Hi, my name is BarneysMum! so interested in others with a long history of PEG use.

BarneysMum
BarneysMum Community member Posts: 1 Listener
edited November 22 in Start here and say hello!

Hello everyone, I've been a Mum for 48 years now, supporting my son and being involved in the disabled community both in work and setting up support such as his care home garden update with volunteers, Contact a Family group, and currently Dancing on Wheels - a wheelchair dancing class. My son has been a nil by mouth PEG user since 2001 so interested in others with a long history of PEG use. Also interested in ideas for one switch use. And technology and new innovations!

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  • Albus_Scope
    Albus_Scope Posts: 8,262 Scope Online Community Coordinator

    Heya @BarneysMum and welcome to the community! Thanks for telling us a bit more about you both, I'm hoping you'll find some support on the community and get to swap some tips. 😊

  • SaraC_Scope
    SaraC_Scope CP Network, Scope Posts: 157 Empowering

    Hi @BarneysMum

    Welcome to the community. This is a great place for advice and support.

    I'm part of the CP Network team and @Richard_Scope who is the Cerebral Palsy Lead has a wealth of knowledge and experience, if you wanted to contact him.

    I've included the link to a Facebook group called Cerebral Palsy Adult Advice UK | Facebook It's a space for adults with cerebral palsy and family members to connect, share knowledge and build relationships.

    @SaraC_Scope

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