Hi, my name is jonju!

jonju

My anxiety is sky high ,my heart is beating so fast because I'm so worried 😟 I have a rare disease that even the Dr's or professionals don't know much about . I had a heart attack 2021 & a stroke followed, ever since then I've been unable to walk un aided ,I haven't got the muscle strength I used to have ,I basically find everything very difficult. I'm incurable, I will only get worse 😢

It's still quite raw I'm having problems taking it all in , I have very strong medication, I'm brain fogged 50% of my day . I'm existent on my benefits I have the money to get taxis to my hospital & Dr appointments, I have massage treatments that really help me get a good night's sleep . This disease is my arteries are clogged up ,I had a stent put in after my heart attack . Since then I've got a funeral plan I'm paying monthly for & I've got an insurance policy for my daughter & grandson, so they have some financial help without me , I won't be able to afford these monthly payments anymore & all I have paid would go to waste , I'd get nothing, not even peace of mind in death 😢 these reforms are seriously punishment for being disabled , I don't see why the government are making our lives so much worse than they are already 😢 It's outrageous & very unfair ! What was the discretionary payment about ? Making up our universal credit because it was unfair to take money from what we were normally getting? Now you don't care ? It seems 😕

Holly_Scope

Morning @jonju I'm so sorry to hear what you're going through and added stress yesterday's announcements have caused. You're not alone. It might be worth taking a look at a discussion where a lot of our members are coming together to share their concerns/questions, and support one another. This is called - The Green Paper Discussion

I hope you don't mind but we'd prefer to keep the conversations regarding this all in one place, so as to protect the mental health of all on the community 💛, so we will be closing this discussion. I hope you understand.