls, how frightened I am to leave home without support, the injuries I’ve had and hospital admissions how isolated I am as I worry about asking for help.

    I HOPE PIP WILL EXCEPT AS ITS DONE BY A MENTAL HEALTH PROFESSIONAL and even tho I’ve waited over 2 years to gain access to the Mental Health Team even tho PIP didn’t believe me 2 years ago, and would not take Agoraphobia as a condition as I had no mental health input for it, they need to train their accessors to be more sensitive, and DWP needs to understand we can’t always gain access to the services we need

    The good news I think is they have got me a Reach Alliance support worker to give me a little more support, it’s not I’m frightened of going out, I’m frightened of being unsafe, fearful, scared that any thing I fear will happen, most of my trauma as not only been from my childhood but it has continued for 50 years, I just suffered in silence because that’s what you've been told by your abusers, 6 years ago was a breaking point that I just blurted it out to my GP it’s just horrible to be like this and hoping counselling will help me.


    so thank you Dee

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