Hello!

Eli_22

Good morning all!!

I've just joined this group in hope to find information, support and a sense of community.

I am a mother of the most happiest, cheeky, determined little boy who just so happens to have bilateral CP, bilateral PVL and global developmental delay. None of his diagnosis stops him or hinders him to be the toddler he is becoming, and why should it!!??

It has been a hard journey to get to were we are now, we have had a long journey to get the answers we needed and to get the support in place.

Why do you have to fight so hard to be listened to and get support!!?? A point I'm sure surprises no one on here. And add to it, not having a community around you that get it is hard.

So this is why I'm here, as a Mumma bear, who needs support and wants to get as much information as possible, but as a voice for my son, who at the moment is unable to fully voice what he wants and needs.

I look forward to meeting some new people/friends/allies!! 😊

Mary_Scope

Hi @Eli_22 and a warm welcome to the community!

That is wonderful, it's always so lovely and heartwarming to see your children be so happy! You also sound like a fantastic advocate for him😄

We have a wonderful CP network on the community who can provide information and support for people with CP as well as their family so I will tag them in this now @Lucy_Scope @SaraC_Scope @Richard_Scope

We also have lots of parents and carers on the community to young children too so hopefully you will be able to find that peer support here😄

Please reach out if you there is any information, support or advice you would like, we are a friendly bunch here on the community who will do our best to support you!

SaraC_Scope

Good morning @Eli_22

Welcome to the community. I'm Sara one of the Cerebral Palsy Specialists.

It sounds like you are already doing so much for your little boy and embracing him for his unique self. Our disabilities definitely don't define us but it for parents and carers and the person themselves, it can feel like a lonely journey at times.

It's great your reaching out for some additional support and wanting to connect with people who understand. As Mary has mentioned our team the CP Network can provide advice and support and Scope have detailed information about CP on our website. Scope Introduction to Cerebral Palsy

There is a great Facebook page for families of children with CP Cerebral Palsy UK If you have any questions or need to talk, people will answer quite quickly. We also have the Scope Parents of Children with CP Facebook page and Action CP is a great advocacy organisation for families.

Please take your time to explore this information. If you have any further questions or need additional advice and support, please get in touch.