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Whats the wait for a decision on a child disability claim?
hi wondering if anyone could help me I made a child disability claim in October but was late handing the second part in so when I send that in the called and done the first part again that was in January does anyone know how rough the wait is for decision and do they take support and social work letters into account mines…
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Suspect our son has ADHD, any advice?
Both me and my husband are in our 40s and have ADHD, our son is 5 and we also think he may have it. The lack of sleep we both recieve is just awful,and is severly effecting all our mental health. We have asked for support from drs and other professionals but nothing seems to help him, we are at a total loss and need some…
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Looking to Move to another city
Hi Everyone, it's nice to be part of a community here. I am a father of a 5 year old boy who has ASD and ADHD. We moved to Birmingham from London in 2023 due to economic reasons but shortly afterwards my son was diagnosed with these conditions, now I am finding really hard to get any support from the LA as the council is…
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Hi, my name is welbeck! My ASD teen has noise sensitivity, any advice?
Hi,my ASD teen and noise sensitivity
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Relocating from Spain to England - Education Advice For 15 Year Old
Hi I'm a UK born parent of a UK born soon to be 15-year-old son Joe. He has exceptional needs - almost non-verbal ASD & needs constant care. We have been living in Spain for 12 years where we have found the schooling very disappointing. I've recently relocated to my native North Tyneside & we're exploring the possibility…
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Hi, my name is funtastic2676! I am looking fur days out for my older son who is autistic.
I am looking fur days out for my older son in the northwest that are suitable for autism & not over stimulating
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Any other disabled parents?
Hi, just wondering if anyone else has a disability and kids- mine are primary and secondary school ages. I'd love to connect with people who are in the same position as me. I'm feeling pretty lonely right now!
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New member
My daughter has CP is hypotonic, has a learning disability and is on the autistic spectrum. I would like her to be able to join here with her own account. Is this possible. She could do with making some friends outside her very small circle of existing ones.
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Child benefit
Hello lovely people! I've recently been requesting to send details of my children for a child benefit review. I have 3 kids whom are 8,3 and 1. My oldest is homeschooled by my father who was a teacher for over 35 years. Documents required by child benefit are; doctors letters for all 3, my oldest school details, and 4…
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Can My 12-Year-Old Nephew with Severe Cerebral Palsy Get Medical Support in the UK?
Hi everyone, I am seeking advice on whether my 12-year-old nephew with severe cerebral palsy can get medical treatment in the UK. He was diagnosed at birth, but unfortunately, he has never received proper medical care. He cannot speak, stand, or walk.
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Hi, my name is Charlee31! I'm looking for some advice in regards to my autistic 5yr old daughters...
Hey I'm looking for some advice in regards to my autistic 5yr old daughters ehcp plan . She was issued a ehcp plan roughly to £14000. A big part of that was for a 1 to 1 trusted aupport person. My daughter has been in the school since reception and now is in year 1 . She was given a 1 to 1 in reception and it took about 5…
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Hi, my name is jenys!
HHi. I have two children on the spectrum and I'm new here.
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Child DLA renewal
Hello, We get DLA for my child which is due to be renewed in Oct this year. Is this straightforward process? I heard online somewhere that it is just a light touch when revering child DLA claims. My older child in receipt of PIP, I am appointee for both of them just worried that at the time for child DLA renewal it won’t…
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Carers allowance suspended
hi my daughter receives high care and low mobility and I work one day a week! I was advised to apply for carers she under 16 no esa or pip had letter to say I was entitled and was expecting first payment today! Nothing called them said claim suspended no notes so no idea why he’s filled report in :(
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Reassurance
Well yesterday my daughter aged 22 broke down with chronic anxiety about the benefit cuts although she has a few health conditions including autism she was refused pip a couple of years ago and took it to heart saying they think I am lying so refused to go through the process anymore she is doing her modern history masters…
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Charity suggestion
Hi everyone. I'm looking for a charity that helps supply garden toys for children. I stumbled across one a while ago but can't seem to find it again now 🙄 Does anyone know of a Charity that can help? Looking to apply for a special needs swing. Thanks in advance 👍
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PIP not given for ADHD/mental health
I got my decision letter from PIP today, didn't get it. I am also awaiting outcome of WCA (UC50). If I am refused LCW I won't be able to cope with 35 hours a week of job searching ☹️ I have been waiting for NHS mental health support since October 24 and now told by GP it will be another 15 weeks for initial appointment…
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11 year old that has severe anxiety and is currently being assessed for ASD/ADHD
Hello everyone new to this group. I am a single parent to an 11 year old that has severe anxiety and is currently being assessed for ASD/ADHD. I'm struggling everyday especially with her school and getting her there. It's so hard especially when she has meltdowns, I feel hopeless and like a useless mum most of the time.…
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Child dla
Hi, my son who is 12 has had his child dla turned dwn he has a hearing aid its gone to a mandonatory reconsideration they declined it as he doesn't need care attention for a child same age as him. We have sent doctors letter as supporting evidence. Can someone tell what's next steps and has someone else got it for a 12yr…
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Hi, my name is sunshine93! Hi, I’m a mom of four and I take care of my disabled sister. She has ...
Hi, I’m a mom of four and I take care of my disabled sister. She has cerebral palsy . I have a problem with the housing and I really need help with any advice of what to do. We live in a 3bedroom rented house and joined the house register 2.5 years ago when my sister had a really bad fall on the stairs and since then her…
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EHCP declined!!
Hi, my grandson is awaiting a scan to confirm CP although working diagnosis has always been evolving CP. He will be 3 next month, in nursery where he has standing frame, brillio seat and a walking frame. He can sit cross legged independently, roll and just about beginning to do an army type crawl, at great effort. He has…
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Hello!
Good morning all!! I've just joined this group in hope to find information, support and a sense of community. I am a mother of the most happiest, cheeky, determined little boy who just so happens to have bilateral CP, bilateral PVL and global developmental delay. None of his diagnosis stops him or hinders him to be the…
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Hi, my name is Windsors!
can you tell me if PIP money can be controlled by the LA if child has a FCO. IE we can give it to her as her needs arise. she is vulnerable due to her ASD and might use it to run away and she is not mature act about 7-12 sometimes young although she is 16 - she cannot leave independently qt this time.
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EHCP- I don’t know if daughter needs one!
hi everyone, A bit of background…my daughter is 7 years old. She was seen By a consultant who felt she had ADHD was going to await school questionnaire and then diagnose. He retired by the time it got sent back she was then passed onto an ADHD nurse, whilst the score scored high for inattentive adhd, she scored borderline…
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Relocation
Good afternoon My name is Hannah im new to the site. Im looking to relocate to cornwall in 2026 with my 4 children 2 of them have Adhd and Asd. What are the best schools and location would you recommend? Thank you Hannah
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Hi, my name is tired_mum! Hi, hope someone can give me some advice please. My 11 year old son...
Hi, hope someone can give me some advice please. My 11 year old son has been diagnosed with autism and has never really slept well. Over the last 4 months he has not slept much at all, we didn't sleep at all last night. He does not let me and my husband sleep as when he can not sleep he wants one of us with him. He gets…
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Hi, my name is mumof5devils!
I have 5 kids. 2 of which suffer anxiety. Adhd and seriously outrageous tantrums that involve complete refusal to move. Have no filter to their mouths, what they say, who is wat high at time. My yr 10 14yr old son suffered 2 small fractures to his spine that during it scans they found 3 nodules in his back and lungs. He…
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Sitting in on a phone as an advocate for 17 year old son during PIP assessment
Has anyone else had a PIP assessment for their teen child ? I’m absolutely astonished with their lack of empathy for a 17 year old . I understand the process but she was grilling him to the point it reduced him to shock. I had to tell her stop and remind he was a 17 year doing an adult assessment. I said he had already…
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Hi, my name is Tootsie_cub!
Hi everyone. My 13 year old son has recently been diagnosed with mild cerebral palsy. It mainly affects his speech, balance, fine motor skills and coordination. Sadly he gets mercilessly bullied. All through his primary school years and now into high school, as well as out of school activities such as scouts. This has…
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Please please give me some advice 🙏
Hi guys, I posted on here a few weeks back about my autistic daughter and got lots of advice.. so here goes... My daughter is 10 years old and has several learning difficulties and severe school anxiety. She has a EHCP in place, which is not helping with her anxiety. Every day is a struggle to get her to school and every…
